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Women's health

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Adenomyosis plus polyps - anyone else?

10 replies

Mykittensmittens · 11/04/2024 15:17

Backstory:
mirena removed 7 years ago as DH had had successful vasectomy - I’d had it in 4 years and found it great. I seem to recall some bleeding for a couple of weeks after insertion but it settled swiftly.

since then I’ve had no hormonal intervention of any kind - and also since then my DM has had oestrogen receptive breast cancer so have been advised to avoid this or at least to be careful considering any options relating to additional oestrogen myself.

very gradually my periods have got worse and worse. No pain whatsoever but heavy bleeding, headaches and then also anaemia symptoms which are not pleasant - hair loss including all the hair on my arms, thinning elsewhere, permanently cold, fatigued, foggy, breathless, pale, muscle twitches etc.

eventually the dr said I am indeed anaemic - ferritin level is 10 and I have been on a supplement for 6 weeks now and due to have repeat bloods next week. Symptoms have only marginally improved (hair loss is far less obvious) but on my period and just after I still feel horrendous - no energy whatsoever and beyond exhausted.

I have flooding and passing clots, changing several times during the night, I travel with work and trains and long meetings are really stressful.

I had a private scan yesterday under the instruction of a gynaecologist. The sonographer was very good (the scan was 40 minutes) and he explained during and after the scan that I have ‘quite common and not overly concerning’ adenomyosis and a polyp. He didn’t explain the degree of the adenomyosis or the size of the polyp but said the gynaecologist would do this at follow up which is next Thursday. I asked if either of those would prohibit the fitting of a new mirena, as that was the prior ‘likely path’ suggested by the gynae, and the sonographer said no - in all likelihood I would be offered a hysteroscopy where the gynaecologist would remove the polyp and insert the mirena at the same time.

has anyone had similar? I’m wondering about the after effects of this - I’m very lucky to have insurance and therefore hopefully some choices over when to do this. I’m away on holiday at the end of May and no way can I cope with periods like I have. On previous years I’ve taken Norethisterone but I don’t know if I can now as my periods are so irregular, I wouldn’t know when to start taking it. I’m wondering if I should ask to go on the progesterone only pill for 2 months and have the surgery and mirena when I get back? Or should I push to have it asap and hope it all calms down in the intervening time?

I was on day 2 of my period yesterday so had to have the scan whilst absolutely flooding - it was horrible. And today I’m so exhausted I just want to go to bed. I’m absolutely fed up of this and just want it over!

OP posts:
Mykittensmittens · 11/04/2024 15:18

I’m 51 if that makes any difference!

OP posts:
Artepka · 24/05/2024 20:33

Hi, hope you are well? I had an ultrasound and the same with you, they found adenomyosis and a polyp. Can I ask how did you decide? What treatment were you offered?

BatshitCrazyWoman · 24/05/2024 20:38

I have adenomyosis and had a polyp. I had a hysteroscopy, polyp removal (although my discharge notes said fibroid??) and an endometrial biopsy. Had a Mirena fitted at the same time.

(Unfortunately I bled (period like bleeding with cramps) for the three months I had the Mirena, hated it and had it removed).

Artepka · 24/05/2024 20:44

I am so sorry to hear it and thank you very much for your reply. I am having MRI in June to get more detailed info. I was told that one option could possibly be exactly what you did and the other hysterectomy. I am lucky to have two kids so would possibly consider it.

Mykittensmittens · 01/06/2024 19:33

Sorry @Artepka ive only just seen your response.

I have also been told if this doesn’t work I could opt to have a hysterectomy. I am going to try the hysteroscopy first purely to try the least invasive way. I’ve had a mirena before, a few years ago, and it was fine for me so hoping it will settle quickly. If it does not I will go down the hysterectomy route.

OP posts:
AttilaTheMeerkat · 01/06/2024 19:55

I would seriously consider having the hysteroscopy done under general anaesthetic rather than a local. I’ve had a couple of uterine polyps removed and there is no way I would consider having them
removed under local.

Mykittensmittens · 01/06/2024 21:07

Thanks @AttilaTheMeerkat - all booked in and pre-op next week.

OP posts:
MaryFuckingFerguson · 01/06/2024 21:11

I’m 52 and have both, plus an ovarian cyst. Only found out about 2 years ago (apart from polyp which I’ve known about for 25 years).

Horrifically heavy periods were sorted by Mirena.

Artepka · 07/06/2024 07:07

Thank you @Mykittensmittens , also only now reading, apologies. Hope you are doing well? Have you had anything done? I had MRI on Tuesday and seeing the consultant next week so I guess best to see based on the MRI. My biggest issue is daily cramping that is getting worse but who knows what causes it.

Artepka · 07/06/2024 07:12

Thank you @MaryFuckingFerguson and glad the bleeding has been sorted. Interesting they kept the polyp in.

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