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Work to fit around caring for disabled (adult) dc?

28 replies

Moonlightfrog · 03/04/2026 13:13

Please, no judgemental comments, I hate the stigma around being on benefits and I seriously don’t want to be claiming them but my situation makes it very difficult. I am currently carer for dd2 (she’s 20 with severe autism and learning difficulties), I also have her sister living at home who is also autistic but not as severely. I haven’t worked for a while because I can’t hold down a job when I have to care for dd2, attend hospital/college placement appointments and meetings. During the school holidays I have no respite due to shortage of carers and holiday placements as well as no funding. Dd2 is now claiming UC in her own name and a big chunk of that will be taken for her to attend day services come June when she leaves education. I am struggling to survive in just my carers allowance (UC covers my rent and not much else), fighting to get dd2 into day service for 5 days but it’s likely it will only be 2 days. I am in my own, no partner and DC’s father no help.

I desperately need some kind of work even if it’s just one day a week but I have been out of work for some time and obviously I need work to be flexible around dd. Dd needs constant supervision when she’s at home but I could possibly work from home whilst she’s here. I don’t have any computing qualifications and I am awful on the phone (but maybe I can overcome this). I have ADHD and Autism myself but I don’t see this as a huge issue other than my huge lack of confidence when applying for work.

Is there anything I can do from home that would earn me £100-£200 per week and still able me to care for dd2? I have a laptop? I pick up things easily but am mildly dyslexic 😬.

Is there any help out there with looking for work after being out of work for a while?

OP posts:
Moonlightfrog · 04/04/2026 22:18

TheBlueKoala · 04/04/2026 20:27

@Moonlightfrog Look at this OP- very helpful poster- thank you for posting this (for the OP) hopefully it could help her.
It's hard when you want to work but you can't. I'm "lucky" because dh earns enough for me not to work. But DS1 is now 16 so I'm starting to yearn for financial independence and a context that you get from work. So I understand the OP even though I'm in a better financial situation thanks to dh.

Can you apply for PIL for yourself OP?

I have filled in the online form to see if we can get NHS CHC funding. I will talk too the social worker after Easter.

I am desperate to work, I constantly feel judged, mainly by family for not working and claiming benefits, I have family members that get angry about us having a mobility car. I also just want to have some kind of normal life. I have lots of things to keep me busy when I am not caring for dd. Some weeks I have lots of free time and then other weeks I struggle to find time to take a bath. During school holidays I have to care for dd 24/7 as we currently have no respite in place. Hopefully once she’s in a day placement this will cover part of the holidays too.

OP posts:
Geneticsbunny · 05/04/2026 09:10

He is in education and already gets uc. I assume the financial monitoring thing is for when thwy get to 18?

Geneticsbunny · 05/04/2026 09:12

Dont feel judged. It is virtually impossible to work when you have a severely disabled person to look after. I desperately want to work but am really struggling to find anything.

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