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Women's health

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Had an argument about my PCOS and weight gain

10 replies

sandandsangria · 25/03/2023 00:55

I've been in and out of hospital a lot lately due to my PCOS and high cortisol and feel my symptoms getting worse day by day.

I can't control my weight and it's fluctuating regardless of how well I've balanced my diet and exercise. It's really disheartening to be trying so hard only to feel like I'm still gaining weight.

I mentioned it to my mother and sister when they were over at mine and my mother went on a tangent about how PCOS is just an excuse for me not trying hard enough to lose the weight. As well as that, saying if I wanted to lose it so bad why didn't I swap my birthday cake last week for fruit.

I was so upset at those remarks and they really hurt so much. I was in tears for ages last night and barely able to get the words out to explain why I was in such a state to DH.

Not sure how to approach this going forward. Am I taking it to heart too much? Am I right to want to keep my distance at the moment?

OP posts:
warmmfeet · 25/03/2023 01:11

I'm so sorry that you are suffering with PCOS. It must be tough, especially requiring hospital input.

You were seeking some support from your mum and sister and you didn't deserve such a heartless response. I think it's fair enough to keep some distance for a bit, maybe she'll realise what she's said.

I had a hard time with endometriosis years back, my family were unsupportive and didn't make much effort to understand it, they thought I was trying to have a baby (I wasn't) and making a fuss etc. it hurts when family don't try to understand.

I hope DH is supportive.
Take care OP.

BreakingPointAgain · 25/03/2023 01:22

Have doctors considered cushing's disease as well as PCOS?

sandandsangria · 25/03/2023 12:15

BreakingPointAgain · 25/03/2023 01:22

Have doctors considered cushing's disease as well as PCOS?

Yes, I've been tested for it but the results won't be back for 6-8 weeks

OP posts:
Emilyanna · 26/03/2023 16:57

Have you tried inositol? I have pcos and struggled to lose weight. I could do it, but it took about three times as long to lose the weight as a healthy person would expect. It's so slow it's really demoralising. I found high levels of exercise really helpful. But the game changer is the inositol. After maybe three months my periods got regular and less painful, and I noticed it was easier to lose weight. I can now lose weight like a normal person (about 1lb a week with 500cal daily deficit). I weigh everything so I'm sure this is right. I've now managed to maintain BMI 22 for four years, whilst eating normal sized healthy meals and exercising a reasonable amount (hour a day on average).
Hope this helps! Inositol is not super expensive, and is a natural chemical which your body can make naturally, so really safe. Worth a try anyway!

TommyShelby · 26/03/2023 17:03

@Emilyanna out of curiosity - how would one get inositol? Is it on prescription or is it more like a supplement?
Did you find there were any side affects? I’m in a similar position to OP myself.

lljkk · 26/03/2023 17:18

why is the PCOS putting you in & out of hospital, OP? What treatment do you get for the PCOS while in hospital?

Emilyanna · 26/03/2023 18:54

@TommyShelby it's available anywhere, loads on Amazon. It used to be considered a B vitamin I think? So easily available. I use the powder form and mix it with water. I've never heard of anyone having side effects. I certainly don't. I took it throughout pregnancies also, and it's actually been tested on pregnant women and shown to help prevent gestational diabetes. They never test anything on pregnant women, so it must be super safe!

BIWI · 26/03/2023 18:57

I'm sorry. That must have been very hurtful Sad

As a PCOS sufferer, have you considered a low carb diet? It's supposed to be very good for dealing with the condition/weight loss

There's a piece about it here on the Diet Doctor's website that you might find useful

Top 8 reasons for a low-carb diet for PCOS — Diet Doctor

Did you know that almost all the symptoms of a common female condition called PCOS respond very well to a low-carb or ketogenic diet?

https://www.dietdoctor.com/low-carb/benefits/pcos/8-reasons

sandandsangria · 26/03/2023 20:57

lljkk · 26/03/2023 17:18

why is the PCOS putting you in & out of hospital, OP? What treatment do you get for the PCOS while in hospital?

It's been a whirlwind of different problems that have had me in and out - BP levels were concerning, suspected cyst ruptures because of intolerable pains, ultrasounds, blood tests and I have a new endocrinologist that I've had appointments with to discuss new treatment plans.

Everything I've tried so far have been unsuccessful but he's given me a lot of new options so hopefully we can settle on something that will help 🙏

OP posts:
sandandsangria · 26/03/2023 20:59

Emilyanna · 26/03/2023 16:57

Have you tried inositol? I have pcos and struggled to lose weight. I could do it, but it took about three times as long to lose the weight as a healthy person would expect. It's so slow it's really demoralising. I found high levels of exercise really helpful. But the game changer is the inositol. After maybe three months my periods got regular and less painful, and I noticed it was easier to lose weight. I can now lose weight like a normal person (about 1lb a week with 500cal daily deficit). I weigh everything so I'm sure this is right. I've now managed to maintain BMI 22 for four years, whilst eating normal sized healthy meals and exercising a reasonable amount (hour a day on average).
Hope this helps! Inositol is not super expensive, and is a natural chemical which your body can make naturally, so really safe. Worth a try anyway!

This is really helpful, thank you. I'll look into it. I bloat like a balloon even after a sip of water - got asked at work recently was I pregnant because my stomach was so swollen 😐

I was on metformin but had to come off it because it wasn't working with me at all, so something more natural might be what I need

OP posts:
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