Wanted to add a note here in case it helps ease anyone anxious over high CA125…. I mean high as in hundreds. Posting this because we found little reassurance online.
A little knowledge is a dangerous thing, so wait for the experts to do their tests and scans. My wife had pelvic pain, and not much else, but CA125 of 330. It was easy for us to conclude cancer as likely because our research showed that many benign conditions have the figure high but nowhere near that high (usually 10-50 ish). Other findings showed readings like 1000+ can be endometriosis. I even found studies and graphs showing how it was rare (but not impossible) for CA125 in the hundreds to be cysts.
Long story short… my wife’s age, other symptoms etc max us think it was less likely cancer, but CA125 was haunting us. It’s early days but we’re getting strong indications she has endometriosis and associated cysts, and nothing malignant… based on more blood tests for tumour markers, the usual scans and an MRI. We’re no longer on the cancer pathway it seems.
So please don’t see research, posts etc on Ca125 and assume the worst. Perhaps we are lucky? Perhaps lots of people to get lucky don’t share their experiences, but this is ours. Remember, CA125 can associate with stress. Periods. Benign conditions. It can be 10, 100, or 1000…. But it’s not in itself clinically definitive else let’s face it, there wouldn’t be a cancer pathway to explore if it is/isn’t - as the CA125 alone would suffice. Truth is, in many people with cancer, it may not even be that elevated. It also changes fast…. For all we know my wife might have read half (or double) if she repeated the test a few days later.
Go through the process, and see what they say, rather than self-diagnosing. It’s hard… I know.