Pcos new diagnosis

[AzureRobin]

My daughter aged 20 has been diagnosed with PCOS after her periods became random and then stopped. She didn't respond to a dose of drugs to restart her period. I know nothing about PCOS and feel awful about the diabetes risk and potential fertility issues she faces.

A beginners guide to PCOS would be so helpful from women who have this as I'm scaring myself with what I google. Thank you!

Gosh my daughter too was diagnosed today and the doctor was really dismissive about it.

The NHS is woeful at treating pcos. Essentially their approach is "take the pill until you want kids".
Pcos is a metabolic condition affecting the whole body not just the ovaries. The ovaries is where its visible on scans.
The advice for pcos is to follow a low carb, high protein diet full of healthy fats and low in UPFs.
A lot of what you see on social media about pcos is rubbish too. The pcos mentor, as he calls himself, Drew something is actually pretty good.
Supplements to include are zinc, myo iniositol.
Avoid sugary drinks like they're the devil.

Thank you - that is far more helpful than the doctor apparently was. She just said there is nothing they can do but she could lose weight. She is now a bit tearful as she thinks she will be fat (she is a very fit and healthy weight) forever and is worried about her hair too. She wanted to go on the pill but the doctor said she did not have time to discuss.

She also is very iron deficient, but because she was two points over the NHS demarcation line she isn’t aneamic…….

@PamandBluebell @AzureRobin This is an older thread but had to comment. I'm newly diagnosed at 36, but have had symptoms my entire life. I just wanted to say that while I have probably had PCOS my entire life, it did not affect my fertility, despite wildly irregular periods (2 beautiful, healthy children, conceived without meds), and while I have had my weight issues, I have found I can lose weight following a low carb, high protein diet without medication. This is only my experience of course. But please take it as some hope that it is a completely manageable condition, with the right advice and interventions (if needed).

Get Dr Arif's content on Instagram and tik tok - she goes over lots of detailed treatments for PCOS and information from the Royal College of OBGYN. I'd also ask for a referral to endocrinology because they should be involved in management. The pill does work as a treatment particularly Yasmin, what symptoms do you have - pain, acne, Irregular periods?

She has started taking a supplement of Myo-Iniositol and has since had two periods, four weeks apart. Definitely worth a try if anyone else is in the same situation.

My daughter is 18 and just had the same diagnosis recently was was given progesterone to induce a period but it hasn’t worked, she has another appointment Friday to discuss this, but again any hints on questions etc we should ask would be very gratefully received. She’s currently catastrophising that she will never have kids and really upset so trying to support but feel out of my depth, I’m fortunate enough to have health insurance for her via work, so any support etc we know to ask for might be a little more possible