Fullness in Endometrium found

[HelpWanted1234]

Hi

I am hoping someone can help me or hopefully reassure me. Feeling equally upset and let down right now.

At the beginning of the year I started experiencing some nasty symptoms with my stomach, hips and back, including awfully heavy menstrual bleeding.

Tests and ultrasounds later found a small stone in my kidney and thickened uterine lining of 16.4mm and fluid trapped. The Doctor then sent me on the 2WPW however the Gynaecologist threw this out citing I was too young. For context I'm late 30's but regardless, using age is a pathetic excuse.

Anyway symptoms continued and I have to take medication to reduce my bleeding during my periods, if I didn't flood (sorry).

I finally got my Urologist referall who arranged a CT scan to rule out any abnormalities and to see if the stone had grown or passed. Good news on both; no abnormalities in the upper tract and kidney stone has passed.

However there was a noticeable fullness found in the endometrium and has recommended further gynaelogical investigation.

This has upset me. I am waiting to see if they can tell me how thick it now is but the Gynaecologist just won't accept my referral due to my age.

I suffer with health anxiety which generallly I can control, but things like this trigger me. I am also a lone parent to a young SEN child. Unknowns surrounding my health creates such worry

Thanks

Hopeful bump 🙏🏻

I was diagnosed with endometrial hyperplasia after they found a thickened lining. They did a biopsy and found polyps, then did a polypectomy & D&C and biopsied that. That final biopsy confirmed the hyperplasia.

There are treatments (pills) but as I'm 41 and done having kids, I opted for a total hysterectomy (leaving my ovaries).

I'm 5 weeks post-op now. Got word back that the biopsy of the uterus was all good too.

If possible, ask for a biopsy (or hysteroscopy). They're relatively quick and should give you a better idea of what's going on.

FWIW mine was 18mm and my period started 10 days later so it was likely thicker than that the day my period started.

Hope all goes well op

Thank you, though I am unsure how to get past the Gynaecologist denying the referral.

Tonight my anxiety is bad, as is the pain but I have started my period so the first few days knock me sick.

I just want to know what is going on. Receiving this letter has really worried me, especially as it was picked up on an unrelated scan. My GP hasn't received the letter yet so I haven't been able to book an appointment with them.

Honestly it's worrying me so much. I've read that lining over 10mm has to be looked in to. Earlier in the year mine was over 16mm but this was ignored

Thanks for the responses. I feel really sad tonight. Probably due to worry

Sorry to hear what you're going through @HelpWanted1234. I am experiencing similar symptoms and have given up and gone private. A scan where they confirm the thickness of your lining etc is costly but not as bad as I feared, though I totally get these things are subjective. Could that be an option for you?

@mumwithallthebooks please can I ask the approx costs?

Today I have sharp stabbing pains all around my pelvis, back and legs. Pain is also travelling up to my mid chest

An initial consultation is £310 then I think £280 for consultations after that. A scan is £350. Inpatient care for something like a hysterectomy is more like 13 or 14K so it climbs steeply but at the lower end is more financially manageable. Like you, I have a lot of pain and I just needed some answers.

Sorry for my delay in responding. Everything seems to be going wrong at the moment.

Unfortunately I wouldn't be able to meet those sort of costs so it looks like a wait for me. Does anyone know what I can do to get this taken seriously?

I feel im keeping my upset inside. I can't show I'm scared because I'm relied on too much, especially by my child. But i am scared.

I remember when I went to the doctors initially at the start of the year. My scans and results were turned around in the space of 4 weeks, and though I was worried following the doctors advice that I needed to be referred as my ultrasounds need further investigation, I remained hopeful I would have been seen quickly. Then the Gynaecologist threw out my referral which I complained about then just had to accept their stance. It was chased one more time but ive not heard anything since.

But now this has been flagged again, 9 months on a scan for a different area it has worried me. My stomach is always uncomfortable but it is really bad at the moment. My period this time is also really strange, it's taking ages to fully start

I am sure there must be a complaints route. Maybe someone from a medical background can advise?

@HelpWanted1234 did this resolve ? Do you know what it was

State patient choice and ask for the referral to be with a different gynaecologist

Nope, I'm still waiting to be see despite symptoms worsening

@HelpWanted1234 thst is awful can you go private ?

@HelpWanted1234 what symptoms do you have can you not go to A&E