Anyone had/have PMDD?

[BigBoudIsBack]

I don't have a diagnosis but seriously wondering if I should be trying to get one, and trying to get help for this. I've always had difficult PMS with days and days of mood swings and tears but since getting my period back postpartum it's become out of this world. Like seriously contemplating divorce for a week every month, in uncontrollable floods of tears every other day for a week, shouting at my toddler... I feel out of control this month and I know last month was almost as bad. (I can't remember further back in detail because sleep deprivation has done a number on me, but I know this spring has been periodically awful).

Just wondering if anyone has any experience they can share and hoping to commiserate! 💐

Did you ever get a diagnosis? I could’ve written this myself. Have been to doctor but no formal diagnosis and treated with citalopram as I was already on it and can’t have the combined pill.

I hope you found some relief, it’s unbearable ❤

Hi, wondering if anyone can help? I think I have Pmdd & have had for a very long time. I went to see a Gynaecologist yesterday after waiting ages for an appointment who has prescribed me Cerazette. Upon reading a lot online, it seems that for many people this actually brings on depression or makes any such symptoms that you already have worse. As I am already struggling, for this reason I don’t know if I should try this pill? In the past, the Dr thought I had Depression which is a symptom of Pmdd, and tried different forms of the Pill and Anti Depressants. If anyone has had wise words of wisdom please let me know!

You poor thing, I have been living with this for about 10 years. It is truly horrendous. The only relief I get is when I am pregnant. I havent been to there's about it yet because I know they would just put me on antidepressants. Would a private endocrinologist be better?

Drs*

I was diagnosed with PMDD by a Consultant Gynaecologist who also diagnosed me with severe endometriosis earlier this year. Prior to this I had tried supplements, various forms of hormonal BC and been given antidepressants by my GP for PMS symptoms but nothing worked.

For me, PMDD manifests in symptoms of depression, anxiety and extreme irritability that starts 7-10 days before my period and increases in intensity over that time. I have self-harmed, planned to leave my lovely DH, threatened to walk out on my job that I absolutely love, I even think I regret my own children a few days before my period. I start to think everyone would be better if I wasn't here. I feel more and more desperate as the days go by and just at the point where my suicidal thoughts turn into plans my period comes. It's like a fog lifts and by day 2 of my period I feel like me again. But at the time I genuinely believe life is intolerable.

I am going to have a hysterectomy and oophrectomy due to both my endometriosis and PMDD. My consultant is very supportive, but I have been telling GP's that my periods are not normal and being misdiagnosed with anxiety/depression for almost 20 years so it is incredibly frustrating.

Yes. Been on HRT since my diagnosis 6 years ago (suffered since the onset of puberty) except during pregnancy. There are some great support groups available. I used to have outer body suicidal experiences (I won’t share the details on here because I was banned from another forum for sharing). But I hated referring to the episodes as suicidal because I’m not and even in the moment wasn’t, I didn’t feel in control. I also struggled to leave the house during an episode because I would hate if my personal space was invaded (eg walking down the street). I once “woke up” (I was aware but not aware) after an episode to find I’d taken my clothes off in a bank.

Thank you. You poor thing too. Well you can try to ask your GP to refer you to a specialist which is what I did, as generally I find the GP’s don’t have much knowledge of PMDD & as you say would probably suggest Anti Depressants. I haven’t plucked up the courage to start my new Pill as yet, but think I may have to. I recently bought something called Agnus Castus, which I have been told may help with Symptoms, but not holding out hope. Also there are PMDD support groups on Facebook & lots of information on Instagram too which suggest a lot. Hope you get some help.

Ps. Yes sorry in answer to your question, yes maybe…my sister also has PMDD, suffers with very heavy periods & now she may be seeing one. It seems to be a case of trial & error. So difficult. Good luck.

I am so sorry to hear all this. I truly understand as go through all of that too. It is just hideous.

Yep! Sertraline 2 weeks on 2 weeks off. Luckily the GP I saw has a special interest in PMDD. 4 months PP and considering going back on sertraline - pregnancy was heaven!!!