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To think that not everyone has ADHD

400 replies

Ws2210 · 07/09/2023 20:03

Lately it seems like every other mumsnet post, someone (the OP or the person they're posting about) has ADHD...or at least that's what the replies will inevitably suggest.

Recent examples, DD's boyfriend eats all the food. Does he have ADHD? DH hasn't come home all night. Is it ADHD? Someone took a massive shit and now has hemorrhoids? ADHD!

OK, so I made the last one up but I can't be the only one who has noticed this?!

Note, I am not denying people legitimately have ADHD, just questioning why it is being diagnosed so frequently over the internet

OP posts:
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12
Princessconsuelabananahammock9 · 07/09/2023 23:54

QuitChewingMyPlectrum · 07/09/2023 23:47

Congrats on your diagnosis! It is genuinely life changing but not always in the way you think. If you need anything, advice or support, I'm happy to help.

Oh my gosh thank you!!! 💓This made me cry too. Lol I had no idea I'd feel so emotional being diagnosed. I am sad for the last 45 years, but also excited about my future career for the first time ever.

Macarena1980 · 07/09/2023 23:56

Yes! Just about everyone I know has self diagnosed themselves as Neurodiverse or ADHD lately… except the one friend I’ve always suspected truly is! It’s like they need a reason to explain all their problems or excuse any bad habits.

QuitChewingMyPlectrum · 07/09/2023 23:57

@Princessconsuelabananahammock9 love your handle by the way.
Don't be sad, be glad you survived it. Now is the fun bit... you have a whole lotta life to love yourself

3rdtimemomma · 07/09/2023 23:59

Radiodread · 07/09/2023 21:04

@3rdtimemomma gosh yes, it’s really so easy to get disability benefits, you just fill in a form and write ADHD. Said no-one who has ever applied for them, or advised people who have applied for them. Ever.

I wouldn't make the comment if I hadn't had any experience of it

sweetpeaorchestra · 08/09/2023 00:00

Sorry not RTFT but I’ve been thinking about this a lot. Growing up, my wider lot seemed a fairly NT family (albeit with a lot of mental health issues, some very severe).
Yet currently my niece is under assessment for ASD age 2, my cousin’s son in ADHD assessment process, as is my daughter (age 7). BIL got an an ADHD diagnosis last year.

Andrew Solomon wrote re ASD “..improved diagnoses can hardly be the full explanation for the escalation from a rate of 1 in 2,500 births in 1960 to 1 in 88 today.” I think that was written 10 years ago or so, and stands for ADHD too. It’s maybe higher now.
But that’s not denying the truth of it - everyone I know diagnosed or seeking diagnosis fits the ‘criteria’ and is finding life very challenging from it. No one would choose it!

I completely agree there’s an annoying bandwagon glib tiktok side to it, and sometimes feel like “aren’t you just describing the human condition?!” to social media crap re ADHD (then again now wondering if I have it)- but I also think there is genuinely something environmental causing an increase alongside our increased awareness.

Princessconsuelabananahammock9 · 08/09/2023 00:00

@AuDHD4Me Thank you again. I am feeling really really lucky. 🌻

QuitChewingMyPlectrum · 08/09/2023 00:02

Princessconsuelabananahammock9 · 08/09/2023 00:00

@AuDHD4Me Thank you again. I am feeling really really lucky. 🌻

🌟

lemonsaretheonlyfruit · 08/09/2023 00:02

I think the lines between ADHD and ASD in terms of diagnosis are very blurred. My DD (16) was diagnosed with ADHD 3 years ago privately. I was never really sure or knew if I trusted the diagnosis a) because it was done privately but also as others say .. it's a huge umbrella and very open to interpretation. I was ok leaving it at that and assumed that was the problem until the real problems started.. not going to school for a year (under a duvet for a school year due to autistic burnout and depression due to the pressure of life and school) , self half on her arms, legs and face, hospital admissions, the police being called by neighbours as she was so out of control and desperate to end her life ) .

Then she was diagnosed with ASD and the more I read and researched the more it made sense.

I would never comment on anyone posting on here unless it sounds like they are experiencing anything similar to this. The only reason I ever would, is because it was the worst 3 years of my (and her) life, and I would always want to offer support to anyone that sounded similar.

I understand how annoying it is for anyone who loses keys to suggest they are a little bit x , y .... but there are many of us who really understand what it's like to properly live with the awfulness of it. They are the people that really need the support.

MsRosley · 08/09/2023 00:03

To be honest, I suspect many of us genuinely have ADHD, caused by constant internet and social media use that rewires our brains and decimates our attention span. I even remember reading an article a decade or so ago that predicted exactly that.

3rdtimemomma · 08/09/2023 00:06

StripeyMow · 07/09/2023 21:59

Incredibly misinformed comment from 3rdtimemomma. Try years on waitlists, years of hospital visits, assessments by multiple agencies, panels and home visits before you get a diagnosis. Then and only then can you access money for all the additional expenses which come with looking after a disabled child. But you spread your Daily Mail nonsense.

Literally been through it, start to finish. 3 months!! One assessment, diagnosis and highest rate for a person I know factually and lived with 50 percent of the time didn't require it,
People know how to play the system. As a parent believe it or not and do not be ignorant play the system and know it well!!
How will you prove to anyone your child doesn't need through the night care with ADHD? Are they going to sit there over night and check??

People are too informed sometimes so much so know the right things to say / put down / fabricate/ exaggerate.

People as much as you think are honest and genuine , are not.

Ignorance to even suggest everyone is genuine.

Redlarge · 08/09/2023 00:11

MsRosley · 08/09/2023 00:03

To be honest, I suspect many of us genuinely have ADHD, caused by constant internet and social media use that rewires our brains and decimates our attention span. I even remember reading an article a decade or so ago that predicted exactly that.

What a load of shit this doesn't cause adhd.

Mmmpomello · 08/09/2023 00:15

BertieBotts · 07/09/2023 21:32

The thing is, if you look at the diagnostic criteria for ADHD, nearly anyone could be defined as having it if they want.

No, that's not actually true, it's a myth, or you've only looked at part of the criteria. If you run screeners for ADHD on the general population, around 5-8% of people score as likely to have ADHD. If you run those screeners on people with diagnosed ADHD, it's more like 80-90%. (I apologise I do not have accurate numbers because I have ironically lost the ADHD textbook I was planning to check them in).

I'll skip the hyperactive criteria for a moment because they are a mess in adults, they were ported straight from the children's one and they are difficult to interpret because of that, the inattentive ones were too, but it's less of an issue - these are the inattentive criteria (from the DSM) - you need six of these.

  • Often fails to give close attention to details or makes careless mistakes in schoolwork, at work, or with other activities.
  • Often has trouble holding attention on tasks or play activities.
  • Often does not seem to listen when spoken to directly.
  • Often does not follow through on instructions and fails to finish schoolwork, chores, or duties in the workplace (e.g., loses focus, side-tracked).
  • Often has trouble organizing tasks and activities.
  • Often avoids, dislikes, or is reluctant to do tasks that require mental effort over a long period of time (such as schoolwork or homework).
  • Often loses things necessary for tasks and activities (e.g. school materials, pencils, books, tools, wallets, keys, paperwork, eyeglasses, mobile telephones).
  • Is often easily distracted
  • Is often forgetful in daily activities.

The "often" is significant; most people can identify with many of these problems some of the time, but it is not the same frequency as somebody with ADHD. In a screening questionnaire for example you would be asked something like "Lose items necessary for tasks and activities: Never, Rarely, Sometimes, Often, Very Often." It is only the items which are scored "Often" or "Very Often" which are considered significant. Most people would score themselves "Rarely" or "Sometimes" for most items on the list.

In addition, there is a requirement that the symptoms cannot be better explained by another disorder (such as depression), that they have been persistent for over six months, that they have been present before the age of 12, (so it's not just burnout from work/modern life) that they affect functioning in multiple settings, and that they are causing impairment.

Causing impairment, again, is significant. Everybody loses things sometimes. Who can ever find a pen? But that isn't an impairment, it's a minor annoyance. If you're constantly losing things that are expensive, hard to replace, that you need daily, that are essential, and you can't keep track of them despite following all the usual tips of trying to keep it in the same place, naming it etc - that's impairment.

Likewise, nobody likes studying or doing housework, but if you have actually failed multiple courses and are on the verge of being kicked out by your landlord because your house is disgusting and you literally can't make yourself do these things even though you have motivation and reason to do them - that's impairment.

It's not very well worded but doctors who are actually trained in assessment will know the difference between the normal "Well yeah housework is boring and effort" and "I literally can't make myself do it, I feel so worthless and I have no idea why nothing works"

So no, not everyone can fit into the diagnostic criteria of ADHD. Yes there are some silly things on tiktok etc, but if you're taking tiktok as the entire gospel truth, rather than entertainment or maybe a suggestion to look into some decent sources, then you're an idiot. Likewise, because ADHD is a current buzzword there are plenty of predatory companies that will prey on people's fears/curiosity and play up the mildest, most relateable symptoms in order to sell you a supplement or a subscription to an app or some kind of course or coaching service. But that doesn't mean that actual doctors who are diagnosing it are using those criteria to diagnose.

The major issue I see is that this diagnostic criteria is not always used. It should be used. You should have to provide clear evidence that symptoms were present in childhood. Lots of things cause these 'symptoms', and it is very easy to 'cheat'.

@moanybird this is how I feel. I was diagnosed in my late twenties after years of mental health issues, failings at school and university despite being very bright, and many long standing symptoms. This includes some horrible things like skin picking and eating disorders. I have had two decades of work-related breakdowns because 'normal' working is impossible for me. I now receive PIP because I cannot do a lot of simple things. Getting it was increadibly hard. But this allows me to live a more achievable life - I cannot function as a human and put in 8 hours of work a day and be OK. Life is a constant struggle to just exist and I am exhausted from it. Completely and utterly exhausted.

I am absolutely all for undiagnosed people getting help. I do not want to be a gatekeeper. But anyone (and I know a couple of people who have done this) could pay a company to get a 'diagnosis' in 45 minutes, over the phone. Adverts for this come up all the time, it costs about £500 and you'll get a prescription the same day. That is NOT right. The people I refer to have had no issues before lockdown and then 'realised' they had ADHD. They paid for a private prescription and are now medicated. Again this was a new onset thing for them. I am sorry but I do not think they have ADHD. It is SO MUCH MORE than finding it hard to concentrate. Working from home is boring and it's very easy to be distracted, but that is a product of the environment and not an underlying lifelong medical condition. I think that if your mental state changes as a result of the environment then that environment should be looked at as the primary cause. @Gahhhhereheisagain is right in that what we are expected to juggle in life is often unrealistic and this is the reason for burnout - which has a lot of overlap with ADHD symptoms.

I shouldn't have clicked on this post... I get very triggered by all the ADHD SM reels/posts (I am obviously a target) that show ADHD as this funny silly thing. 'ohh you, you're soooo ADHD!' or 'oops, I forgot, it must be ADHD!' I don't find forgetting things funny. Yesterday I had to go BACK to the shop THREE TIMES to complete my shopping list. I wanted to rip my hair out in frustration. The task I needed to get done didn't get done and I just felt so awful. But I simply cannot help it. I don't know I'm doing it, I can't 'learn' not to do it, it's just how my brain functions.

One of the worst things is getting people to understand because they think that just because they want you to behave a certain way (like not get massively upset by something) and they can control that, then you should be able to. Apparently it's more reasonable to ask me to change my brain functioning than be understanding and accepting of my flaws.

Sorry, rant over

IHateLegDay · 08/09/2023 00:30

I have ADHD and it does frustrate me that half the posts on MN these days say "I have ADHD (self diagnosed)" as that means absolutely nothing.
It was very obvious to the people around me that I had ADHD when I was a young child and I've struggled with it my entire life. I'm now in my 30s.

I don't know if this is the new popular thing to have or a large chunk of people actually do have it but I feel that the condition is taken a lot less seriously now.

HRTQueen · 08/09/2023 00:30

I think there is a few things going on. At the moment it’s a bit of a buzz diagnosis as is ASD but also there is a growing understanding of these diagnosis’s

my ds has recently been diagnosed m). When it was gently suggested by the SEN department at his school (he was already getting support) I was surprised. He was assessed due to struggling at school and found to have slow processing skills a few years ago. In the last year his behaviour particularly at school has changed and I have been quite surprised (and disappointed) by the feed back. Once what I would have put down as being a forgetful teenager has become more frustrating to manage and more so for him.

I work in mental health many who I work with have ADHD (also another diagnosis) I was shocked I couldn’t see it but now things absolutely do add up

my poor boy has struggled for years and had learnt to mask his struggles he just can’t anymore. He is struggling to accept the diagnosis himself (even though a few of his friends have ADHD) he refers to himself as being stupid but will make a joke out of it but I know it hurts he just often can’t grasp the information like others can and he over thinks it’s exhausting for him and does cause anxiety

please don’t think everyone wants this it’s not popping a pill and everything is fine or excusing bad behaviour (ds has always been an easy going easy to parent child) he would love to be as he sees it as smart as his friends. He can certainly hyper focus but it’s never on what he is learning at school

LivStanshall · 08/09/2023 01:03

Namddf · 07/09/2023 22:23

Why has it been life changing? I genuinely don’t understand how attaching a label can do this.

You can’t understand how someone who said they exhausted themselves trying to be ‘normal’ kind find a diagnosis life changing? How about the relief of understanding who you are and why you are the way your are for starters? Never mind the support and help to deal with that.

HeatherMoores · 08/09/2023 01:20

lking12 · 07/09/2023 20:18

Sometimes I’m not sure where a personality ends and a disorder starts….

Well that’s why ASD is a spectrum - we’re all somewhere between 2 endpoints whether we ‘have it’ or not.
I have ADHD (GP/NHS) and I really believe that’s a spectrum as well.

All these things (ND) range from personality traits to severe disorder. What matters is how severely it’s impacting on your functioning and what the cost/ benefit profile is of any treatment.

I think I read somewhere that there are some researchers now who believe that up to one fifth of the population has some form of ADHD albeit some of it mild so yes the line between strong personality trait, and disorder is getting blurred.

everythingthelighttouches · 08/09/2023 01:24

Radiodread · 07/09/2023 20:36

There is also a wee smattering of drawbridge syndrome… “oh, now, we got a diagnosis and it took 5 decades and involved us having to sell everything we owned plus a couple of kidneys, and all these Johnny come latelies think they can waltz in here with their private disgnoses”.

I totally accept that it is very hard to get a state funded, timely diagnosis, but that isn’t a reason to cast random aspersions on people who have either self-diagnosed after a lifetime of challenges or somehow found the money for a private appointment.

you should be much crosser than you are about the lack of access to state-funded help, rather than targeting those who’ve tried to sort things out for themselves.

I think there is a genuine issue with over diagnosis in the private sector though.

see this BBC recent investigation by Panorama
https://www.bbc.co.uk/news/health-65534448.amp

Hand holding a bottle of pills

Private ADHD clinics exposed by BBC undercover probe - BBC News

An undercover journalist for Panorama is diagnosed and given drugs without proper checks.

https://www.bbc.co.uk/news/health-65534448.amp

Ohthatsabitshit · 08/09/2023 01:28

@HeatherMoores thats really not what they mean by spectrum. It’s not a sliding scale from normal to severely impaired.

if you think about asd it’s a triad of impairments, and they interact with each other and sometimes the sim of those impairments is bigger than the parts (and sometimes smaller). You could probably grasp it better by thinking of three different disabilities eg blind, deaf, mute. Each devastating on its own but combined create whole new challenges, a spectrum of difficulties.

Willyoujustbequiet · 08/09/2023 01:31

Adhdsucks · 07/09/2023 23:24

@Willyoujustbequiet I suppose it depends on the person looking. When I think of people like my parents they would never in a million years be conversing with someone and thinking ‘they’re neurodiverse/have ADHD’. It just wouldn’t enter their heads. Maybe they’d just think the person was a bit odd, if anything at all. Even me, who just fucked up over and over again from a young age, they just weren’t looking for it. Someone from my generation would probably be more aware of it.

Yes that's true. There's definitely a generational difference.

Towdalinenow · 08/09/2023 02:08

This is causing a BIG problem for the NHS

Even now the reputable private providers who don’t have the staff to handle demand.

Waiting lists are reportedly many many years long now.

Students from overseas need re assessment to access medicine prescriptions here.

Huge problem that only the government can get to grips with, caused by explosion of content on social media

IdleAnimations · 08/09/2023 02:32

Towdalinenow · 08/09/2023 02:08

This is causing a BIG problem for the NHS

Even now the reputable private providers who don’t have the staff to handle demand.

Waiting lists are reportedly many many years long now.

Students from overseas need re assessment to access medicine prescriptions here.

Huge problem that only the government can get to grips with, caused by explosion of content on social media

Yes and Tik Tok is also fuelling a lot of copycat mental health actors. Look at the sudden spike in ADHD, Autism and strangely - DID/multiple personality disorder on there. There was also a Tourette’s surge which was thought to be social media fuelled:

https://www.spectator.co.uk/article/tiktok-is-giving-our-children-tourettes/

Social contagion is a real thing and I’m sorry to others but; it’s why I don’t take self diagnosis that seriously. Yes it’s tough getting on the waiting list but we shouldn’t play fast and loose with mental health diagnoses. I think to appropriate into a disorder is the worst kind of ableism and devalues what it’s like to live with it. I find it exceptionally insulting as someone with a long standing childhood diagnosis (back when it wasn’t a good thing and you had to keep it secret). Why? Because often self diagnosis relies on the worst kind of stereotypes.

Autism and ADHD have a huge range of challenges/behaviours and to possibly misdiagnose yourself when it could be trauma based, BPD, OCD etc is playing a dangerous game with your own health. We have psychiatrists in this world for a reason.

TikTok is giving our children Tourette’s

Shortly after the first Covid lockdown ended, doctors began to notice something so strange that at first they struggled to explain it. There appeared to be a sudden rise in the number of children being referred with Tourette’s syndrome. Tourette’s is a...

https://www.spectator.co.uk/article/tiktok-is-giving-our-children-tourettes/

IdleAnimations · 08/09/2023 02:44

IHateLegDay · 08/09/2023 00:30

I have ADHD and it does frustrate me that half the posts on MN these days say "I have ADHD (self diagnosed)" as that means absolutely nothing.
It was very obvious to the people around me that I had ADHD when I was a young child and I've struggled with it my entire life. I'm now in my 30s.

I don't know if this is the new popular thing to have or a large chunk of people actually do have it but I feel that the condition is taken a lot less seriously now.

I feel exactly the same as you if you see my post above. I believe you and I are a similar age so interesting you feel the same!

I’ve had self diagnosed people making a mockery at work of the reasonable adjustments process, using self diagnosis to obtain placement on ND mentoring schemes and writing blogs about being ND that are steeped in the worst kind of stereotypes with none of the brutal reality most of us feel.

I find it exceptionally draining and now don’t bother with the support group in the workplace as it’s full of self diagnosed people asking how to ‘get through the assessment’. Not reassurance - actual scripts on what to say. I’m not a gatekeeper, I just believe that a diagnosis is crucially important and if you’re asking for a script - I will judge you as a faker who isn’t interested in genuine health but more interested in the label. I stand by that I find it a kind of ableism and appropriation to talk over diagnosed ND people.

Ahwhatthehell · 08/09/2023 02:52

AllOfThemWitches · 07/09/2023 21:17

This is the kind of thing that puts me off looking into whether I have it. From being a kid I've been easily overwhelmed, had meltdowns, head banged, self harmed, OCD, struggled with deadlines (fucked my exams up despite being somewhat bright), struggled with punctuality, alcohol, money, reckless behaviour and the list goes on. When i had a ND kid I started to wonder but I feel like an attention seeker for even thinking it.

That sounds awfully hard. Please don’t be put off. Make an appointment, even if a diagnosis just gives you a bit more of an insight into yourself.

ChillysWaterBottle · 08/09/2023 03:23

everythingthelighttouches · 08/09/2023 01:24

I think there is a genuine issue with over diagnosis in the private sector though.

see this BBC recent investigation by Panorama
https://www.bbc.co.uk/news/health-65534448.amp

This is gutter journalism, not genuine investigative reporting though - eg in this article the NHS Dr was told the assessment was for an article so knew it wasn't a genuine attempt to get help whereas the private staff weren't.

Just a reminder that the BBC was forced to apologise for its inaccurate reporting on this issue by its own Trust:

https://www.theguardian.com/media/2010/feb/24/panorama-bbc-trust-ruling

BBC Trust condemns 'inaccurate' Panorama ADHD episode

Trust rules report into treatment of children with attention deficit hyperactivity disorder failed to meet standards of accuracy. By Jason Deans

https://www.theguardian.com/media/2010/feb/24/panorama-bbc-trust-ruling

everythingthelighttouches · 08/09/2023 04:19

ChillysWaterBottle · 08/09/2023 03:23

This is gutter journalism, not genuine investigative reporting though - eg in this article the NHS Dr was told the assessment was for an article so knew it wasn't a genuine attempt to get help whereas the private staff weren't.

Just a reminder that the BBC was forced to apologise for its inaccurate reporting on this issue by its own Trust:

https://www.theguardian.com/media/2010/feb/24/panorama-bbc-trust-ruling

The article you’ve posted from the Guardian is from 2010 and is about a completely different program.

I have no idea why you would try to discredit the BBC article, the NHS consultant and investigation (the one published in May this year) by describing it as “gutter journalism”.

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