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Feminism: Sex and gender discussions

Bleeding disorders in women

13 replies

handmademitlove · 22/04/2019 16:46

An Interesting article from Canada discussing the way women with heavy periods may have bleeding disorders that have been ignored.

OP posts:
LassOfFyvie · 22/04/2019 20:27

That's very interesting. I did the test on the basis of being 45 because that was the age my periods were heaviest and it's academic now.

Many of my answers were no but it still generated this result

Your bleeding score is abnormal (8). The normal range for your age and sex is(0-5). You could have a bleeding disorder which you may want to discuss with your physician

StopThePlanet · 22/04/2019 21:21

LassOfFyvie

I got the exact same result as you did (8) with the same text underneath. I'm 42, female, haven't had children, have had surgery, have endometriosis periods (so fun!!), also clumsy/distracted so I run into things a lot and cut/burn myself when cooking, but was able to answer no to almost all of the questions and 'did not require a doctor' to the remaining.

Lass, this next part is directed at everybody - don't want you to think I am saying anything about you personally. Smile

These tests could be very detrimentally influential for people that tend to lean towards being hypochondriacs. I'm a walk it off type (thanks Mom, for real!) - some of my friends not so much. If you succumb to the humiliating preventative medicine routines (annuals) - mammograms anybody? Putting your boobs in a device made to squeeze the life out of them is almost as fun as having metal objects shoved into your vagina to scrape your cervix, I mean this is what we look forward to all year, amirite ladies? But seriously if you have access to preventive care use it - it could save your life (or help you gain/maintain quality for most).

If nothing else hopefully this test like its peers will get people to access care and get involved in their own healthcare (if they have the benefit of access of course, I wish everyone did).

BirdieInTheHand · 22/04/2019 21:35

This is really interesting.

I got a score of 12. I had endometrial ablation for heavy periods, so not a huge concern anymore but it's interesting that despite having a PPH and two haemorrhages following routine surgery no dr had ever suggested this might be abnormal.

Jasging · 22/04/2019 21:42

My daughter has a bleeding disorder, they are often undiagnosed especially in women and most doctors are very uneducated on the matter. Not really sure about being open to abuse by hypochondriacs, to become officially registered with a bleeding disorder is subject to many tests and you then have to be on a register for your own protection should you ever be in hospital, in an accident etc. Also being registered makes it harder for life insurance etc.

LassOfFyvie · 22/04/2019 21:44

These tests could be very detrimentally influential for people that tend to lean towards being hypochondriacs. I'm a walk it off type (thanks Mom, for real!)

Yes, I thought of that and like you I'm a bit "stuff and nonsense" about being ill.

One interesting question was about bruising- I used to have lots of bruises but I never remember banging into anything to cause. Although that has stopped since menopause.

DancelikeEmmaGoldman · 22/04/2019 21:48

My sister had a bleeding disorder, she was was losing so much blood she was getting faint. Her (make) doctor told her it was “just a heavy period” and nothing to worry about. She ended up in hospital.

JugzyMalone · 22/04/2019 22:17

I scored 13 - had PPH and a couple of other haemorrhages, plus horrendous periods, but I don't think I have a bleeding disorder I'm just unlucky.

BobTheDuvet · 22/04/2019 22:21

This reply has been deleted

Message withdrawn at poster's request.

ProserpinaPontypridd · 22/04/2019 22:26

This reply has been withdrawn

Message from MNHQ: This post has been withdrawn

StopThePlanet · 22/04/2019 22:36

Not really sure about being open to abuse by hypochondriacs, to become officially registered with a bleeding disorder is subject to many tests and you then have to be on a register for your own protection should you ever be in hospital, in an accident etc.

Oh my goodness I didn't mean actual hypochondriacs that will go through the whole process - I mean people that lean towards it. As in if they have a stomach cramps for two days they think they might have stomach cancer (I have encountered a lot of people like that, constant worry seems to be a comfort), whereas I'm like 'why cancer as a first response I mean, how long has it been since you pooped?'. The individuals I am referring to just want something to obsess over and to exclaim to those around them that they are suffering and are victims of something. Some of these people seem to appropriate other people's grief and experiences as well.

And in no way shape or form was I looking to minimalize bleeding disorders or anything of the like my sincerest of apologies if my post came off that way.

FeministCat · 23/04/2019 02:25

I received an 8 but not to any surprise. I bruise very easily, used to get frequent nose bleeds (going to hospital at least a handful of time), bleed easily/profusely, and have heavy periods. Have been anemic a few times and now take iron daily.

StopThePlanet · 23/04/2019 06:22

FeministCat

I received an 8 but not to any surprise. I bruise very easily, used to get frequent nose bleeds (going to hospital at least a handful of time), bleed easily/profusely, and have heavy periods. Have been anemic a few times and now take iron daily.

You illustrated my point perfectly! The 8 was a surprise to me. I got nosebleeds as a kid a lot and get them occasionally now (allergy related, no big deal). I don't bleed particularly easily and I don't bleed profusely - e.g. I apparently cut my palm yesterday (two 1" parallel cuts not requiring stiches due to depth and angle of cuts) - didn't notice the cuts until brushing my teeth after dinner. My periods are insane (endometriosis) - lots of pain, blood, etc. I eat copious amounts of dark greens, seafood, nuts, and seeds which helps with blood-loss related fatigue.

We both answered according to our experiences... I have a high tolerance for pain and low tolerance for self-pity - what about you, thinking you are similar?

We have notably different experiences in regards to bleeding (short of menses). I do not have a blood disorder (many tests pre-op to ensure I wouldn't bleed out/bleed into my brain/drown).

This is why these self-report tests concern me... receiving the same 'high' score when it appears that our answers differed greatly in terms of severity makes me take pause about tabulation and degrees of separation between the scoring options.

butteryellow · 23/04/2019 10:32

I got a 2 - although I have heavy periods since having kids (and they've always lasted longer than 7 days), I was pretty sure I didn't have a blood disorder. I answered honestly (eg yes I've bled from cuts/over-zealous flossing/sometimes have small bruises).

I get what you're saying about these self-report tests (and the 'walk it off' mentality I share with you), but then if we're currently being fobbed off, perhaps a few more women asking their doctors about it can be a good thing.

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