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Women's health

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Daughter is having a open Myomectomy (Fibroid removal surgery)

17 replies

Bulldog01 · 18/07/2025 18:09

Daughter and i, would really appreciate any information that may be helpful!
The operation, Open Myomectomy( Fibroid removal surgery) will be carried out

In the near future, early day's at the moment!
Consultant, has yet to advise our Daughter, what will happen on the day,

during & post operation.

Example Convalescence required?

Thanking you in advance!

OP posts:
TwattyMcFuckFace · 18/07/2025 18:12

I sat on the edge of a special chair that means my legs were far apart, and then they used some sort of numbing cream.

Then they removed the fybroids while using a camera (I could see the screen) whilst squirting water, which just kind of landed in a sort of container between my feet.

It was fine, not painful at all and over in about 20 minutes.

TwattyMcFuckFace · 18/07/2025 18:16

Sorry, ignore me.

I've just realised you're talking about an 'open' myomectomy which is different.

MyLov · 19/07/2025 01:25

Is it a very large fibroid? Why have they opted for open?

ThisIsNotARealAvo · 19/07/2025 04:32

I had this about 6 years ago. I was under a general anaesthetic and the operation took about two hours. I had to stay in hospital for 3 nights and I had a catheter in for the first 24 hours. I was also on a morphine drip for 24 hours. I remember being worried about sitting up at first because I didn’t think I’d be able
to, but I could. I had a wound a bit like a caesarean which was glued together instead of stitches and the glue gradually fell off over a couple of weeks and the healing was fine. I was off work for about 6 weeks. The first week I was in bed the whole time, then I got up but was very tired. By the time I went back to work I was fine. When I spoke to the surgeon after the operation he said he had removed one fibroid the size of a grapefruit, two oranges, three or four plums and a few grapes. So I felt much better without them!

ThisIsNotARealAvo · 19/07/2025 04:35

On the actual day I had to go in about 7 and was nil by mouth from the night before. I had to get changed into the gown and had a pre assessment chat and they offered me a gabapentin as a mild sedative and I took it. Then I got changed into the gown and waited on the trolley until they took me down. All staff were very nice especially the anaesthetist.

Ponderingwindow · 19/07/2025 05:32

They did 2 attempts to remove enough of my fibroid vaginally to get my periods under control. We finally resorted to the open myomectomy. The surgery itself is much like any other. Show up to hospital, have surgery, time in recovery. I spent one night in the hospital.

I was on serious rest for 6 weeks afterwards. I watched a lot of tv and knit two baby blankets. I had limited activity for several weeks afterwards. Mine was very invasive, but it was successful.

MotherPuppr · 19/07/2025 05:54

I’ve had this surgery. Very similar experiences to the poster above. I think I was admitted at lunchtime and put under at about 2pm and I think the surgery took apx 2/3 hours (I’m not sure how much of that was “active” surgery because obviously I was out of it) and then woke up in the recovery room. I was obviously drugged to high hell and remember whimpering and groaning but I think I was just cold. Woke up with a catheter in which was in place for maybe 48 hours, although they had me shuffling down the corridor with it on a trolley about 24 hours later. I also had a morphine drip although I think for less than 24 hours, and then was on opiates.

not going to lie i thought, naively, that I’d be sitting up in bed next morning tender but sprightly and I was like a swamp creature for at least 3 days - utterly helpless and sleeping 24/7 from the cocktail of drugs but no pain (apart from the first few attempts to sit up and swing legs out of bed etc).

I was in for 4 nights but not in UK and there is no healthcare crisis here meaning they were not desperate to hurry me away.

i was surprised how quick the recovery was. Day 5 I couldn’t sit up out of bed without help and Day 11/12 I was slow and careful but didn’t need assistance and could slowly take steps. Your daughter will be helpless initially but it doesn’t last long, I’m confident she will be absolutely fine by 2 weeks - not doing sport or lifting shopping or driving of course, but moving quite normally and making a quick meal, showering (washing hair) unassisted etc. small effort to get on/off loo, in/out bed and on/off sofa but not issues.

plan for up to 4 nights in hospital and at least 3 days where you/her partner can be at home, but as long as she doesn’t need to climb stairs or lift things I would be surprised if she needed help at home beyond 7 days after surgery.

I was back at work 1 week after surgery (wfh, from sofa) but my job is frenetic and I just can’t take time off without leaving a wave of destruction for my team and clients (corporate world).

tips:
wind! Trapped wind is mad. Take peppermint tea and plenty of it to hospital and drink heaps, it really helps.

It’s normal to be constipated as they give you drugs to prevent bowel movements and they last a few days. When you are able to go home, take a natural supplement and prunes etc so things get moving in a few days. don’t take laxatives or anything aggressive, there’s enough medication pumping through you.

dont stop the painkillers too soon. After about 10 days I thought I could taper off but was in agony. Bizarre throbbing, nothing to do with scar, it was still completely numb, but it felt like someone had whacked my pubic bone with a hammer!!! Perhaps a surgical clamp or tool did indeed slip and thwack me? Not the pain I expected!

walk!!!! As soon as she possibly can, get up and walk. At home make sure she gets at least up and ideally out for a 5 min shuffle twice a day. It’s the best thing for you.

let me know if you have any questions. While it was a much bigger ‘ordeal’ than I thought (I imagined myself happily reading books and watching my iPad in hospital 😅) I just slept non stop and tbh it was quite relaxing (see above comments re work!) I’m ashamed to say I enjoyed it!

Bulldog01 · 19/07/2025 12:42

Thank you for the replies.Daughter has one fibroid 9cm,others smaller.

OP posts:
iamnotalemon · 19/07/2025 13:21

I also had this done. I had one night in hospital about two weeks off work. To be honest I was glad to leave the hospital and just recover at home. I found holding a pillow over the area helped and I remember it hurt to laugh. Friends helped with shopping and lifting for a while. (This was about 5 years ago and the fibroids have grown back!)

FitnessIsTheOnlyWealth · 19/07/2025 15:09

@Bulldog01 can I ask why open surgery? Is she yet to have babies?
I ask because I had a single 9cm fibroid and had a uterine fibroid embolisation which was non invasive and very successful. I was back to normal in 48 hours. There are risks and may not be for everyone. I was keen to avoid surgery.

MotherPuppr · 20/07/2025 00:48

mine was 9cm too, although they didn’t know that exactly pre surgery, as it was difficult to see on the ultrasound.

I was led to believe it wasn’t ‘possible’ to operate on that size other than open myomectomy. Perhaps not impossible but their strong preference not to but again I’m not in uk and I do think sometimes uk are under funding pressure to avoid surgeries that might be recommended in other parts of the world.

My consultant also explained that on the very slim chance they are cancerous (which of course they have largely ruled out by that point through blood tests) then they don’t like to be snipping them up and disturbing cancerous cells and like to just safely take the whole thing out in one go.

I forgot: oh gosh how it hurt to laugh. I had to watch bridgerton and shows like that with no funny bits rather than risk cracking up 😆

that will go away after about a week post surgery when you’ll “feel” laughing but be safe to chuckle but by god do not make her laugh when you visit her in the ward!!!!

MotherPuppr · 20/07/2025 00:54

I have not had babies and there’s definitely a risk of damaging the uterine lining with myomectomies - mine was cut and repaired in the removal of the fibroid and then I had a second (non invasive) surgery (which I think gets classified as a surgery because of the general anaesthetic?) where they went back in to check that was healed fine and to take another tissue sample just to completely rule out cancerous cells.

I’ve been told if I want to have a pregnancy it should be a c section and I shouldn’t go past 37 (?) weeks because of pressure on my uterine lining. I think, can’t remember!

CherryPinkAppleBlossomWhite · 20/07/2025 19:38

I had this done to remove multiple fibroids. I was in hospital for 5 nights. I had it done because they were preventing me from getting pregnant. The surgery took about three hours. The first 24 hours were a bit rough but after that I was able to get up and walk around my room (I was in a private hospital.) I had a catheter and some kind of "balloon" thing to protect the uterus.

Once I got home I found the recovery to be quite easy...I actually went back to work after three weeks, though in hindsight I probably shouldn't have done this as I was very tired.

It was great being rid of the fibroids...no more severe period pains and flooding. Best of all, I have since gone on to have two children.

LilacLemonade · 08/09/2025 13:31

I’m day 5 post op open myomectomy for 10 cm fibroid. They kept me in one night and discharged me the next day. (I went in at 7 am, last food permitted was 2.30 am, last water 6.30am. I was second on the list and went to theatre at 10.30am).

So they offered me a spinal anaesthetic on the morning of the operation as they said it would speed up recovery. I guess that’s true -for them -because the real pain kicked in end of day 1 when I was already at home! ( op day - day 0, next day- day 1). Once they gave the spinal I had the GA. The usual post GA stuff - I’m always sick, nauseated- everyone’s different so just go by how she’s been after any previous GAs and let them know beforehand if anti sickness meds are needed.

The rest of that day is a bit of a blur, I was quite sick and slept most of it, there wasn’t a lot of pain because of the spinal and the catheter meant I didn’t need to get up so actually it was ok. I managed a bit of toast and tea but that was all I had that day. They put up fluids for me because I was sick. They also gave iv antibiotics, a blood thinner to prevent blood clots and tranexamic acid to prevent vaginal haemorrhaging.

So Day 1 they removed the catheter and said that I had to pass urine 3 times and each time they measured the volume and did a bladder scan to make sure the bladder was emptying. If I could pass urine 3 times without retaining too much I could go home. Pain relief was just paracetamol.They did post op bloods and said they look fine so you are definitely going home once you have passed the TWOC( trial without catheter). They weren’t bothered about bowels as long as passing wind. They didn’t make any suggestions for future bowel motions.
I went home later that day with 10 days of blood thinners to inject into tummy. I was told to buy my own pain medication.

By the end of day 1 I was in a lot of pain and had quite a swollen belly. I really needed to open my bowels but it was too painful and I couldn’t get the force I needed. That made me really bloated and gave me cramps and more pain.

My recommendations would be:

  1. think about your daughters bowel habits, I’m used to going every day so I felt really uncomfortable when I couldn’t go every day. For other people it may not be such a problem. I would recommend dulcoease stool softeners - I’m taking two or three a day- and I wish I had started taking them the day before the operation because that first bowel evacuation after the op was sooo painful. My mum said in the old days they used to give an enema before having a baby etc and I can see why! I also needed glycerine suppositories the first few days and I got a small step to rest my feet on when sitting on the toilet as it helped reduce abdominal tension when pushing.
  2. the hospital was determined I was going home the next day. In the end I was probably better off at home but at the time I felt it was a bit too soon and I had expected to stay in 2 nights minimum, so clarify with the surgeon what the usual length of stay is. They give the spinal for enhanced pain control in the hospital but it will have worn off completely by the end of day 1. I suppose it’s better than being on a morphine pump but it’s a good idea to discuss with the consultant - I didn’t do that.
  3. you’re going to need loads of extra pillows in bed to sit up and suppport legs when sleeping. The first few nights are horrible as trying to turn in bed is agony. Think about whether your daughter has high or low pain threshold. I don’t tolerate codeine / opiates as they make me sick so I’m on paracetamol but to be honest that’s not a fantastic pain killer so ask for better pain meds if she can tolerate stronger. Then back to point 1 , make sure not to get constipated!
  4. I bought disposable spa knickers to wear and lots of pads for discharge/ bleeding.

Forgot to say that the stitches are dissolvable. And the surgeon said no need to see him again for follow up unless the histology results are unexpected/ concerning.

Someone else mentioned that laughing is painful, as it coughing and sneezing so don’t do that because it does hurt!!!

Someone else also mentioned that any pregnancies would have to be elective c-section at approx 37/38 weeks which is what I was told too.

I was told that because my fibroid had gone all the way into the endometrial lining ( ie there was a hole on my uterus that they had to close up) that future periods would be very heavy and painful for up to 6 months so I’m going to stay on the Depo injections for now as they stop my periods and I only get spotting. Obvs it might be different for your daughter.

Sick note is for 4 weeks. The consultant said that if you have to use 2 hands to hold or lift something then it’s too heavy and avoid exercise / strenuous activity for 4-6 weeks. Driving is posssible sooner than that. At the moment any turning really pulls on my stitches and I can’t imagine being to drive for at least another week or maybe 2.

I’m up and about at home but haven’t ventured out yet.

Hope some of that helps ! Good luck

( People are asking why open myomectomy and not laparoscopy or embolisation etc. My Consultant told me that if I wanted laparoscopy I had to be referred to a different centre, if I wanted embolisation I had to be referred to another, different centre.I had already waited 18 months to be seen so I didn’t chose those options, the post code lottery still exits and depending on where you are in the UK you may have access to all or only some of the available treatment options at your hospital and that’s before individual clinical considerations are brought to bear)

livelyparsnip · 05/02/2026 05:39

CherryPinkAppleBlossomWhite · 20/07/2025 19:38

I had this done to remove multiple fibroids. I was in hospital for 5 nights. I had it done because they were preventing me from getting pregnant. The surgery took about three hours. The first 24 hours were a bit rough but after that I was able to get up and walk around my room (I was in a private hospital.) I had a catheter and some kind of "balloon" thing to protect the uterus.

Once I got home I found the recovery to be quite easy...I actually went back to work after three weeks, though in hindsight I probably shouldn't have done this as I was very tired.

It was great being rid of the fibroids...no more severe period pains and flooding. Best of all, I have since gone on to have two children.

Hi, im looking at this thread as Im due to have this operation soon and im trying to find out some information. When you had your children, did you have natural births?

also, im only going to be able to take 1 week off work max, im self employed and I work from home and my job involves mostly sitting, is that going to be ok to resume after a week?

CherryPinkAppleBlossomWhite · 05/02/2026 09:41

Hi, no I didn't have a natural birth, I had twins by elective C-Section. I was told that they advise a C-Section after a myomectomy in case of rupture of the uterus.

I think that as long as you are WFH and not doing anything strenuous, a week off work should be ok. Bear in mind you will probably be in hospital for a few days, and you will need a few days afterwards to recover. A myomectomy is a big operation and I found the recovery time was longer than after the C-Section. I went back to work after 3 weeks and I probably shouldn't have done that, but it worked out fine.

Best of luck for your operation.

livelyparsnip · 07/02/2026 17:55

thank you very much for responding and sharing your experience!

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