Severe extreme Frozen Pelvis

[Answersonapostit]

Im in shock and struggling to find much information around some news I received Saturday. I’m recovering from surgery on Saturday ; the idea was to remove both ovaries as one had a large cyst and with my family history it was a good option.
I came round to the consultant telling me that she couldn’t get to the left ovary -
and it took twice as long to get to the right ovary which also had cysts this was removed.
She then said I have severe extreme frozen pelvis-from my hysterectomy 33 years ago ( I was very young and had my kids already ) NONE of my organs in that area can be accessed and that my bowel is also totally obscured and I will need some major open surgery to remove ‘ the worst case of adhesions I have ever see , we will need to take out your damaged bowel / remaining ovary and release all the other organs . Then we will fit you with a stoma which we hope will be temporary , I’ll speak to you in 2 weeks ‘

I am utterly completely in shock, part of me is finally ‘happy’ that now after 15
plus years of having terrible bowel issues I have an answer - the other part of me is sick with worry, fearful and just cannot get my head around what happened and how the news was delivered and the life changes coming up.

I have been able to go privately this year as I pay through my work, and I am not asking for a pity party. I just want to know if anyone else out there who has been through the same or lives with a bag.
I am in research and get a plan in place mode.

I found out I had a severe frozen pelvis when I had surgery to remove an ovary and a dermoid cyst. They couldn’t carry out the removal. The option was for surgery with a hopefully temporary stoma but I wasn’t happy with this.
I was feeling healthy with no pain or problems I asked if we could leave it alone for now. They agreed this would be fine so now I’m just on a watch and wait and see. I did a little research and if you have this surgery there is no guarantee they can fix anything and when you remove adhesions you can still get more adhesions from that surgery and so on.
If you really need your ovaries removed right now then that’s probably the best thing but if it’s not really necessary you could just leave it for now and decline the surgery. Good luck and hope all goes well.
Like you I am quite frightened at the thought of a life changing stoma you read lots of positive stories about women just getting on with them and living positive lives but I worry it wouldn’t turn out like that for me.