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Women's health

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Finally had Laparoscopy to exclude Endo. Not sure how I feel 🥺

6 replies

Redandpinkstripes · 16/08/2023 14:45

I have posted loads on here about my situation with crohnic pelvic pain and multiple symptoms. I finally had my laparoscopy procedure and it's not Endometriosis. They have said it is looking like Adenomyosis as I have a globular uterus, but the only way to confirm diagnosis is histology after the cervix is removed. They weren't concerned about my fibroid (size of a large orange) as it wasn't mentioned, even though I did bring it up.I feel flat tbh. They've also asked my gp to look for other sources of pain?
I am seeing the consultant it 3 months. It was hard to take it all in, as I literally opened my eyes and they were giving me the results. Will I get a more detailed letter in the post?
Thank you for taking the time to read this xxx

OP posts:
kitty1993 · 16/08/2023 15:03

Hey, sorry you are going through this. It's well known that endo and adeno are very misunderstood even by "professionals". Was your surgery carried out by a specialist? And I really mean a specialist! Because sadly a lot of gynaecology surgeons just aren't skilled enough to understand or diagnose the disease sufficiently.

You have every right to ask and be fully informed of the surgery and they should be giving you a detailed report of what they found/did. I would ask them to clarify that this will definitely be provided to you. If you are a Facebook user I would search Nancy's nook and request to join. There is so much information on there which you would likely find useful- especially when looking for alternative causes of pelvic pain xx

AttilaTheMeerkat · 16/08/2023 16:01

"It was hard to take it all in, as I literally opened my eyes and they were giving me the results".

Absolutely awful.

If this operation was performed in a NHS hospital I would certainly complain to PALS (patient liaison). You should not be given vast detail in the recovery room post surgery; its poor practice on the part of the hospital. You should also have a follow up appointment far sooner than in three months time too, again take this up with PALS.

Redandpinkstripes · 16/08/2023 16:56

Thank you for your replies. This has been going on for nearly 2 years 🥺 I feel so vulnerable and not believed. The pain is so debilitating. I am 48.
I'm just not sure what/who to believe. I said again after I started coming round that I hadn't absorbed what had been said to me. I was told a more detailed report would follow and a 3 month follow-up was normal.

OP posts:
AttilaTheMeerkat · 16/08/2023 21:29

As mentioned I would complain to PALS if this operation was performed in a NHS hospital. A three month follow up as well is not acceptable either.

Redandpinkstripes · 20/08/2023 17:58

Is there any guidance to back that up about the 3 months. I feel bad as I was expedited already

OP posts:
AttilaTheMeerkat · 20/08/2023 19:39

Look at the NICE guidelines.

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