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Original poster

lichen sclerosus GP/ Patient opinion

12 replies

Tynetime · 27/04/2022 23:45

I have had this condition for a number of years. I was sent for a biopsy a few years into symptoms and the results were not conclusive but it was suggested it might be.
Apart from that no specialist appointments.
GPS prescribed steroid as and when I requested it and I have had appointments over the years when in flare.
My latest flare was awful so I requested a referral to gynaecology. Very atrophic too.
My questions to both people with this condition and especially GPS to ask what steroid was/should be prescribed please?
Thank you

OP posts:
Original poster
Tynetime · 27/04/2022 23:49

@TonksInPurple @ButNotTonight20 saw your names on another thread and wondered f you could help.

OP posts:
DotBall · 27/04/2022 23:55

I’m prescribed Betnovate cream for LS.

Original poster
Tynetime · 27/04/2022 23:58

Thank you @DotBall. Hope things are stable for you.

OP posts:
over50andfab · 28/04/2022 00:06

don’t have it but from others who do they use Dermovate ointment. Sometimes other steroids are prescribed. If you have vaginal atrophy an estrogen cream can also help

Original poster
Tynetime · 28/04/2022 00:16

Thank you @over50andfab.
I am now on dermovate thankfully and have an estrogen vaginal tablet. I just feel I was prescribed too mild a steroid for too long and that this has probably contributed to disease progression. But I can't really prove it.

OP posts:
INeedNewShoes · 28/04/2022 00:20

I was prescribed Dermavate.

Funny thing is, my neighbour and I were both diagnosed by our respective GPs as having LS. Both of us have since been told, me by a dermatologist and neighbour by another GP, that it wasn’t LS after all. Made me wonder if there was literally something in the water causing similar symptoms!

Original poster
Tynetime · 28/04/2022 00:23

@INeedNewShoes Thank you. It is a bugger of a disease to diagnose that is for sure.

OP posts:
Original poster
Tynetime · 28/04/2022 00:23

Glad you haven't got it @INeedNewShoes

OP posts:
Lallybudd · 04/05/2022 17:40

I have lichen sclerosis, and after many years it appears my daughter has found a cure! First she suggested V cream, which made a big improvement, then I started taking Moringa tablets 2000mg.
Over three months and absolutely no problem at all, read the ingredients etc, then found they were ant-fungal properties in them.
So all I can say, is try this out. I can’t believe my luck, worth a try.

LadyLolaRuben · 04/05/2022 18:23

Lallybudd · 04/05/2022 17:40

I have lichen sclerosis, and after many years it appears my daughter has found a cure! First she suggested V cream, which made a big improvement, then I started taking Moringa tablets 2000mg.
Over three months and absolutely no problem at all, read the ingredients etc, then found they were ant-fungal properties in them.
So all I can say, is try this out. I can’t believe my luck, worth a try.

Thank you for this

LadyLolaRuben · 04/05/2022 18:24

Lallybudd · 04/05/2022 17:40

I have lichen sclerosis, and after many years it appears my daughter has found a cure! First she suggested V cream, which made a big improvement, then I started taking Moringa tablets 2000mg.
Over three months and absolutely no problem at all, read the ingredients etc, then found they were ant-fungal properties in them.
So all I can say, is try this out. I can’t believe my luck, worth a try.

Sorry, that was for Lallybud. Quote facility not working

Lallybudd · 28/07/2022 21:29

I put a message on here for lichen sclerosis three months ago, am delighted to tell you that I am still totally clear of it. Please anyone who has this, give it a try,

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