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Ovary Cyst -Advice please

36 replies

Mumstheword1380 · 19/08/2025 00:12

Hi,

I came into hospital 2 days ago after calling 111. I had been constipated (mostly) for 2 weeks and on the day I called 111 I had woke up in the morning feeling really sick and had stomach pains on and off. Also had a high pulse and temperature. The night before I had drank some prune juice to try and get bowels working again which I blamed for the tummy ache and sickness.

went to A&E and they thought it was constipation as infection makers were only slightly raised and everything else must have been okay. As tummy pains weren’t going away it was recommended I stay in overnight and see doctor. Saw doctor that night who said to have CT scan with dye just to see what’s going on.

next day another consultant came who thought pain was due to grapefruit size diverticular abscess. Had Ct scan with dye and when got the results was told bowels looked fine but have 5cm cyst on ovary. Was then transferred to gynaecology for blood test and internal ultrasound. Blood test was done this morning but missed the doctor doing rounds as I had another appointment in the hospital for something else.

nurses came round earlier and I asked them a few questions. Got the impression blood tests were okay. Also that a 5cm cyst would need to be removed. There was also talk of being referred to another hospital. Also scan was mentioned so thinking I’ll get that tomorrow.

can it be seen what type of cyst it is with Ct with dye
also if blood tests showed anything do you think doctor would have come back today to see me after not being there for his first round?
Really worried about it all.
also can ovary cysts cause abdominal bloating, pain even in opposite side, pain behind naval also and constipation.

thank you for reading

OP posts:
Mumstheword1380 · 20/08/2025 11:34

@Yachtingaroundtheworldiwish
did they do anything else when they removed the cyst?
that’s great you’ve had no issues afterwards.

OP posts:
chunkybear · 20/08/2025 12:30

I had bloating only with my cyst but the doctors kept asking about pain, I think I was just lucky I didn’t feel pain. Mine was over 20cm, the size of a 6 month foetus so felt amazing when it was removed lol 😂-mine was a mucinous cyst adenoma, so cells from the gut creating mucous … lovely! I had it removed and all was fine. Good luck

Mumstheword1380 · 20/08/2025 13:21

@TheLivelyViper
I'm so sorry to hear you have become disabled with this. Is there anything that can be done at all? Sorry to hear you might need surgery for your bowel. Have you been having a lot of issues with your bowels? I had part of my small bowel removed a few years ago due to a perforation but now wondering if it could be endometriosis related. Does endometriosis cause sciatica?

it was a transvaginal (internal) scan. Saw the cyst and endometriosis areas and I’m sure a fibroid in uterus. Tried to see left ovary but couldn’t.

still having the pains in left side. Had the laxative this morning and didn’t work as I believe it should. Still getting the feeling that it’s impossible to open bowels in a just can’t get the body to work.

in our hospitals we can’t really ask to see consultant from other departments etc. we would need to get referred.

My symptoms are not during period but all the time. They are there all the time but is that because it’s a cyst maybe. There are times when can get very painful which I believed was bowel obstruction due to the pain. The episode now has been the worst. Would really like to know what’s causing bowel issues. Wouldn’t say had particularly bad period symptoms. Bleeding is quite light and only last a a few days. Never had heavy periods.

consultant said this morning I could go home and would be on waiting list for a laparoscopy
i said I still have the pain in left side and right and centre abdomen I came in with and not being able to use toilet properly still and that it would be 3 weeks on Saturday.
have been given peppermint oil tablets. Not sure how they will fix all this to be honest. Also have pain pelvis.

thank you for all your help with this and your knowledge

OP posts:
Mumstheword1380 · 20/08/2025 13:30

@beachwalkx
your before photo is exactly what my stomach is like. Just realised I had the cyst the other day. I thought even though I was trying I couldn’t lose weight. Really bloated. Also feel full of wind all the time that can’t empty. A blown up balloon that can’t pop.
was it the removal of the cyst that helped your tummy or was it both that and the removal of the endometriosis tissue?
thank you for sharing with me

OP posts:
Mumstheword1380 · 20/08/2025 13:39

@Weepixie
Im sorry you’ve had to go through that. That must have been hard.
great news you are much better now.
just found out about this cyst and was hoping it would be seen to now
thank you

OP posts:
PInkyStarfish · 20/08/2025 13:49

My sister has an ovarian cyst that rapidly grew to 10cm and bigger.

She was having a weekly scan to monitor its growth until they booked her in for an operation to take it out which was approximately three weeks later and they stopped the weekly scans.

She didn’t have a scan on the day of the operation either which she mentioned but they dismissed her query.

After the operation the surgeon was at her bedside and was very apologetic saying that he didn’t remove the cyst as it was gone, shrunk and had disappeared!

Apparently they can shrink and go away of their own accord but they never told her this.

She was furious she had endured an anaesthetic which could have been avoided if they had given her a scan beforehand!

beachwalkx · 20/08/2025 13:49

Mumstheword1380 · 20/08/2025 13:30

@beachwalkx
your before photo is exactly what my stomach is like. Just realised I had the cyst the other day. I thought even though I was trying I couldn’t lose weight. Really bloated. Also feel full of wind all the time that can’t empty. A blown up balloon that can’t pop.
was it the removal of the cyst that helped your tummy or was it both that and the removal of the endometriosis tissue?
thank you for sharing with me

It’s hard to say to be honest as they did it all at the same time
i think it was a total of 3 cysts removed as I had one on each ovary then one hiding behind the big one

TheLivelyViper · 20/08/2025 16:53

Mumstheword1380 · 20/08/2025 13:21

@TheLivelyViper
I'm so sorry to hear you have become disabled with this. Is there anything that can be done at all? Sorry to hear you might need surgery for your bowel. Have you been having a lot of issues with your bowels? I had part of my small bowel removed a few years ago due to a perforation but now wondering if it could be endometriosis related. Does endometriosis cause sciatica?

it was a transvaginal (internal) scan. Saw the cyst and endometriosis areas and I’m sure a fibroid in uterus. Tried to see left ovary but couldn’t.

still having the pains in left side. Had the laxative this morning and didn’t work as I believe it should. Still getting the feeling that it’s impossible to open bowels in a just can’t get the body to work.

in our hospitals we can’t really ask to see consultant from other departments etc. we would need to get referred.

My symptoms are not during period but all the time. They are there all the time but is that because it’s a cyst maybe. There are times when can get very painful which I believed was bowel obstruction due to the pain. The episode now has been the worst. Would really like to know what’s causing bowel issues. Wouldn’t say had particularly bad period symptoms. Bleeding is quite light and only last a a few days. Never had heavy periods.

consultant said this morning I could go home and would be on waiting list for a laparoscopy
i said I still have the pain in left side and right and centre abdomen I came in with and not being able to use toilet properly still and that it would be 3 weeks on Saturday.
have been given peppermint oil tablets. Not sure how they will fix all this to be honest. Also have pain pelvis.

thank you for all your help with this and your knowledge

Yes endometriosis can be (and in my case) is on my sciatic nerve and some nerves in my lower back and going down into my legs - so I have lots of issues standing and walking for a while and sometimes randoms spasms there as well.

I'd ask for the notes from your precious surgery - as endometriosis tissue can be on the bowels and bladder (mine also is), and it may have led to your previous issues (not 109% but seems like it). I'd ask gynaecology or your GP for a referral to colorectal surgery and/or uro-gynaecologist. Look into antispasmodic medication, Anti-motility agents (e.g. loperamide/Imodium) as well - ask your GP and/or colorectal surgery for this and what they think you should start for your bowel issues.

They should be looking to remove both the cyst and firboid as soon as possible - and biopsy them. If they think you have adenomyosis - ask about getting the mirena coil inserted at the same time and also perhaps a uterine ablation (look into this to see if you want this). It's very good you're getting on the waiting list for a diagnostic laparoscopy, also ask for when they find the tissue for excision surgery and ask for that to be on the bowels as well and for colorectal surgery to be on call to come and excise that tissue. I have a cysts currently as well, however I haven't had it removed yet (on the list and have an appointment with my consultant on Friday about this), and I'm on the list for an excision surgery of everything on my bowels, bladder (as much as possible with urology and colorectal as well), not sure about the nerves in my back yet - I'm going to see with ortho for issues with my back and after I meet with my consultant well see if we need something checked with my nerves first by neuro potentially or not. I'm going to try with my pain consultant/palliative care to see about doing sacral nerve stimulation (but I'm not sure yet and they haven't decided whether to put me forward yet).

For me excision has helped for the first few months to a year after but my tissue grows back rapidly, there's also recovery from surgery and then also adenomyosis which for me hasn't resolved from the mirena and tranexamic helps with my heavy bleeding and leaking but not anything else. As adenomyosis tissue cannot be excised, it continues after the surgery anyways - that's why I'm thinking of doing a uterine ablation and perhaps a hysterectomy as well (I don't want children). After the excision surgery, you also have more adhesions grow, the scar tissue forms and also on my bowels, bladder and back - not all of it can be removed due to the position and amount. I may for my next surgery have more removed but this comes with side effects on my bowels (perhaps a stomach and other issues), for my bladder - I'm not sure what else can be done, unless I'm willing to go for something more like removing it and having a bag there as well (big decision and risk, so I don't want to do that right now). For my back and nerves, I'm going to see what ortho and my gynaecology consultant suggests and perhaps neuro as well. I'm aiming for the sacral nerve stimulation now for that anyways with my pain consultant/palliative care.

I am glad the information is helpful, the links are also really good. I just know that I had to learn a lot slowly and would have liked to know it all from the start, so I hope it's not too overwhelming as diagnosis can be when you're not expecting it at all.

Go to your GP about trying naproxen and/or mefenamic acid, perhaps opiods (depending on how severe your pain is, perhaps temporarily for flares? first, rather than going long-term for the sake of it).

You can look into stopping your period, but as your's isn't heavy, it might not be needed. If you want you can get tranexamic acid for a heavy period. I'd still try the mirena coil for adenomyosis as it will thin your uterine lining and cause less cramps in general. If insertion is your fear (either get them to do it in surgery - only issue is it could be a while away) or make sure the GP gives you the pain relief (Licodaine injection, numbing sprey/gel, paracetamol and ibuprofen 1 hour before etc).

Weepixie · 21/08/2025 01:16

chunkybear · 20/08/2025 12:30

I had bloating only with my cyst but the doctors kept asking about pain, I think I was just lucky I didn’t feel pain. Mine was over 20cm, the size of a 6 month foetus so felt amazing when it was removed lol 😂-mine was a mucinous cyst adenoma, so cells from the gut creating mucous … lovely! I had it removed and all was fine. Good luck

I think that’s a different name for what I had which was Mucinous Ovarian Cancer. And I didn’t have any pain either despite mine weight 6 kgs or just over 13 pounds in old money - my last baby was only 11 pounds 🤣

By the way, you’re only the second person Ive ever come across here who’s mentioned the Mucinous type cysts. One other poster like me had a stage 1A cancer diagnosis and I’m hoping I’m right in thinking yours was caught before it got to that.

chunkybear · 23/08/2025 22:23

@Weepixieyes it was benign, they said it looked benign but still did the pathology and it was fine thankfully

Infracat · 29/08/2025 23:41

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