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Feminism: Sex and gender discussions

Suing the NHS to gain access to ivf treatment

60 replies

AliceIdentifiesasaCamel · 27/09/2018 08:18

Supposed to be getting ready to do school run, so dropping this here, will return later. When I can organise my words into something coherent

news.sky.com/story/nhs-sued-over-transgender-fertility-treatment-11509918

OP posts:
RedToothBrush · 27/09/2018 12:57

R0wantrees, equal basis from a zero basis.

It will be a step back for women. Not a step forward for the trans lobby.

I'm sure its deliberate too.

R0wantrees · 27/09/2018 13:04

I can also testify that the protocols for those diagnosed with cancer being referred for fertility guidance and possible treatment is also a postcode lottery.

I have experienced all three. IVF options were very poor relative to other areas. I was then fortunate in that both cancer treatments and fertility protocols were amongst the better postcodes.

I was aware that the lobby might be pushing for parity with regards fertility options for those diagnosed with cancer.

Its incredibly difficult to even begin to talk about this having both been affected and knowing many others who have had cancer diagnosis.

I think the leverage for this comes from the NHS report published earlier this year about transgender healthcare.

This wasn't the only area where equality of treatments was been sought.

R0wantrees · 27/09/2018 13:05

It's not a comparable situation in so many ways.

If (& it is a big if) a person diagnosed with cancer has a referral to fertility services, for females, there is often a critical time issue. Starting a process of egg harvesting may require delay of treatment. Also for some cancers, starting the required hormone treatments requires a consideration of risk. Some cancers are hormone receptive. The person diagnosed is also in a state of trauma about their future.
The consequences of all of these factors will likely mean that though there is a protocol and pssiblity for egg harvesting and storage, it would likely be a small percentage of females diagnosed with cancer who go ahead.
Similarly, one has to consider the future reality for those diagnosed with cancer who have stored eggs in terms of whether they choose or are able to go ahead in the future with attempts to then have a child whether through IVF or surrogacy.

There are many differences to the circumstances.

R0wantrees · 27/09/2018 13:06

I've c&p so capitals are from text.
Campaign launched last year by Becki McGuiness 'Cancer & Fertility UK':

"Thankfully I have now been in remission for 8 years but have to live with life long side effects. Early menopause is a hard one to deal with especially as the Gynecologist I had to see for HRT (Hormone Replacement Therapy) said they could have helped me, if only I had been originally sent to see her.

If only the hospital had a holistic approach for cancer patients.

I am officially launching a campaign for the awareness on #Cancer and #Fertility for all cancer patients called “The Vicious Cycle Campaign” and I’m also using the hashtag 💔 #HiddenHeartache 💔 because it’s something painful that’s hidden in society especially if you’re young and infertile. I want to raise awareness so women know the options available (as it takes longer to save women’s eggs and men usually get their fertility preserved, as it’s quicker) and asking to see a fertility specialist. I would prefer if all oncologists brought up the subject with every patient because for some patients it’s so traumatic finding out they have cancer that they might not even be thinking clearly enough or may forget to even ask about fertility and that’s why I believe they shouldn’t be putting this pressure on the patient to ask because they have so much to worry about already

This is something I am really passionate about. I know it can vary throughout the UK for different women and I want my campaign to make sure there’s equal opportunities for all women and men regardless who their doctor is or area they live in.

I want the protocol to be the same for everyone in the UK rather than being hit and miss for patients or a postcode lottery."

"A STUDY BY ST MARY’S HOSPITAL IN MANCHESTER SAYS AROUND HALF OF FEMALE CANCER PATIENTS AGED 15 TO 39 — ROUGHLY 4,000 A YEAR — ARE INFERTILE AFTER THEIR TREATMENT.
RESEARCHERS ESTIMATE THAT AROUND HALF WOULD VOLUNTARILY CHOOSE NOT TO USE FERTILITY PRESERVATION AND HALF WOULD WANT IT.

FREEZING EGGS, OVARIAN TISSUE OR AN EMBRYO CREATED WITH A PARTNER’S SPERM ACTS AS AN INSURANCE POLICY WHICH MAY GIVE THEM THE CHANCE TO START A FAMILY LATER USING IVF.
BUT IN 2014 ONLY 154 WOMEN HAD THEIR EGGS FROZEN — LESS THAN 4 PER CENT OF THE 4,000 WHO WERE LEFT INFERTILE.
AND A FURTHER SURVEY FOUND THAT ONLY A THIRD OF THE WOMEN WHO DID HAVE TREATMENT GOT IT ON THE NHS.
THE REST ARE LIKELY TO HAVE PAID THOUSANDS OF POUNDS PRIVATELY FOR THE CHANCE TO BE A MOTHER.
STUDY AUTHOR DR YAZAN ABDALLAH OF THE DEPARTMENT OF REPRODUCTIVE MEDICINE AT ST MARY’S SAID: ‘GETTING CANCER IS A MISFORTUNE, NOT A CHOICE, AND SO FERTILITY PRESERVATION MUST BE AVAILABLE ON THE NHS. THERE IS A BIG OPPORTUNITY TO INFORM AND EMPOWER WOMEN — NOT ASK THEM TO PAY... continues

THE RESEARCH, PRESENTED TO A BRITISH FERTILITY SOCIETY CONFERENCE IN EDINBURGH LAST WEEK AND DUE TO BE PUBLISHED IN THE JOURNAL HUMAN FERTILITY, SAYS THAT 77 PER CENT OF NHS FERTILITY CENTRES JUDGE CANCER PATIENTS ON THE STANDARD CRITERIA, DESPITE NICE’S GUIDANCE.
IT SAYS ANOTHER FACTOR IS THAT SOME PATIENTS OR THEIR DOCTORS MAY BE NERVOUS ABOUT DELAYING THE START OF CANCER TREATMENT UNTIL EGGS CAN BE HARVESTED. BUT THE AUTHORS SAY THIS CAN TAKE AS LITTLE AS 12 DAYS IF HORMONES ARE INJECTED TO STIMULATE OVULATION.
THE RESEARCH, WHICH HAS BEEN SUPPORTED BY CONSULTANT DR RAJ MATHUR, ALSO SHOWS A POSSIBLE POSTCODE LOTTERY FOR FUNDING, WITH LONDON AND THE NORTH-WEST OVER-REPRESENTED AMONG THE 154 WHO HAD TREATMENT.
DR CHERYL FITZGERALD, CONSULTANT IN REPRODUCTIVE MEDICINE AT ST MARY’S, SAID: ‘THERE IS A HUGE INEQUITY. MEN HAVING FERTILITY-DAMAGING TREATMENT ARE AUTOMATICALLY REFERRED TO SPERM BANKING.
‘FOR WOMEN, BECAUSE EGG FREEZING USED TO BE LESS SUCCESSFUL AND BECAUSE IT’S A MORE INVASIVE AND TIME-CONSUMING PROCESS, IT’S NOT AUTOMATIC.
‘THE EMPHASIS HAS OBVIOUSLY BEEN ON CURING CANCER, BUT WITH SO MANY PEOPLE SURVIVING CANCER, WE NEED TO LOOK AT IMPROVING THE QUALITY OF LIFE AFTER TREATMENT, INCLUDING THE CHANCE TO HAVE A FAMILY.’ ”

cancerandfertility.co.uk/about/

BettyDuMonde · 27/09/2018 13:07

Does anyone really believe that cancer and transgenderism are comparable?

I’m guessing by the top surgery/breast cancer mastectomy discussions from a week or so ago that the answer is no, from the general public anyway.

Be interesting to see where the law falls.

Flowers to all the Mumsnet cancer survivors reading this thread

R0wantrees · 27/09/2018 13:07

So to summarise, a transgender lobby group is threatening to sue the NHS for parity of fertility treatment options with cancer patients which does not actually offer parity for actual cancer patients!

Meanwhile the groups and inviduals who have been seeking parity of treatment for female cancer patients have little in the way of finance, access to decision makers or influential power and so few will have been aware of this issue. Certainly this sex bias and postcode-lottery has not been an issue to make national news.

BettyDuMonde · 27/09/2018 13:10

4%!

That’s so incredibly sad. Life can be so utterly unfair.

StarUtopia · 27/09/2018 13:10

There are a lot of things the NHS pay for that they shouldn't. It really should be standardised across each region though. I don't think it's fair that you can get IVF paid for in some counties and not others.

ChattyLion · 03/10/2018 21:34

Thank you R0wan for those posts. The situation is even worse than I had understood for women with cancer around preserving fertility. Sad

I only hope that if this legal case against the NHS goes ahead it will at least serve to draw public attention and political pressure to the existing serious problems around fertility preservation that the NHS is already under resourced to be able to meet.

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