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Women's health

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Endometriosis suffers - how are you dealing with life?

2 replies

isanyoneoutthere5 · 28/03/2025 19:24

I think I have endometriosis. Not confirmed as I’ve never had a laparoscopy (seems they’ll only do that if you’re having fertility issues, and I’ve never TTC)

But I’ve suffered from bleeding between periods since I was 18 (now mid 30s). Sometimes I bleed through my clothes on period. Sometimes the pain in my uterus and legs is excruciating I have to lie in a bath for hours.

Blood tests don’t show anything that would cause it (I’m anaemic, likely due to the bleeding). A transvaginal scan found a little fibroid. The only way to really know is to look inside me. I’ve had dozens and dozens of appointments. If I’m lucky I have a week without bleeding.

I’m suffering almost everyday and I’m sure it’s related. I’m dizzy more days than not. I feel I’m going to faint. I’m exhausted. I sleep for 10+ hours a night and still knackered.

I work from home most of the time (have done since covid) but the office days take a lot out of me. I’m worried about how I’m going to survive for the rest of my working life like this as I get older. I have another 25 years or so of menstruating. I want to progress my career but I don’t think I can cope with more office days.

can anyone relate and how the hell do you cope.

OP posts:
ChateauProvence · 29/03/2025 06:16

Hi not sure this is going to help but the only thing that helpes me was the lap to have it removed.
i have now been symptom free for 9 years -
can you not say you are TTC if that’s the only
way they will help you?

it is scandalous women are left like this

Kateeeeeee · 29/03/2025 06:20

isanyoneoutthere5 · 28/03/2025 19:24

I think I have endometriosis. Not confirmed as I’ve never had a laparoscopy (seems they’ll only do that if you’re having fertility issues, and I’ve never TTC)

But I’ve suffered from bleeding between periods since I was 18 (now mid 30s). Sometimes I bleed through my clothes on period. Sometimes the pain in my uterus and legs is excruciating I have to lie in a bath for hours.

Blood tests don’t show anything that would cause it (I’m anaemic, likely due to the bleeding). A transvaginal scan found a little fibroid. The only way to really know is to look inside me. I’ve had dozens and dozens of appointments. If I’m lucky I have a week without bleeding.

I’m suffering almost everyday and I’m sure it’s related. I’m dizzy more days than not. I feel I’m going to faint. I’m exhausted. I sleep for 10+ hours a night and still knackered.

I work from home most of the time (have done since covid) but the office days take a lot out of me. I’m worried about how I’m going to survive for the rest of my working life like this as I get older. I have another 25 years or so of menstruating. I want to progress my career but I don’t think I can cope with more office days.

can anyone relate and how the hell do you cope.

You have to push for it. Keep pestering your GP.
My sister did and she found out she had stage 4 Endo along with other issues.

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