I came to see if there was a thread on this (am FWR regular but under different name as don't want to be IDed). I have skin in this game as I also have Sjogren's (thankfully atm without the same complications as the article, but other issues and there is no cure).
I have already taken up the sex/gender issue with my local trust by writing, and making my views very clear on that stupid fucking questionnaire, stickers, leaflets etc. Obviously I have been ignored or dismissed (interestingly not by some HCPs including consultants, who I have spoken to face to face who are GC)
But on this particular issue I absolutely will demand clear written answers and explanations as it seems so clear cut and indefensible, I can't see how they can justify themselves, or ignore someone who is so directly affected by this (she said naively)
Clearly I want to arm myself with the best advice from you lot
so if anyone has any suggestions re wording/specific questions to ask I would be really grateful (happy to start different thread if people think best?)
(Also, I plan to copy in the HCPs directly involved with the care of my Sjogrens - opthamology/neuro/rheumatology, under three different hospitals!)
This is a horrible disease and I feel for Jo Daniels in the article. Hopefully this will raise awareness not just of the disease but of the risks to women's health by denying biological reality.