Scan saying Adenomyosis disappeared?

[Missingpieces1]

Hi everyone,

A few years ago I was having lots of pain and bleeding between periods and periods were bad too. I got referred for a scan and they said I had adenomyosis. I had never heard of it at the time but researched it to find out about it. Last year I had a fertility scan and they said they could see the adenomyosis too.

Ive been having terrible pain in my right hand side of my pelvis since having a polyp removal and biopsy last year so I got referred for another scan (by a different GP as we have moved) and the scan has come back saying no sign of anything including adenomyosis and now my GP is talking to me like as if I made it up (he doesn't even know what adenomyosis is and put in my notes "says has adenomyosis" like im lying.

As I am sure you all know, adenomyosis does not go away and only worsens with age and believe me, I suffer worse than ever with it now.

What am I meant to do now when I have been told I have it from 2 different places (an NHS gynecologist [which IS in my medical records] and a private fertility clinic. This GP is so dismissive and now this scan added fuel to the fire by making him think it is not there.

I have a feeling the person who did this most recent scan just did not know what they were looking at because they did not take no where near as much time as the original diagnosis scan they took loads of pics and was turning me round and upside down and all sorts!

It is so frustrating because not only do I not have an answer to my pain but now they are trying to gaslight me into saying its not there (when it cant disappear and been diagnosed by scan from 2 different people/places before that.

I don't know what to do now any ideas?

Sorry for the rambling its just stressing me out this is why ai hate going to the doctors when most of them act like you are lying about everything (when I am nothing at all like that and hardly ever go docs unless I HAVE to)

No I didn't as I presumed he would have already looked but nevermind... I will just mention it next time

Hi,
I'm so sorry about your losses - sadly I never managed to have a child. I've lost 6 too, strangely enough.

I wish you lots of love and luck and I really hope you get your baby - but just in case you don't, I want to let you know, that you do learn to come to terms with not having a child and you can still enjoy life. I know that if someone had said that to me, I'd have never have believed them as it was almost an obsession for me, to be a mother - it was all I wanted.

But I'm proof, that if your plans have to change, it can and does turn out to be a happy life in the end xx

As for some of the replies, yes they were savage and I have absolutely no idea what you did to "deserve" them. You literally mirrored real life experiences I've had and one of my gynaecologists admitted to me that there is a lot that not's really understood about "womens problems" because they're so vast and have so many symptoms that are similar to others and they all "get lumped under the same umbrella" and doctors don't have the time to read through medical histories in depth, when they are long and complicated - that was from a very wonderful and sympathetic gynaecologist who has sadly retired but having someone just explain that to me, made me feel like I wasn't going mad and that I wasn't over-exaggerating.

I really wish the best for you and I really empathise with the frustration you're going through.

Have not read all of thread. For years I had pain associated with periods etc... in later years had numerous scan (post menopausal bleeding) and nothing was ever identified. Anyway the last scan I had identified adenyosis. This scan was only a year after the previous scan so I was confused. My research suggests that adenyosis is very tricky to identify in a scan which in my case explains the years of no identification. It might explain why your latest scan didn't identify your condition.

My advice is to write to your GP with dates and times of scans and the adenyosis diagnosis. Ask for your records to be updated. Use formal language.

Me neither.

So sorry if someone were to run an ultrasound over my once numb sensation of a stomach now experiencing period and ovulation on time I bet if they scanned they would say what fibroid? despite the many years it caused unpleasantness -eg a numb sensation to the tummy, periods coming where and when they liked.

6 months ago I had blisters of fluid grow on my legs and felt ill, after surgery a fibroid had absolutely disappeared, my periods returned to a regular date each month. I stopped HRT and have never had any bother. I am 44 years with periods happening as regular as 10 years of age.