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Original poster

At wits end... I won't stop bleeding

80 replies

CinnamonSwirl82 · 02/08/2023 10:50

I feel I need to vent. I'm so defeated. I don't know what's wrong with me and the doctors keep telling me nothings wrong and my tests are normal.

I've been bleeding constantly since Oct 2022. Not even light spotting, or here and there. Its just constant. Constant heavy bleeding.

I'm tired. I feel so drained I struggle to get up on a morning. I'm waking 3 times minimum each night to change myself so I don't leak everywhere. I've ruined our new mattress to which I feel awful but DH keeps telling me it's fine and stop stressing. I can't stop though because I'm so tired and cranky and I feel guilty.

I've had scans done and nothing wrong shows so doctors tell me I'm fine. They've tried taking blood but can't get any out of me (I've probably ran out 🙄). I've been prescribed norethisterone which does stop the bleeding after a week, but as soon as I stop taking it, it comes back and it doesn't stop.

I've had problems with my periods & cycle since I was 12; I'm 30 now. I've been in and out of hospital, 3 investigative surgeries, tried every form of contraception and nothing works, I bleed through everything. I tried norethisterone for 3 months and ended up bleeding so heavily through that to the point I was hospitalised and had liver damage.

I'm at the point I can't see any end to this other than taking my life. A hysterectomy is out of the question for doctors because I've not had kids, despite trying for them for 8 years with 4 failed rounds of fertility treatment.

What do I do. I'm so lonely in this and I'm stuck and I love my life but I can't keep living like this.

OP posts:
EKGEMS · 23/01/2024 00:25

This is heartbreaking and horrifying-I am so very sorry for you, OP! My son is severely disabled due to medical neglect as a newborn and will never have an independent life. We have come so far with medical science but stories like yours and my son reveal it is an art

rolar · 23/01/2024 14:14

I read this thread a couple of days ago, as I have been desperate googling, as I too have been bleeding (heavily) for a long time now, like you I keep being pushed into the coil or accused of having anxiety and no help apart from that.
I am furious for you at all the failings and that you had to go private to get any type of progress in finding out the problem and I'm so sorry you will still have the pain.
I think like you, I am going to have to save up and go private, my whole existence at the moment is just bleeding, cant go anywhere, cant do anything., I am so sorry for you, its just awful isn't it, bleeding, tired, in pain and then you have to keep thinking "am i crazy/am i imagining it" because that's the narrative pushed.

Original poster
CinnamonSwirl82 · 23/01/2024 15:50

rolar · 23/01/2024 14:14

I read this thread a couple of days ago, as I have been desperate googling, as I too have been bleeding (heavily) for a long time now, like you I keep being pushed into the coil or accused of having anxiety and no help apart from that.
I am furious for you at all the failings and that you had to go private to get any type of progress in finding out the problem and I'm so sorry you will still have the pain.
I think like you, I am going to have to save up and go private, my whole existence at the moment is just bleeding, cant go anywhere, cant do anything., I am so sorry for you, its just awful isn't it, bleeding, tired, in pain and then you have to keep thinking "am i crazy/am i imagining it" because that's the narrative pushed.

Edited

Sorry to hear you're suffering too. Only advice I can give is be careful of which private doctor you go to as some also work NHS and are equally useless. If you're anywhere near Derby I highly recommend mine. She's the first one who listened and took symptoms seriously, irrelevant of whatever bullshit other doctors had said.

OP posts:
Motnight · 23/01/2024 15:57

Op I am so sorry that this has happened to you.

rolar · 26/01/2024 10:36

CinnamonSwirl82 · 23/01/2024 15:50

Sorry to hear you're suffering too. Only advice I can give is be careful of which private doctor you go to as some also work NHS and are equally useless. If you're anywhere near Derby I highly recommend mine. She's the first one who listened and took symptoms seriously, irrelevant of whatever bullshit other doctors had said.

Show quote history

Nowhere near sadly, up in Scotland. Just went to gp (again) yet another norethisterone prescriptio, came home, was only out an hour and overnight period pants completely soaked and a huge clots. So over it.

Going to have a good research today for any recommendations.
Thank you so much for updating this thread, I’ve been reading so many mumsnet and Reddit threads about people in the same boat and while I wouldn’t wish it on anyone being able to read their experiences and what they did to get help has been very helpful to me (but I wish none of us were going through it!)

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