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Sciatica /slipped disc

542 replies

Allofaflutter · 14/04/2024 14:29

Posting here for volume of answers.
Yesterday I moved normally and my lower back suddenly felt like it was being compressed and the pain was awful. Since then pain down one leg. The pain is like cramp but the worst cramp ever. Leg is much worse than back.
I have been screaming all night, literally in so much pain I couldn’t help it, worse than child birth. Couldn’t sit, lay or even perch. Even standing which was when it was best, it was at 9 out of 10. Hubby called 111 and paramedics were sent as I had a pulmonary embolism in Jan and I was screaming with the leg pain and he wanted to be sure it wasn’t that again. They told me to take codiene and paracetamol but it’s not doing anything really significant. They said it was sciatica, possible slipped disc causing it. What can I do to calm the pain. Obviously I’ll call dr tomorrow. Can’t take nsaids as I’m on blood thinners for blood clots. I’ve had no sleep either. Can’t use topical creams for the same reason. Anyone had similar? Can anyone tell me what worked for you? Can’t stand for days though I can just about not cry if I stand. Can’t lay to sleep. Help please? I’m exhausted but the pain won’t let me lay or sit. How long will this go on for?

OP posts:
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tabulahrasa · 16/04/2024 12:26

Have you tried on your back with cushions under your knees so your legs are bent?

or on your side with cushions between your legs?

tabulahrasa · 16/04/2024 12:28

Also, if painkillers aren’t working, you have to keep getting back to the GP telling them that or they assume you’re ok IME.

Allofaflutter · 16/04/2024 12:29

Yes tried all that. I’ve ordered a sciatica cushion of Amazon so we will see if I can sit. It’s becoming so tiring standing all the time. My numbness in my painful leg is tripping me up like my leg is controlled by someone else. Can’t lift it properly.

OP posts:
Allofaflutter · 16/04/2024 12:31

tabulahrasa · 16/04/2024 12:28

Also, if painkillers aren’t working, you have to keep getting back to the GP telling them that or they assume you’re ok IME.

That’s a good point. I’ll tell the drs it’s not doing anything. I do wonder if my diazepam is too small a dose too. Only 2mg 3 times a day.

OP posts:
Allofaflutter · 16/04/2024 12:31

Thank you.

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Greyat · 16/04/2024 12:34

I go straight to a private osteopath with anything musculoskeletal. I know it's not an option for everyone, but for me it's £50 well spent. He can usually fix things within one or two sessions, including in the past sciatica and a compressed disc.

I'm grateful for the NHS, when it's something life threatening they can be wonderful, but IME they're rubbish for anything that "just" affects quality of life.

tabulahrasa · 16/04/2024 12:44

can’t help you with diazepam I was on it for a week or so, before the first time I ended up at A&E, it did nothing.

ineedastrongercoffee · 16/04/2024 12:46

I have a herniated disc and a compressed disc right at the bottom on my spine. It's been 3 years since I've had an episode like what you are describing. You need a compassionate GP (I know hens teeth) who will arrange a MRI to see what is going on. GP prescribed diazepam but these didn't touch the sides really so I got Tramadol. They are strong but do allow you to get some rest.

I go to see a chiropractor, not for everyone I know but for me she has worked miracles.

It really is the most painful thing in the world, you have my sympathies.

I did read a bit further upthread that you are struggling to go to the toilet, if this is still the case then please go back to A&E, not being able to go to the toilet can be a really serious sign of trouble.

Caerulea · 16/04/2024 12:52

Coming in with supportive words, OP. Hope you get your scan & results soon. Just out the other side of the worst back (of any!) pain I've ever had with a herniated disc week before last. I've an appt with the Dr this week cos I absolutely cannot go through that again, there's just no words to describe the pain at all.

Sounds silly, but this helps me a bit, can you pull your knee up to your chest? That might offer momentary relief? If you're tall enough, can you stand by the worktop & raise your worst side leg up to rest on it? So your legs are at 90°to one another if that makes sense?

HollaHolla · 16/04/2024 12:58

Allofaflutter · 14/04/2024 15:08

So don’t go to A&E if I’m ok with pee/ poo? Don’t want to put myself through the torture to be told go home.

Yep. They don't consider it an emergency unless it's Cauda Equina. You will be told to manage it at home, from experience. See if you can get a nerve pain drug prescribed (I take Pregabalin). It takes the edge off it.

I've had 4 spinal surgeries, and wish I hadn't, in many ways. Time is the only real thing which will help it settle, unless you get Cauda Equina, or foot drop...... Only then will they consider surgery, in my experience.

Look after yourself. It's grim. I'm on 11 years of the constant sciatica, sadly.....

Allofaflutter · 16/04/2024 13:02

ineedastrongercoffee · 16/04/2024 12:46

I have a herniated disc and a compressed disc right at the bottom on my spine. It's been 3 years since I've had an episode like what you are describing. You need a compassionate GP (I know hens teeth) who will arrange a MRI to see what is going on. GP prescribed diazepam but these didn't touch the sides really so I got Tramadol. They are strong but do allow you to get some rest.

I go to see a chiropractor, not for everyone I know but for me she has worked miracles.

It really is the most painful thing in the world, you have my sympathies.

I did read a bit further upthread that you are struggling to go to the toilet, if this is still the case then please go back to A&E, not being able to go to the toilet can be a really serious sign of trouble.

Thanks. I had the finger up the bum test and it’s all ok.
they think the numbness is not caudia equine. Still keep tripping up as my foot can’t lift it far.

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HollaHolla · 16/04/2024 13:04

I'm so sorry - I see things have moved on (my page hadn't refreshed!)
It's good that you don't seem to have Cauda Equina, but it is still grim. Sounds like they've just given you opiates (oramorph/diazepam). You can take a nerve drug, an NSAID (although I know you can't), and opiate together - as well as paracetamol. For example, I take Pregabalin, Naproxen & OxyCodone, with paracetamol too. When things are really bad, I can add Oramorph. I do have all of this prescribed, and honed, via the Pain Clinic. Might be worth asking if you can speak with them?

Allofaflutter · 16/04/2024 13:05

Caerulea · 16/04/2024 12:52

Coming in with supportive words, OP. Hope you get your scan & results soon. Just out the other side of the worst back (of any!) pain I've ever had with a herniated disc week before last. I've an appt with the Dr this week cos I absolutely cannot go through that again, there's just no words to describe the pain at all.

Sounds silly, but this helps me a bit, can you pull your knee up to your chest? That might offer momentary relief? If you're tall enough, can you stand by the worktop & raise your worst side leg up to rest on it? So your legs are at 90°to one another if that makes sense?

Edited

I can’t lift my leg or knee up very far so I can’t pull it up to my chest or lift my leg more than 30cm. Hardly managed to lift it enough to do the stairs. But thank you.

OP posts:
ConsistentlyPeeved · 16/04/2024 13:08

Sorry but those who are advising to go to A&E probably don't understand that nobody gives a shit about a slipped disc.
I had 3 and couldn't use my bowels properly, my Dr forgot to do my referral and I ended up in a wheelchair.
I finally had an epidural and touch wood I've been fine since.
All I'm saying is, strap yourself in for a long and fucking excruciating wait. You will however appreciate your mobility a lot more when it's all sorted though! I no longer take mine for granted and I'm super careful.

Allofaflutter · 16/04/2024 13:08

HollaHolla · 16/04/2024 13:04

I'm so sorry - I see things have moved on (my page hadn't refreshed!)
It's good that you don't seem to have Cauda Equina, but it is still grim. Sounds like they've just given you opiates (oramorph/diazepam). You can take a nerve drug, an NSAID (although I know you can't), and opiate together - as well as paracetamol. For example, I take Pregabalin, Naproxen & OxyCodone, with paracetamol too. When things are really bad, I can add Oramorph. I do have all of this prescribed, and honed, via the Pain Clinic. Might be worth asking if you can speak with them?

Thank you for the sympathy, sorry you are suffering too. They gave me amitriplyne too weird tiny bright blue pills lol. A and e said they were referring me to the pain clinic.

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Allofaflutter · 16/04/2024 13:11

I need the pain to stop to be able to lay down and sleep.

OP posts:
Triflelife · 16/04/2024 13:14

@Allofaflutter can you query if you can up the dose? The dose of diazepam the Gp prescribed was half what I had in a&e to bring the pain down and like you wasn’t doing anything. I was crying in pain the next day when the doctor phoned and they upped the dose.

ps just saw your post as thread hadn’t updated - 2mg diazepam didn’t do anything for me but 4mg plus made things much better

HollaHolla · 16/04/2024 13:28

It sounds like you might have a bit of foot drop. Which is what led to my 1st (& 2nd) surgeries. I did have to wait 19 months from onset of symptoms to surgery, however... the waiting lists were mental at the time (10 years ago; I was in the area where the Head of Neurosurgery wasn't actually qualified, and did some terrible things to people.... thankfully not me!)

What I would recommend is, if you have it, throw some money at getting really good Physio input, to keep you as mobile and functional as possible. You need to keep as strong as you can, although it is painful. Check that the Physio has extensive spinal/disc herniation experience (they don't all have it), and really concentrate on that. They can make a massive difference. Even now, after 11 years of the pain, I notice the difference when I let it slip.

I would say that surgery isn't everything. If you can avoid it, my advice is, do that. I've had 4, and my surgeon says that, barring something fairly catastrophic, he won't go back in there.
No 1 was because of the foot drop, mainly. I also had numbness, and pain, of course. That was a microdiscectomy at L4/L5 & L5/S1; laminectomy, and nerve root decompression.
No 2 was 11 days later, because I re-herniated on day 7. It was a clean up of what had been done in No 1.
No 3 was 5 years ago, and I'd developed Cauda Equina, so was a middle of the night kind of thing.. GP to A&E, then transfer to a hospital with a neuro unit, then MRI, then decision for surgery. That was another microdiscectomy at L4/L5 & L5/S1, and nerve root decompression.
No 4 was 2 weeks later, as I developed a post-op infection, and a bunch of puss was seeping from my spinal column area. So, that was nice.

It might also be worth seeing if you can get any nerve root injections, which are a bit like an epidural for the nerve. I've had 6 of those, with varying success - but if they work, it's blessed relief for long enough to get moving again.

You have my greatest sympathy; I wouldn't wish this on very many people in the world.

Caerulea · 16/04/2024 13:46

Allofaflutter · 16/04/2024 13:05

I can’t lift my leg or knee up very far so I can’t pull it up to my chest or lift my leg more than 30cm. Hardly managed to lift it enough to do the stairs. But thank you.

Thinking about it, I can only do that when it's at its normal (ha!) levels of constant pain. The other week I couldn't do anything, not even speak when it spasmed. The act of DH placing a TENS pad on my back reduced me to tears. I'm so sorry, it really is extraordinary pain.

TheWayBackHome · 16/04/2024 15:45

OP - I had what sounds to be similar to you. It turned out to be ruptured/severed/compressed discs.

The pain was bad enough to use (a lot of) oromorph, slowly taking it down to codeine, plus gabapentin (nerve meds). Gabapentin made a big difference - it may be worth asking your GP about getting some of these.

It took me a couple of months to recover properly, without surgery, so prepare yourself for that possibility.

Allofaflutter · 16/04/2024 17:54

Dr has upped my diazepam to 4mg and oromorph to 10ml and said I can call tomorrow for gabapentin if I’m still as bad tomorrow. He also was amazed they hadn’t kept me in when I went in as I was screaming at them.

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Allofaflutter · 16/04/2024 17:56

I really do appreciate each and every bit of support and suggestions. I love the MN hive mind.

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Allofaflutter · 16/04/2024 17:58

Amazon also delivered a sciatica cushion of memory foam so I have managed to sit down! And dozed for 2 whole hours 😊

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Triflelife · 16/04/2024 18:26

@HollaHolla sorry for jumping on your post but was wondering if the surgery solved your foot drop? I have a bit of residual foot drop (5 months in - much improved on what it was though) but still a fair bit of numbness. It’s a bit like my leg isn’t my own anymore and feels so odd and alien still I’m constantly aware of it. The neurosurgeon doesn’t recommend surgery as the benefits aren’t guaranteed but interesting to hear from someone had surgery and if there was a benefit?

pelotonaddiction · 16/04/2024 19:00

Triflelife · 16/04/2024 18:26

@HollaHolla sorry for jumping on your post but was wondering if the surgery solved your foot drop? I have a bit of residual foot drop (5 months in - much improved on what it was though) but still a fair bit of numbness. It’s a bit like my leg isn’t my own anymore and feels so odd and alien still I’m constantly aware of it. The neurosurgeon doesn’t recommend surgery as the benefits aren’t guaranteed but interesting to hear from someone had surgery and if there was a benefit?

I had emergency surgery L5/S1 and it resolved my foot drop
The only remaining things I have are
Slight numb foot and leg
Occasionally back pain

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