Hi, this is my first thread as I can't seem to find help with what I need and feel like I'm going mad.
Bit of background, I'm 32 with 2 children. Straight forward conception and births. After second child I decided to start contraception- implant in my arm which was a nightmare so had that removed and then copper coil inserted. I had trouble with this for a few years with periods getting worse, pain during and after sex, lots of back pain, fatigue etc. I had been going to the doctors and was referred to gynae team. Ultrasounds showed cyst on my left ovary which gradually got bigger but I was told it's fine and I don't need to worry about it. Then had coil removed to see if that helps- spoiler alert, it didnt.
Had an MRI in May 2022 but didn't get results until a routine follow up a year later where they informed me I had severe deep endometriosis and they offered me prostap injections to put me into menopause to try and stop the lesions getting worse whilst I waited for surgery. I started the prostap and have had the monthly injections since March 2023. In June I was given HRT as the menopause was a nightmare. I was also put on waiting list as my pain is really bad in my lower back, hips and just knocks me off my feet.
The strange thing is that I still have periods and irregular bleeding. I have trouble with opening my bowels and even passing wind now. Recurrent urine infections too.
I discussed this with gynae and was told that the endo has basically glue my ovary to my bowels and is all around the bowels which is why its causing me issues going to the toilet. Surgery obviously has the risk of ending up with a stoma.
Last appointment on Wednesday when I thought it would be about surgery risks and consent actually went different. The gynae said she wanted to do a urine test which showed that I had protein and blood in my urine. I knew about the blood in urine and had mentioned that to them. Gynae asked nurse to send the sample to lab but nurse said she had already binned it.
Then the gyna dr wanted to do a uterine biopsy. I said yes, and this was done there and then with no anaesthetic. I was told she is not worried as I'm not overweight, have had children etc.
I just wanted to know how other people have managed this sort of 'care'? I've been fobbed off over and over again and just feel like a Guinea pig. Since the biopsy I've had tenderness and pain. Some bleeding too.
Generally feeling fed up and exhausted.
Also, I'm confused as to why they said its endometriosis without doing a laparoscopy? Has anyone had similar experiences? How did it work out for you?
I feel like this constant pain is taking over life and I'm off sick from work after having had to cut my hours down to part time and still struggling to get on with life.
Will the biopsy be normal? Should I contact them or expect no news is good news although that wasn't the case with the MRI.