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Fiberoids causing heavy periods

3 replies

Ghat55 · 03/03/2025 22:30

Hi All I have 3 fiberoids the largest at 9cm, they have caused v v v heavy periods. I can't leave the house kind of heavy. I'm severely aneimic and have ibs so can't take any iron pills. I got an iron infusion on the nhs but had a bad reaction. I'm late 40s BTW, so not looking for more kids.

The NHS are faffing around with the anemia and stopping my periods with drugs / hormones

What can I do with my fiberoids? What were your experiences with someone private. The NHS say there's nothing they can do for the fiberoids except historectomy if all else fails. I know that's about cost / procedure there are loads of treatments for large fiberoids out there.

Can you give me your personal experiences did you have them removed? Ablation? There are also treatments in America that are completely non invasive for large fiberoids... any personal experiences pls. I'm cambridge / bristol based but can get to london too.

Tia

OP posts:
HRHPRINCESSOFFLUFF · 03/03/2025 22:41

Had fibroids removed privately, not keyhole, had a hysterectomy 12 years later as they came back. Also private, no idea what the NHS wait list was like at the time.

iamnotalemon · 03/03/2025 22:51

I'm not much help I'm afraid. All the NHS did was give me tranexamic acid to reduce the bleeding. I didn't even know I had fibroids until I moved to another country. I had them removed via surgery but 5 years later and they've grown back.

Ladymuck2022 · 04/03/2025 00:05

When I had a brief consultation private they said the same as nhs. A coil (which I later found out can help heavy periods)

Other than that they just medicalise it with HRT and it’s an ugly fight to get taken seriously. It came up why was I on HRT with having periods recently during a medication review, so painful, literally within hours the next thing that comes back to life prominent on the record again is the first private scan after the nhs tried to tell me and wrote up discharge paperwork that I didn’t have a fibroid following hysteroscopy under ga. Two private scans later 6 months apart revealed otherwise. But to be fair even the last private sonographer was of the mindset to leave alone, despite it causing symptoms. Now being masked by HRT.

I had a cousin have a fibroid removed privately when it got to a very big size.

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