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Feminism: Sex and gender discussions

Women’s Health: please share stories of interactions with NHS Dr’s

61 replies

Pennydrew142 · 11/12/2018 08:04

I strongly believe the appalling way women’s health concerns are dealt with are down to ingrained sexism within the medical profession. I wanted to start a thread which shared women’s stories of trying to seek help and the way we are spoken to and treated. I’ll start.

I was an extremely fit and healthy woman in my 30’s. I’d had some issues since having children. After dealing with declining health for a year, extreme fatigue, sudden & dramatic weight gain despite a lot of exercise, pain in my muscles and bones, extreme coldness, breathlessness, painful ovulation with a lump on my right hip... and much more, I went to my doctors. He barely listened before declaring I had ‘chronic fatigue’. I told him this seemed to happen after I went on a particular contraceptive pill. He ordered a CBC but told me to ‘reduce my expectations of life’ and accept I was aging. At 39. I spent all my savings going private ( at this point I was bedridden ) and as it turned out, I had an endocrine collapse due to undiagnosed thyroid problems, likely endometriosis ( still haven’t been referred by NHS many years later ) and my endocrinologist believed it was caused by the pill I was on ( Yasmine ) and had come off ( he’d seen it a lot ). I barely made any hormones at all- he was surprised I could do anything, shower myself etc I had to do a lot of work but I did get better- now peri menopausal which complicates things! Definitely not going to my doctors about that!

Oh I forgot. They tried to put me on anti depressants. I got a copy of my records ( at a cost of £20 ) and they recorded nothing about my mood or mental health. I have since learnt that a lot of poorly managed thyroid conditions end up being treated with anti depressants.

Please share your stories. Chronic women’s conditions are complicated and don’t get a lot of research or funding. We need to talk about this and what we can do. I’m sick of suffering while certain other groups get a lot of support.

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Pennydrew142 · 11/12/2018 13:27

'I don't want to be laughed at' is my main reason for avoiding seeing the doctor (when sometimes I probably should).

I am the same now. Unfortunately I even have panic attacks about going.

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Pennydrew142 · 11/12/2018 13:29

Badgerthebodger

Thank you for sharing. This dismissive attitude is obviously not uncommon. It seems they all have something in common: women should expect pain and discomfort, bleeding and a poor quality of life. What a terrible attitude they have.

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Forgotthebins · 11/12/2018 13:32

Sex has been painful off and on for most of my life. I've tried telling various nurses and they look a bit sad but don't suggest anything. I've never felt able to go to a GP with it as it's not an illness / guilt that I'm taking time away from patients who need them more. I've looked up various exercises and stuff off the web and have considered private care.

Forgotthebins · 11/12/2018 13:33

Oh, and one helpful nurse told me during a smear test that I have a "low pain threshold". A few months after a 20 hour labour.

Pennydrew142 · 11/12/2018 13:34

Neurotrash

The thing to remember is, we don’t actually know what all the thyroid hormones do. We have 6, T1-T6. We know that some women will respond to T4 only, in terms of reducing symptoms and getting labs in normal, but not necessarily optimal, range. But we also know an estimated 25% of hypothyroid women do not respond to T4-only and sometimes do not respond to the combo inc T3. I have yet to see anything showing NDT to be unsafe. Therefore, if they’re so sure it is not and they won’t prescribe it, I think they owe it to women to provide evidence of why they insist on certain medication and rule out the oldest thyroid medication around. I also don’t like the close links between the doctor, whose name I forget, who advises British thyroid uk & the company that makes the main synthetics used.

At the end of the day, they should be listening to women and responding to those concerns. I haven’t caught up with the Scottish petition on this same thing yet.

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Pennydrew142 · 11/12/2018 13:36

Forgotthebins

Well that is terrible. Nobody has helped you & this is definitely important. My friend had that issue and it was endometriosis. Are you able to go private? This shouldn’t be painful for you and I think you deserve help and respect to resolve it.

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Forgotthebins · 11/12/2018 13:59

Pennydrew yes, I'm considering that. Thanks for the tip about endometriosis, will look it up.

ScipioAfricanus · 11/12/2018 14:04

Forgot you could also research vaginismus and ask for a referral from GP. Most HCP are very ignorant about it. I was misdiagnosed as having endometriosis for four years when it was actually vaginismus - had three operations for the non-existent or non-problematic endometriosis as the doctors did not listen to what the symptoms were. Vaginismus is less likely with you (if pain comes and goes and sex is possible) but I thought I’d mention it as it took me hers to be diagnosed and hear about it.

ScipioAfricanus · 11/12/2018 14:05

took me years

Neurotrash · 11/12/2018 14:45

. I also don’t like the close links between the doctor, whose name I forget, who advises British thyroid uk & the company that makes the main synthetics used.
Presumably you mean btf and that has recently changed. Also, if it's Dr Perros, he conceded in a paper that t3 is useful for some. Ndt doesn't have the correct ratio for humans anyway which is the ongoing issue.

Yes there's an array of 'thyroxine'. We aren't 'fixed' when on any form of external thyroid hormone. There's a very big picture with thyroid that's not passed on the the patient (more below) and not even fully understood yet. Eg circadian rhythms etc. But t4 is the most stable. And for every person on health unlocked who like ndt, there's one who has issues with it.

There's been a massive trolling campaign against btf over the years which is a big fucking shame.

BTF also advocate for many other types of thyroid issue too and have done brilliant work in these areas. Eg cancer, TED, pregnancy. At the end if the day they work with gps and endos. Stupid to be dismissive due to ndt. That's a NICE guideline issue.

I personally believe better to engage with this organisation and keep sending the message that some aren't well.

The bigger picture of thyroid- I don't have time to fully explain the ins and outs but it's a combination of looking at a range of blood test levels, pacing, muscular skeletal strengthening, working tirelessly with a willing Gp and cbt type stuff. I know as I've been doing it for 20 years,

Pennydrew142 · 12/12/2018 07:49

Thanks everyone for sharing your stories here :)

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