Kissing ovaries and endometriosis

[Georgia2609]

Hey, I was wondering if anyone else has been told they have "kissing ovaries" and if you had endometriosis, I've suspected for years that I've had it but no doctor would listen, I had a miscarriage and then soon after got pregnant and had a successful pregnancy, I had a scan at 6 weeks and was told I have kissing ovaries and that she had a strong suspicion I had endometriosis and told me once I had the baby to go get checked, I had my baby 7 weeks ago and will be making an appointment tomorrow to try and get somewhere with this but I'm wondering what to expect and what anyone else's experience was if they've been through similar. I used to have periods every 2 weeks as well with horrendous cramping. I stopped bleeding for a week a couple weeks ago and started again and am having horrific period cramps again so definitely want to be checked out, I've tried googling but can't seem to find too much on it. Sorry for how long the post is but any input or advice would be great. Thank you!

Hi, I appreciate this is an old post but it popped up whilst I was searching on the same topic of 'kissing ovaries'. I have been diagnosed with endometriosis in the past and have two laparoscopies to remove the tissue - this was as part of the investigations into infertility. I had 3 miscarriages but went on to have a health pregnancy via IVF (I also needed immune support). Fast forward and we are trying for another baby via IVF and I was told at my scan that I have kissing ovaries. My IVF consultant didn't appear concerned but upon a little research there does appear to be a strong link between kissing ovaries and endometriosis - because it can be the adhesions that pull the ovaries together in the pouch of douglas (the space behind the uterus). This makes a lot of sense to me because I have been told previously that this was an area where tissue had been removed from. I'm just waiting to hear back from my miscarriage consultant on what this might mean for my transfer, I think it can highten the risk of miscarriage and the transfer not being successful.

I strongly recommend that you push to be seen, you have the symptoms. You would however likely need a laparoscopy to be diagnosed since my understanding is that it can't been seen on ultrasound. If you need to, I would suggest going private.

All the best and happy to help where I can x

@lookingforaholiday the timing you've replied to this is crazy! I literally went for another scan yesterday to start the process of trying to figure out what is wrong and she struggled to find my ovaries then said they're in my bum?? I've never heard of it before and couldn't even find anything about it on google, I've got to wait for my doctor to read the report and get back to me as the scanning lady said she wasn't allowed to tell me anything else

Hopefully that report you give you GP the push to refer you. I think the problem is endometriosis is not well understood and can go undiagnosed for years.

Here is a link to an article/research paper. As I mentioned, problem is I don't think it's easy to see on an ultrasound other than of course that your ovaries aren't where you would expect them to be!

I might be having a separate scan with my miscarriage specialist unless I can get the IVF clinc to send the report over - I'll let you know if I get any more useful info but I certainly think you need to push for a laparoscopy - basically investigation via key hole surgery.

Hello! This thread has been really reassuring to me, so thank you. I was diagnosed with endometriosis last year after a huge cyst burst 9 months after my daughter was born. I went for a number of scans and tests, including an MRI, but over the course of a few months, the cyst dissipated on its own and I didn’t need surgery at the time. Fast forward to now, I’ve gone back in to get re-checked after having two consecutive early miscarriages (lost at 4 weeks, meaning my period only ended up being a few days late). Today at the ultrasound, it was confirmed no cysts in the way but I do have kissing ovaries sitting in the pouch of Douglas. I’ve been advised to hold off trying to conceive again for 3-4 months and then see how it goes. Sounds like it’s not impossible to maintain a pregnancy to birth with kissing ovaries, so that’s a relief! If anyone else has any experience with this, I’d love to hear more!

@Iwantshef I also had a miscarriage before my son that I was told I have kissing ovaries with, I had the miscarriage, took 2 months off trying and got pregnant the first month we started trying again and that's how we got our little boy, I was told when you have kissing ovaries it also usually means you have "wandering ovaries" so they will move around and at some point be in the "correct" place again

Thanks Georgia that’s really reassuring, and I’m so pleased it worked out for you and your family. Hope you manage to get to the bottom of where your ovaries are off to next! None of this is very straightforward, and as you say, there doesn’t seem to be much on the internet about it either. Keep us posted and good luck!

@Iwantshef thank you! I hope you get your baby soon too