Graves’ disease / hyperthyroid meds not working

[damee]

Hi everyone

I’ve been taking meds the last few months for my hyperthyroid due to having Graves’ disease and was experiencing thyrotoxicosis and unfortunately meds aren’t working, I’m actually postpartum now 3 weeks and I feel worst then ever. My thyroid levels have actually gone up again since giving birth despite being on meds!! What happens if meds do not work? I have my next endocrinology appointment shortly and I’m honestly so anxious what to expect as far as what they’ll suggest if the meds still aren’t working (another symptom I’ve been having is my anxiety absolutely being through the roof at the minute)!

Some of your anxiety, as well as recent childbirth and parenthood, is secondary to high levels of thyroxine so when you are sorted out you will feel better.
There may be scope for increasing your carbimazole, that will depend on your endocrinologist but if it doesn't settle part or all of your thyroid may be removed surgically. Try not to worry, I am sure you are in good hands and this is an eminently treatable condition

Graves’ disease makes you anxious and is one of the listed symptoms.

how are you now? Are you taking carbinazole (sp?)

I have the same condition.
The medication took a long time to work for me.
What are you taking and what dose?
What symptoms do you have?
Do you have details of your blood results?
The initial dose of carbinazole I was given by my GP was too low. Only when I saw a private Consultant was this rectified. Some people are actually naturally immune to the drug. There is an alternative tablet. Don’t be rushed into any major surgery as there are people who are not suitable for this type of ‘solution.’
I eventually ended up seeing a private endocrinologist as I initially was diagnosed during the first lockdown. The NHS consultant I first saw was pushing for me to have the radioactive drink. This is not always successful and does come with a risk of developing cancers. I said I would think about this. No further appointment came so 18 months later I paid £150 plus VAT to go private once only.
This Consultant discussed my medical history and the fact I had the eye disease that usually comes hand in hand made me unsuitable for this sort of treatment. He doubled my dose of meds too and explained that carbinazole can take a long time to work. Six months later I started to see results. My levels are still high but I’m much better. Ive put weight on and the itching and insomnia are now manageable. It’s not a quick fix OP despite what I was led to believe unfortunately.