I am starting this as a new thread rather than adding it to the existing thread about assisted dying, as the issue of the availability of palliative care is rarely discussed in its own right.
... Throughout the debate on the Terminally Ill Adults (Assisted Dying) Bill there has been broad agreement that palliative and end of life care services in England are inadequate. These services are under significant pressure, with providers struggling to fund and commission the right care, and individuals entering a ‘postcode lottery’ of care in their most vulnerable moments at the end of life. These issues are further compounded by a workforce declining in numbers, a lack of access to and use of effective data, a poorly equipped social care system, and an unsustainable funding model.
The Government’s plan for improving services hinges on the introduction of a Modern Service Framework (MSF). Similar structures setting out what services should look like already exist. To ensure the MSF succeeds where other structures have not, this report—among other recommendations—recommends that:
- the Government sets out clear accountability arrangements, including what steps the Department will take where ICBs do not meet the required expectations of the MSF;
- the Government includes specific standards for the provision of children and young people’s palliative care services, and for the transition between child and adult services in the MSF;
- the MSF includes specific guidelines and requirements for ICBs to enable access to 24/7 Palliative and End of Life Care (PEoLC) services, including access to medication, and in-person care where necessary;
- the Government should set out how it will increase the capacity of the specialist palliative and end of life care workforce, including a specific target for the staffing of children and young people’s palliative care;
- the Government reconsiders its decision to remove local authority representation on ICBs, to ensure social care is appropriately commissioned to deliver end of life care;
- the Department sets out how it will monitor ICBs’ current delivery of bereavement services, and what steps will be taken with ICBs that do not deliver an acceptable level of service; and
- the Government introduces a more sustainable and predictable model of funding for hospices, financing their running as well as investment costs, which reflects the increasingly central role they will play in delivering end of life care.
This is the introduction to full report at https://publications.parliament.uk/pa/cm5901/cmselect/cmhealth/1763/report.html
Their press release focuses on the needs of children
which I admit I haven't really thought about or considered.
Children’s end of life services among areas that desperately need addressing in reforms to palliative care, says Health Committee
https://committees.parliament.uk/committee/81/health-and-social-care-committee/news/212824/childrens-end-of-life-services-among-areas-that-desperately-need-addressing-in-reforms-to-palliative-care-says-health-committee/