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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to think you can live a happy life with tinnitus

135 replies

Guesswhosbacktellyourfriends · 28/06/2024 14:26

The posts on here re: tinnitus have really got me through the last two months, so I'm just back to ask (pleadingly) - if you were really down about it in the beginning, and really fixated, did it change for you? I know it sounds so melodramatic but I just think it means I can't live the same life I did before. I guess I'm worried too that it could all get so much worse (quite mild in the day, no hearing loss, annoying at night)

Can you really learn to block it out? Do most people manage that? I read posts that say people can go for weeks or months forgetting they have it but it's on my mind all the time (and I know, I'm doing what I can to not have a stress response to it but it's so alien).

I've got ETD and fluid in my ears which also make it hard not to overthink it. And I'm a writer by trade, so I miss my silence. Sorry for the whingy post.

OP posts:
Guesswhosbacktellyourfriends · 29/06/2024 07:38

@Globetrote I’ve been wondering about adult grommets but I’m so worried it’ll make the T worse.

OP posts:
Guesswhosbacktellyourfriends · 29/06/2024 07:37

I’m so glad I asked now, thank you so much you lot.

Did anyone get theirs as result of ear infection and adult glue ear? It’s basically what I’m dealing with. I guess it might settle at night once the fluid’s gone.

OP posts:
dahlialove · 29/06/2024 00:55

I’ve had mild tinnitus for as long as I can remember. As PP said I thought it was normal for most of my childhood! I don’t really notice it except occasionally at night, so I listen to a lot of podcasts as background noise. Highly recommend the flicking technique someone linked - that was a game changer for me!

aramox1 · 29/06/2024 00:19

Yep. Had it 7 years, block it out and only notice it occasionally now or when it suddenly stops/changes. Time outdoors really helps as it's not quiet.

AllLopsided · 29/06/2024 00:13

I've had it since my 20s, now 57. It's been better and worse during that time. For several years it seemed to be largely controlled by Prozac (which I took for depression, for other reasons). I really noticed the tinnitus again when I had to stop the Prozac. I do find it difficult because I like silence, but I've mostly learned to accept it as part of the silence. I find sleep the hardest but now, after trying lots of different things, I always fall asleep listening to audio books, or sometimes soothing music like Delta waves. I take ginkgo biloba too which I think dulls it a bit.

RM2013 · 28/06/2024 23:54

I’ve had tinnitus for as long as I can remember. I can mostly block it out and I only really notice it when it’s really quiet. Mine is like a constant ringing noise. I can’t remember ever not having it. Would love to have complete silence just occasionally though

momtoboys · 28/06/2024 23:16

I've had tinnitus for years too. I also have moderate to severe hearing loss which I am doing my best to ignore. I will have to go the hearing aid route but I'm not ready!

timtam23 · 28/06/2024 22:54

I've had tinnitus for 7 or 8 years, after I had shingles in my ear and it wasn't diagnosed early enough to treat. So I was left with some nerve damage and the tinnitus. At first it really bothered me and I was very upset. It was loud and I was aware of It constantly. It was and still is a high-pitched whistling/squeaky sound. I couldn't get to sleep at night for ages. But now I hardly notice it any more. In the daytime with other noises around to distract me, it's now rarely a problem. I do notice it at night, but I think my brain is now able to acknowledge it and then move on, rather than focus on it.
If I have a cold, or any eustachian tube dysfunction, the tinnitus gets worse & more noticeable, and my ear hurts a bit as well, but again I think I have learned to notice the feelings and then try to let them go.

Doyouthinktheyknow · 28/06/2024 21:59

I think I have always had tinnitus to a degree, I actually thought it was normal to have ringing in your ears until I was about 25!

Unfortunately it got a lot worse with a really horrible ear infection last year and although I can tune it out most of the time, it does get me down when I tune into it and I do think my hearing is affected but haven’t had a test yet. It’s my left ear and quite loud when I tune in!

I definitely think you learn to live with it and can tune it out. Because I’m thinking about it, it sounds really loud but I wasn’t bothered by it until I read this🤣

ltappleby · 28/06/2024 21:55

I’ve had permanent tinnitus for 9 years, since bad concussion. Sometimes I don’t notice it, but when I do it doesn’t bother me, I think I prefer the lack of silence now.

HappyAsASandboy · 28/06/2024 21:50

I have tinnitus. It started when I had my first child and is still here 13+ years later.

Sometimes it is less than other times. Recently I spent quiet time in the same place two days running and was astounded to be able to hear a clock ticking the first day but not the second due to tinnitus noise.

I think it is something you learn to live with. Never please f or normal, but hopefully bearable and manageable.

BoobyDazzler · 28/06/2024 21:44

I don’t hear mine very much unless I’m really stressed. The only time I ever think about it now is when I read posts on here about it.

beckybarefoot · 28/06/2024 21:42

i've had it probably my entire adult life and im 57.. and only recently have i received a referral too ENT department to see if theres a cause for it? I assumed it was just something you have to live with.

i suffer chronic migraine, and its gets worse when i have a migraine coming, and its also worse when i am tired and stressed

ffsgiveitarest · 28/06/2024 21:39

I’ve had it for 31 years you learn to tune it out

Happyher · 28/06/2024 21:38

I only hear it when there’s no background noise and I’m not distracted by anything. I have the radio on a lot. It’s also louder if I’m ill with a temperature. And I can hear it now you’ve mentioned it! 😀

Catsmere · 28/06/2024 21:36

Mine started a few months ago. It's a constant hiss. I only notice it when I'm at home or somewhere quiet, and it doesn't bother me. It's almost like internal white noise - just a pity it doesn't mask external noise the same way!

LordPercyPercy · 28/06/2024 21:33

I also have tinnitus and ETD caused by damage from a medication. The first few months it really upset me and I had to have background noise on all the time, but now it barely bothers me at all. It's become like breathing, only conscious of it when I think about it.

PumpkinPie2016 · 28/06/2024 21:29

My dad suffers from tinnitus.

He says the only thing that has helped is wearing hearing aids.

Sympathies OP - it must be awful.

Barrenfieldoffucks · 28/06/2024 21:27

HildaOgdensMurielle · 28/06/2024 21:25

I hated it so much when it started, and like you was so upset when I thought about being stuck with it forever- but I’ve become accustomed to it now. I often don’t notice it for a day or so, and when I do I don’t really mind it.

In fact sometimes I tune into it on purpose if there is other noise/stress going on and it helps me block out other stuff.

Ive also grown to find it quite comforting in some ways- wherever I am and whatever is going on it’s always there if I want it… it’s sort of become my sound of calm.

I didn’t do anything to reach this point, it just happened over time (years).

Likewise. Sometimes the fact I'll never hear silence bugs me, but the rest of the time it just is what it is. I've had it for 20 years now so 🤷

DH also has it, and has hearing aids for unrelated upper pitch hearing loss. The hearing aids get rid of the tinnitus when they're in.

HildaOgdensMurielle · 28/06/2024 21:25

I hated it so much when it started, and like you was so upset when I thought about being stuck with it forever- but I’ve become accustomed to it now. I often don’t notice it for a day or so, and when I do I don’t really mind it.

In fact sometimes I tune into it on purpose if there is other noise/stress going on and it helps me block out other stuff.

Ive also grown to find it quite comforting in some ways- wherever I am and whatever is going on it’s always there if I want it… it’s sort of become my sound of calm.

I didn’t do anything to reach this point, it just happened over time (years).

Rowen32 · 28/06/2024 21:03

Guesswhosbacktellyourfriends · 28/06/2024 15:52

@Rowen32 Phew. So life as normal?

Honestly yes like it's just there now, I hear it if I try to hear it or someone tells me to listen, they've just heard something, can I hear it moments but I really don't give it a second thought except like I said before when it's 'louder' and I know I need to destress:-)

Guesswhosbacktellyourfriends · 28/06/2024 17:48

@WhatNext24 Yep it’s exactly what I want to hear.

OP posts:
Guesswhosbacktellyourfriends · 28/06/2024 17:48

Thanks @Applepencilplant - do you think it would have the same effect for someone with normal hearing?

OP posts:
WhatNext24 · 28/06/2024 17:45

yes, usually. I think mine is actually quite bad and yet it features at about 1/10 on the richter scale of life problems, if that helps?!

norasand · 28/06/2024 17:45

Oh and I learnt this finger flicking trick that I find helpful when I get one of those sudden attacks of it sounding louder or changing pitch

https://youtube.com/shorts/YyT9ZwWy5Jc?si=xyviN58oP2JlpAu1

Before you continue to YouTube

https://youtube.com/shorts/YyT9ZwWy5Jc?si=xyviN58oP2JlpAu1