Endometriosis UK

[TheGreatWave]

I would like to congratulate Endometriosis UK, for managing to not mention the word girl (appropriate talking about schools) once.

m.facebook.com/story.php?story_fbid=3357212384338094&id=411335395592489

I'm not on Facebook. What does it say?

Scottish Labour Health and Social Care spokesperson Monica Lennon MSP, who also convenes the Cross-Party Group on Women’s Health, has called on the Scottish Government to include a commitment to menstrual wellbeing education in Scotland’s schools in the upcoming Programme for Government.

Menstrual wellbeing is already a mandatory part of the curriculum in England, but not in Scotland.

Endometriosis UK said: "“For too long, menstrual health conditions have been silenced and it’s vital the Scottish Government understands the impact conditions like endometriosis and others can have on a person’s education and makes menstrual wellbeing education a reality for all pupils.

“The Scottish Government has a key opportunity in its Programme for Government to ensure future generations are supported and given the education they need to make informed decisions about their health. An understanding of what is and isn’t normal when it comes to the menstrual cycle is the first step to empowering people from a young age to seek help if it’s needed. Without learning about the menstrual cycle at school in a safe and controlled environment, menstrual conditions will continue to go unrecognised, marginalised and misunderstood.

“It cannot be assumed that everyone is comfortable talking about menstrual health in the home, and those from minority communities may find it particularly difficult to discuss issues around menstruation at home due to additional cultural barriers that many will face, and it’s therefore key that menstrual wellbeing education is delivered at school via reliable, accurate information about menstrual wellbeing.
“The Scottish Government has already taken huge strides in supporting the Member’s Bill by Monica Lennon MSP to tackle period poverty and raising awareness of other menstrual health conditions such as endometriosis. We hope the Government now recognises the huge importance of compulsory menstrual wellbeing in schools and continues its commitment in supporting young people reach their full potential”.

Fingers crossed the Scottish Government includes menstrual wellbeing in the new programme for Government that will be announced in September!

Menstrual wellbeing will be included in schools for the first time in England from 2020 - and we are also campaigning for this in Wales and Northern Ireland.

See this thread also - the erasing of women is insidious.

www.mumsnet.com/Talk/womens_rights/4007339-More-inclusive-female-health?

Endometriosis is a uterine condition I thought?

While symptoms include really nasty periods, it's not actually a menstrual condition...

I'm no expert but isn't that blurb plain inaccurate?

'An understanding of what is and isn’t normal when it comes to the menstrual cycle is the first step to empowering people from a young age to seek help if it’s needed'

How will they achieve this without telling children which sex should expect to menstruate???

That page can't be opened. Looks like they've taken it down. Were they getting any grief in the comments?

Just gone to their page on my fb app, and it's there. How odd. Putting the link here so I can click it.https://www.facebook.com/411335395592489/posts/3357212384338094/

Maybe the Scottish gov. had sight of it before it went up. They seem very keen on erasing words like woman or girl

Says the inventor of Newspeak: 'Thoughtcrime will be literally impossible, because there will be no words in which to express it'.

And unquestionably one day Syme will be vapourized, because he's too bloody clever by half ...

Hi. It’s my first time ever posting online for help but I’m desperate. Doctors have diagnosed me with BPD and prescribed Haloperidol to help “calm me down”. I’m completely against this diagnosis but no professionals seem to believe me when I try to explain I feel it’s hormonal. I’m not entirely sure what that is I just know that for 2-3 weeks I’m not me. I spend the first 10 days on self destruct mode where everything and everyone irritates the life out of me. I pick faults with everything and completely lose my shit without much rational thought. I’m not violent at towards anyone but I do use shouting as my weapon. I become paranoid as hell and my Husband, in my mind has an affair for 2 weeks every month. I’ve bordered on full psycho and hiring a private investigator to catch him. Just to prove that I’m right. Crazy right? Then I hit the rock bottom and feel sad when I say sad I mean really really sad and I just don’t want to be here anymore. For between 7 & 10 days a month I feel like myself. I’m actually quite a funny person, very witty and sarcastic but in such a fun loving way and my family love me like this and I love myself like this and it’s the only time I feel confident. I’ve described to doctors that I feel like my emotions are greatly exadurated. When I’m sad it’s like my world has collapsed and when I’m angry I’m raging angry. Whilst I’m going through these phases I’m in complete agony the whole time. From the waist down I’m broken completely. The pain in my lower back cripples me and I struggle to walk and the craps in my legs are horrendous. I feel like I’ve cold a cold too. So I’ll cough and sneeze and have a slightly blocked nose. It’s not great especially trying to tell people I’ve not got the VID19. So much has happened and I can pin point it to the few days before my period starts. I can go into more detail if asked. So, this week I’ve been to physio who told me to have a word with my gp about endometriosis. Never even heard of it and I didn’t look into it. Then yesterday for some reason my Nana told me she’d had it when younger as did my mam but I’d not told her about myself. I dunno if it’s her way of telling me to look into that. My doctor is very unwilling to consider Anything but BPD so what do I do? Thanks for any help at all kvk

Hi @KvK28 bumping for you. I don’t have the expertise to answer.

There is a women’s health section, perhaps copy your post and start a new thread there?
Meanwhile for you.

@KvK28 that sounds awfulb I really hope you can get help soon. As well as endo it's also worth looking into PMDD. Good luck

www.pms.org.uk/about-pms/definitions-pms-pmdd/

Just bumping for you, I have heard endo is dreadful and diagnosis process too long due to lack of knowledge

I do know that you can (uk at least) ask for a second doctor if you think the first is dismissive

@NiceGerbil

Endometriosis is a uterine condition I thought?

While symptoms include really nasty periods, it's not actually a menstrual condition...

I'm no expert but isn't that blurb plain inaccurate?

NHS on endometriosis:

Endometriosis is a condition where tissue similar to the lining of the womb starts to grow in other places, such as the ovaries and fallopian tubes.

Endometriosis can affect women of any age.

www.nhs.uk/conditions/endometriosis/

If you think it's hormonal cycling have you considered not having periods?

You can take some contraceptive pills continuously. I did. My daughter does. I only had periods when I was trying to conceive.

I’m not sure what is going on I’ve never even heard of endometriosis until the Physio mentioned it. I don’t like to self diagnose I’d rather just throw out there what’s happening and someone tell me what is going on or why I feel like this but the link each month doesn’t seem to me like BDP and no tablets have ever worked. I’m from being a teenager I had very heavy and painful periods. I’d have to change clothes several times a day but that eased off when I got the coil fitted. Although I’m still bleeding 18 month after having it.not as heavy but for sometimes 11 days I’ll bleed. In 2006/7 i found out I had cysts on my ovaries. I was just to get something done but found out I was pregnant and nothing had really been mentioned since. I suffered with hyperemesis with all 3 of my boys and spd with the last 3. (4 in total from 2007 - 2019) I thii is no I’ve come here to ask if this sounds anything like endometriosis before I go to the doctor and they dismiss me. To be honest I’ve questioned my own sanity the past few weeks wondering if I am actually crazy and I think I’m not because I actually am. Does that make sense? I’m 35 now and I just want to feel myself for longer than a week.

So sorry you are having to deal with this.
Probably a good idea to copy your post to this board
www.mumsnet.com/Talk/womens_health

Hi KvK28 sadly it isn’t just 100% “crazy” or 100% endo. Women can have menstrual problems, other problems in life and underlying risk factors for poor mental health.

We know two thirds of Britons have poor mental health at some point in their lives. And the women can have menstrual problems too. I do think the latter impacts the severity of the former.

My family member had a contraceptive implant and the change over was always a difficult time for her with her mental health.

So lots of women believe that hormone changes and the m/h condition do inter react, but there is a low level of scientific knowledge and your GP might need to try a few things for you before they find something that helps. Good luck.

Have you heard of Premenstrual Dysphoric Disorder? It's like PMS on steroids. Have a look at this page.

(Unfortunately it's yet another description of a condition that only women and girls can suffer from, but you won't find the words woman/women/girl/female anywhere.)

KvK28 - Following the suggestion of PMDD

It might be helpful to look at this and see if it's worth discussing this diagnostic pathway with a GP:

cks.nice.org.uk/topics/premenstrual-syndrome/diagnosis/diagnosis/

What a lot of politicised obfustication that disrespects the reality of femalehood.

I'm going to end up as an elderly Father Jack figure, sitting in a corner shouting shocking unacceptable obscenities like "Women! Girls!"

Electricians!

It does sound like it might be endometriosis. People who haven't had it understandably underestimate how painful it can be. When you're in so much pain, for so much time, it can often make you feel depressed and angry.

Can you ask at your GP surgery if you can have an appointment with someone who is experienced in diagnosing endometriosis? One in ten of us has it, so hopefully there will be a GP who either has it themselves or has a family member who suffers with it.

I’m so fucked off by this (Endometriosis UK) post. I have had this disease for 20+ years now. It’s hard enough trying to get the help you need without this bollocks now being dragged into the mix.

It won’t be TRA’s begging GP’s for better help when you’re in so much pain you can’t move for fear of blacking out or vomiting.

It won’t be TRA’s paying thousands for private care because if you had to stick NHS waiting times, you’d likely just end all it because the pain is too much.

It won’t be TRA’s praying their employers don’t give them a disciplinary for another sick day.

It won’t be TRA’s cancelling another social engagement because they’re miserable as fuck.

But hey. As long as we don’t mention teh WomEnz on a Facebook post, everyone’s winning eh?

Thank you all for the replies. Since a few comments mention PMDD I’ve had a look into this and it couldn’t describe how and what I feel any better. I’ve made an appointment with the GP like the physio suggested for endometriosis but I don’t feel myself that’s the cause but I think that’s because of the lack of front pain and pain during sex etc. I don’t know but hopefully this appointment can get something rolling.

As I’ve said this is my first ever post and I’m not fully understanding why some people are saying not to use girl or woman. Could someone explain why to me please.

Thank you all so kindly for your words