High cancer marker results

[sisenoritasi]

Hello.

I have been having various ongoing symptoms for around a year and I had googled the symptoms together last month. They suggested ovarian cancer.

I'm 31 with two very young children and I assumed that it couldn't possibly be. I contacted my GP nonetheless and they wrote it off. After pushing a few weeks later, they agreed to a blood test.

My results came back this morning and I have a very high level of CA125. Google has sent me into a frenzy, as prognosis does not look good.

Of course further tests are now going to be carried out including an ultrasound as a matter of urgency.

I am worried out of my mind. I feel so sick at the thought of my poor babies having to endure mummy potentially being unwell. And perhaps worse.

I guess I just wanted to share here because I'm not ready to speak about it with 'real' people. I don't want to jump to conclusions just yet but it doesn't seem very positive.

I think I'm looking for a hand hold. Or perhaps someone who has been in a similar position and has been in limbo.

I had a lot of tests recently connected to discomfort before and during ovulation. One of the tests was the ca125 blood test which the gp warned me can be raised by a multitude of things, so not to worry if it came back high. Apparently it can be raised at certain points in your cycle,if yo7 have a cyst, endometriosis etc etc.

My test came back fine but I know that lots of women have elevated CA125 caused by nothing sinister. Please try not to worry.

I work in obs and gynae, it's easier said than done but try not to panic too much. A few things can also raise your CA-125 such as endometriosis, uterine fibroid, period, pregnancy, PID. Try to keep calm until scans have been done and you have more info.

Sending a hand hold, hugs and positive thoughts your way ❤️

Thank you both, so much. A very worrying time. But it's nice to hear a couple of reassurances.

Fingers, toes, nips, lips... anything I can cross I will cross for you OP ❤️ try to keep busy, sometimes that can help by keeping your mind off it, even if only for a few minutes respite.

What was your ca125 number?
( should be on the app)

Was it under 100 ?

Everything crossed for you! Good luck x

@worldwidetravel2017 it's not under 100.

I got told by a medic professional that over 100 / 200 are more of a worry.

Maybe its pcos
Or endometriosis
Or pelvic inflammatory disease

Fibroids can also raise it

Mines 80 this week
Varries between 50 something and 90 ish
But i have a fibroid
And likely / maybe endo...

I have a gynae appt this month

Was very scared in june but had 2 scans in july
And had colonoscopy in may
And endoscopy in august

@worldwidetravel2017 glad you're getting to the bottom of things with your appointments. I'm on the wrong side of 200.

So sorry - i misread your other post .

Ca125 numbers - the numbers can go pretty high and they can work wonders nowadays

Count to 10 & sending you all the luck and positive vibes ... talk to macmillan incase if it helps - i spoke to them in june when waiting for 6 biopsy results. They were amazing

Hand hold OP. I had ovarian cancer, diagnosed at 32 with a newborn baby. The limbo period between ‘you might have cancer’, diagnostic tests and then ‘you don’t/ do have cancer’ is horrific, I still remember that month vividly. My child was a few months old and was a toddler when my treatment finished; in hindsight it was a blessing (some blessing!) she was so young as she remembers almost nothing of it now, but did start to get upset at some things near the end as she was older. I was diagnosed at a very late stage - stage 3c - but am just coming up to my 10 year ‘cancer free’ check up soon! And now, the treatment options have advanced even further in the past 10 years so don’t lose hope! That is, if it is even ovarian cancer at all - there are other things that can cause high ca125 (once for me, a cracked rib and chest infection!).

If you want to get in touch via private message, please do.

@EweCee this is fantastic. I can't even imagine going through that with a newborn baby! You truly are amazing.

I'm keeping everything crossed but with such a high number and the way my body feels, I think I know deep down that the news won't be what I'm hoping for.

But stories like yours give others so much hope. Stage 3C is advanced - so to say that you're now coming up for ten years cancer free is quite the achievement. Wishing you many, many more!

@worldwidetravel2017 thank you for this advice! I feel like a fraud in the first instance because nothing has been confirmed but I've heard very good things about their support and so I shall definitely seek them out if required!

Here's hoping there's something else going on to give such a high reading. My husband would like to go for a private ultrasound in the first instance and I shall keep you updated on this thread. You've been so kind.

Everything crossed for you

Always here for u to moan or rant

My dads god father ( & a fam member) beat a 'bad - cancer

Hi. I'm in the same boat. CA125 of over 200. Just had transvaginal scan and awaiting results.

Main symptoms are occasional spotting and bloating. I have adenomyosis and recently had a hysteroscopy to remove a polyp and insert the mirena coil.

Sonographer said today that mirena coil is lying a bit low in my uterus and she is recommending removing it. She also said that my ovaries looked "fine" but I am still terrified until I know for sure.

Other thing is bloods were taken on my period which isn't recommended (no one told me this), so am hoping it's high due to period or even endometriosis.

But I am holding your hand OP and I jope you can hold mine too! All the worst thoughts are going through my head. I have no living parents but a wonderful extended family, along with my DH (who is I think trying to hide his fear). I have one DS who is 17 and doing his final year of A Levels. I need to stay strong whatever happens. We are all praying for good news and, if you don't mind, I'll keep you in my prayers too OP.

Best of luck with it. I'll update you when I know more and I hope to hear good news from you too.

You can PM too if you'd like.

Momes been high for 9 years but i have fibroids. Still scared me when i get my bloods done. Doctor not concernrd .. just says in absence of other symtoms like bloating they arent worried and always band about the 300 plus figure.
I really hope you are ok. Xxx