Despite decades of gynae issues, I only discovered that I have endometriosis at the age of 50. That was in December 2023 following an MRI that I had requested due to the fact that I had experienced a failed uterine ablation in 2022 for very heavy periods. The ablation has caused excessive pain during my periods and so I requested an MRI to find out the cause of the pain. Turns out the ablation has forced the undiagnosed endometriosis into the walls of my uterus giving me an additional diagnosis of adenomyosis (I am still very angry about this as my uterus was fine before this).
I will probably need a hysterectomy for the adenomyosis at some point but can't quite face that at the moment as I have terrible anxiety.
I have seen my endometriosis gynae and he has suggested a laparoscopy. as one of the options I was hoping to get to menopause and for it all to die down somewhat but my gyane says this isn't guaranteed and many post-menopause women can still experience issues with endometriosis. I am still in perimenopause atm as I am still having a cycle, no bleeding due to the ablation but lots of pain when my period is due (I never experienced period pain before this procedure just flooding periods).
I am really scared at the thought of a laparoscopy especially as the ablation went wrong. I had been assured by my regular gynae that failure was really rare (I have since found out this procedure fails a lot) but I also suffer with lots of daily gut issues and would like to know if this is caused by endo on my bowel/intestines.
Tbh, I really don't know what to do for the best. My endo gynae is not a nice man, he talks over me the whole time, is very dismissive and has a reputation for having a terrible bedside manner. During my last appointment a few weeks ago he said my options are laparoscopy, hysterectomy, AEU for the adenomyosis or Zoledex injestions then said none of these options may help me and in fact could make things worse then demanded that I give him and answer then and there. I refused and said that I wanted to give it some time to think about.
I am finding it really difficult to find much information about endometriosis, perimenopause and post menopause.
Does anyone have any experience of this? I really don't know what to do for the best and am worried it could go wrong like the ablation has.