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Women's health

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Hysteroscopy BBC Story

36 replies

IVFWarrior40 · 19/09/2024 09:26

Morning all, I have just been watching the BBC news, and in particular a story about the horror of painful hysteroscopy procedures.
This story really hit a nerve with me and I felt compelled to connect with others who have been through this.

Back in 2014 I was about to embark on my IVF journey when a scan revealed suspected polyps in my uterus. I was referred for a Hysteroscopy. I was told that it would be very straightforward and I wouldn’t feel any pain but it might feel a little discomfort.
My experience was quite the opposite.
It was the most painful thing I have ever had to go through (and I have been through child birth). Like the lady on the news said, it did feel like a form of torture. I remember gritting my teeth through the entire thing and squeezing the nurse’s hand so hard she had to ask me to stop. I was close to passing out with the pain.

At no point was I told that stopping the procedure was an option. In my head I knew this had to happen in order for me to have a chance of having my own child. I was desperate and would do anything to make that happen. I guessed I assumed this was the normal way to feel during the procedure so I accepted it and fought on.

I do not accept what the consultant on the news was saying. She calmly said that patients can ask for their procedures to be stopped at anytime. Clearly she has no idea what women in these positions are going through. I endured the pain because I felt I had no choice. This is what I had to do to have a chance of baby. St at no time did the consultant performing the operation recognise I was in pain and ask if I wanted to stop. This aside, I shouldn’t have had to endure that horrendous pain. A simple anaesthetic would have taken the pain away.

Women are already going through enough mental anguish, worry and anxiety for many reasons when they attend for a Hysteroscopy. They don’t need the added physical trauma this procedure inflicts, especially when it can be so avoidable.

I remember being taken to the recovery room. My husband came in and I just burst into tears.

I made a complaint to the hospital. The feedback was that during the procedure I could have asked for it to be stopped. I was so angry.

This was 10 years ago but this story has really struck a nerve with me. I can’t believe that this is still happening to women ten years on. Are we still living in the dark ages? Just horrible. ☹️

OP posts:
IsletsOfLangerhans · 20/09/2024 08:03

I’ve had two. First one was okay - painful when they removed polyps and took a biopsy, but only a brief pain. I have a fairly high pain threshold, so assumed this was why. Second one was horrendous. I was having a wayward coil removed, plus more polyps removed and another biopsy. I had taken painkillers, as before, but as this was fairly recent (and there had been more public discussion about providing better pain relief) I was expecting gas and air to be offered. Nope. And then once they had me up on the chair, cervix cranked open, they couldn’t get the camera to work. Took ages to sort it out. I ended up in agony, crying and then vomited after the procedure. Barbaric is the word I use to describe my experience.

I think there are so many variables that can affect women’s experience of this procedure; levels of anxiety, relying on the patient to take pain relief beforehand, pain threshold, the specific procedure being carried out, the skill of the doctor etc. Some people are okay (as I was the first time). But anyone who wants it under GA should have no issues when requesting this. And if women choose to have it with a local, then extra pain relief options should be the norm. Plus the option to stop at any time, without being ‘encouraged’ to continue.

Carsong · 20/09/2024 08:19

Yes, the local anaesthetic, gas & air, being advised when to take a few extra puffs, was key to my experience being good and being able to avoid a general. I don’t think I’d have coped without it.

Princessfluffy · 20/09/2024 08:21

Women's pain is not taken seriously.
They could actually do some research and then they could screen women to predict beforehand who will find the pain intolerable. Medical research on stuff that relates to women and doesn't involve someone making vast sums from a drug isn't popular though.

See also lack of progress in all women's health and in obstetrics. Also, drugs and medical equipment are usually primarily designed for and tested on men and not women. Pretty much everything, medical and non medical, is designed for men.

miltown · 20/09/2024 08:29

I have stenosis of the cervix which was discovered when I was having infertility treatment. Doctors were unable to pass the tube through my cervix and it was very painful when they tried, although I did have gas and air for pain relief.

So I had to have my cervix dilated under general anaesthetic before they could perform anything that involved passing a tube into womb via my cervix (including IVF treatment).

Mydoglovescheese · 20/09/2024 08:39

I've had 3 different medical procedures, including hysteroscopy, where sedation/GA is an option. For all 3 procedures I was 'encouraged' to go ahead without sedation/GA and each time suffered severe pain. I think that I have a good pain threshold so it's not just me being a wimp.

Now if I have to have a procedure which has the option of sedation/GA I always ask for it even if it looks as though I'm overreacting.

CherryogDog · 20/09/2024 09:16

Long story short, I had a small bit of bleeding 12 years post surgical menopause.
I have vaginal atrophy and a bladder prolapse, smears are agonising.
Male Doc attempted a Pipelle biopsy, stopped as soon as I told him it was too painful.
Rearranged for what I thought was a 2nd attempt, I took naproxen and diazapam beforehand. Didn't know the female doc was attempting a hysteroscopy until she said I may feel some discomfort from the water going in.
It was the worse pain I'd ever experienced. I was screaming at her to stop, swearing my head off, she wouldn't stop until the nurse told her to.
I was left with my legs up, unable to get them down because of my hip arthritis while they chatted at the desk about lunch breaks ffs.
The amount of blood on the floor was unreal, I bled for days afterwards.
I went to get dressed, just left, no checking if I was OK.
When she was writing out my referral for the GA, she had the gall to say that the cannula would hurt far more than the hysteroscopy. I've had 11 GAs.
When I complained, I was told that (despite me telling her about my atrophy and prolapse) that the doc thought I'd be fine as I'd had 2 big babies.
The lack of informed consent was just ignored.
I've got a routine smear booked for next week and I'm dreading it.

Grumpsy · 20/09/2024 09:20

I had one a couple of years ago, it was under GA. It wasn’t offered any other way, and to be honest I’m glad. It should be the standard of care for this procedure

BridgetRandomfuck · 20/09/2024 09:41

I had to have one five years ago, and this is why I insisted on GA! I also insisted on it when I had to have a loop excision in my early 30s to remove pre-cancerous cells, even though the doctor was telling me that having a local anaesthetic injected into my cervix was no different to having it injected into my gums at the dentist - I beg to differ! I think it's utterly barbaric that women are expected to have painful, invasive procedures without proper pain relief. Luckily I was given GA on both occasions without difficulty - I don't really care if the doctors thought I was a wimp or anything. I would pay privately rather than go through anything like that.

rainfallpurevividcat · 20/09/2024 09:51

I would refuse to have one without a GA or adequate pain relief from everything I've heard. I've never heard of anyone saying they found it straightforward and pain free. People don't have a D&C without sedation/anaesthetic, why would anyone imagine that you wouldn't find someone scraping at your insides painful?

It really upsets me that most women having this done are having painful symptoms to start with and their wombs are obviously already very tender- it's so absolutely obvious that it is going to hurt a lot!

JustFrustrated · 20/09/2024 09:55

I actually posted about this on FB last night.
My STBXH was with me for my last procedure, and despite the fact even then we were in the middle of a divorce, he felt sick watching it. And he watched me give birth.

I've basically copied the post because I CBA to write it all out, I've not covered the horrendous smears or anything like that really. Which is a piss take because I've had some procedures done privately (internal scans and a pessary fitted which were pain free)

Over the years I've had some procedures. Let's exclude pregnancy and the dignity loss that comes there.

I had a LLETZ procedure, which if you don't know, involves using a large looped piece of wire to remove abnormal cells from the cervix. I had a local anaesthetic.

Now, the cells that were abnormal were the type that would/could turn into Cancer if left. You know, the type that kills people. So not only did I have that stress and worry. I also had the sheer pain of the procedure. The local anaesthetic itself was painful enough. And despite my telling them, repeatedly, it hurt and I could feel it, I was ignored and made to feel like a fuss pot. I could barely walk afterwards or stand up straight.

I had a copper coil fitted. After two children. "pain free" they told me. The insertion was agony. I remember laying there in the doctor's office, sobbing as they put it in me. It had to be removed 8 weeks later because it migrated. The doctor herself told me after "I know it hurts, if we were honest about the pain, no woman would do it. I won't."

A few weeks (months?) ago I was being investigated for cervical/ovarian cancer. I was terrified.. obviously. (Also all clear) During the investigation they found something and treated it there and then. This time I didn't sob. I just sat there, in stirrups silently crying as they cauterized me and then poured silver nitrate onto the raw wound.

I've had numerous internal scans, where the operator forgets there is a human at the other side and waves that wand and shoves it at all angles whilst telling you to "breathe".

Women who have Caesarean sections are sent home with no pain relief. Fuck that fact they've just had major abdominal surgery. Major. They don't require anything more than OTC paracetamol apparently.

Womens healthcare is barbaric and medieval. The "caregivers" forget that things are more painful and even in different locations depending on where we are in our cycle. (Recalling one smear where they couldn't find my cervix because it was tilted, instead of giving up they kept forcing that speculum in)

There needs a massive overhaul and better "guidance" all anaesthesia options should be offered at the point of booking a procedure. It shouldn't be up to women to ask.

I have another procedure due, one which involves feeding a laser into my uterous and burning all the lining... Under a local. No thanks, I'll be asking for sedation.

No one talks about these things because "they're private" or "embarrassing" but it's about time we did. Female health is essential. On a societal level it costs billions a year, on a personal level it can and does lead to premature death.

Vinvertebrate · 20/09/2024 10:03

The biggest irony for me was going to a second (female) consultant privately after the first (male) consultant told me the pain would be tolerable and left his nurse to get on with it. (He came back in when he heard me screaming like a banshee). The private consultant actually shuddered and said there was no way she'd ever have a hysteroscopy without GA. But it's okay for NHS patients because....?

I am now under a different hospital in another part of the country and they have no issue with agreeing to GA, thankfully. However, I am sure they still "sell" hysteroscopy initially as a tolerable procedure, when it so often isn't.

I have zero problem with smears, canulas, injections, dentistry etc so it's not like I am some delicate flower!

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