Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

Women's health

Mumsnet hasn't checked the qualifications of anyone posting here. If you have medical concerns, please seek medical attention.

Lump in breast & 2 month wait for a mammogram

26 replies

Tabitha005 · 25/01/2022 19:13

I found a lump in one of my breasts late last month and went to the GP who did a physical exam and referred me under the 2 week rule to the breast clinic at the local hospital. GP tells me to chase up (via GP surgery) if I haven't had an appointment date within 2 weeks. My mother had ductal carcinoma 14 years ago and has just been diagnosed with recurrent stag IV metastatic breast cancer, so there's family history.

Wait 2 weeks without a call to arrange an appointment at the breast clinic, so I chase the GP - five times. After three weeks from the date of seeing the GP I get a call to set the appointment date at the hospital breast clinic - it's another week's wait. I'm told I've been booked into the 'one-stop' breast clinic and I'll have a physical exam, mammogram and, potentially, an ultrasound.

Get to the the appointment today: consultant gives me a physical, comments that she finds 'a nodule' and tells me she'll request a mammogram - for a future appointment and NOT as part of the 'one-stop' clinic I'd been told I was being booked into. I query this and she tells me simply: 'This isn't the one-stop clinic'. I tell her I was told, when the appointment was made, that I was being seen by the 'one-stop' clinic. She shrugs and tells me there's nothing she can do and neither can she give me any indication of when the mammogram might take place. This is despite her having also commented on the 'lump'/'nodule' that I'd found myself.

I end up having to come home and call my GP surgery who tell me that this 'sometimes' happens. I ask for clarification, because I'm sitting here at home, worried that I could be waiting an extended period of time - having found a 'lump'/'nodule' which has similarly been found by a hospital consultant, and with family history of breast cancer.

Get an email from the surgery this evening advising a mammogram could be between another 2-3 weeks away and an ultrasound up to a 12 week wait.

My feeling is that having seen my GP, who felt it necessary to refer me under the 2 week rule, all that's happened is that I'm now a month down the line and could be waiting another 3 weeks for things to move beyond a basic physical exam.

I know the NHS is fucked (and the email from my GP this evening essentially said the hospital trust is suffering from the effects of 'Covid, staff sickness and holidays'), but kicking me down the queue when I was sitting there in front of the consultant whilst she found the same lump in my breast and yet chose NOT to send me for a mammogram feels like a missed opportunity to me. I was one of only three patients waiting to be seen this morning when I arrived and I'd have been happy to wait any amount of time for a mammogram, too.

I feel as though I'm not being heard and my concerns are being dismissed. The GP's email basically said: 'call the hospital, we have no control over their triage procedures'.

Ultimately, I've found a lump in my breast and I may have ended up waiting the best part of two months before I get any concrete information on whether it's anything to worry about.

I don't know what to do and it's all I can think about.

OP posts:
Bordernotboarder · 25/01/2022 19:16

Sorry for not being helpful but that is just awful and frightening.

Helenluvsrob · 25/01/2022 19:18

PALS at the hospital.

Gp have referred you appropriately. The hospital have taken you through the wrong route - though it’s possibly the only route they can at the moment 😢

GreenLunchBox · 25/01/2022 19:19

Gosh, OP, I understand why you're so worried and upset. This is not good enough Flowers

thesandwich · 25/01/2022 19:19

Sounds awful. Worth contacting PALS at the hospital?

thesandwich · 25/01/2022 19:20

X post

optimistic40 · 25/01/2022 19:20

That does not sound right. I have been seen within days for breast lumps and I was young at the time(s) at 19 and again in my thirties. It was not during the pandemic though which I suppose made a difference.

I don't have any good advice, but I hope that someone else comes along with some. Could you go private?

Katshouldnotswim · 25/01/2022 19:20

I had a 6 week wait from my GP appointment to the “one stop clinic” . It sucks.

Try to hold onto the fact that the majority of lumps and bumps are not a problem

happyjack12 · 25/01/2022 19:23

am so sorry you are going through this.
Please ring PALS at your hospital tomorrow, explain what has happened, they will act on your behalf and speak to the breast team.
Actually, I'd be tempted to ring the breast clinic nurses also.
In short, don't give up.
fingers crossed it is nothing to worry about, But it DOES need checking .
I'm out of treatment for aggressive breast cancer 1 year now, it is Do-able, good luck .

tootyfruitypickle · 25/01/2022 19:24

Definitely not right , no one can tell by feel if a lump is cancerous. You need to really kick up a stink. Eons ago I paid for a private referral and I would consider this in your situation. My private referral was just a cyst in my 20s, but ten years later I did get breast cancer . I'm late 40s now and fine but early detection is everything. Throw everything you've got at this.

CoffeeRunner · 25/01/2022 19:24

PP is correct. This is down to the hospital not the GP. If the GP referred you using the 2 week pathway then they have done their part.

Was it the booking centre at the hospital who called & told you it was the one stop clinic? TBH I am surprised they deal with 2 week wait referral in any other way, they would only be dealt with in one visit here.

I would contact PALS. This wait is unacceptable in the circumstances & especially when the hospital clearly do have a one stop clinic operating.

woohoo54 · 25/01/2022 19:27

Could you pay for a private mammogram? Def call PALS first but may be worth the initial check

Tabitha005 · 25/01/2022 22:56

Yes, @CoffeeRunner it was the hospital booking service who told me I’d be booked into the one-stop clinic. I wish I’d been more insistent this morning, but I will contact PALS tomorrow as others have suggested because I don’t think waiting 2-3 weeks for a mammogram is acceptable.

OP posts:
Tabitha005 · 25/01/2022 22:59

@woohoo54 I’m considering a private mammogram if I can’t get the hospital to agree to slotting me in in the next few days. It would be a big outlay for me, but I’m so worried about being kept waiting that I think it’s be worth it.

OP posts:
NoSquirrels · 25/01/2022 23:00

I think I’d go private. My mother also died of breast cancer. I’d go into debt for the initial stages of diagnosis if I had to.

Tabitha005 · 25/01/2022 23:02

Thank you, everyone. I feel bolstered by so many saying my experience doesn’t sound right. I feel that something has been misconstrued or miscommunicated somewhere along the line.

I don’t think it’s a mistake on my GP’s part, rather the hospital.

OP posts:
LadyGoddiva · 26/01/2022 09:27

That's awful @Tabitha005

Kick up a fuss and try to get your mammogram.

IF you go privately, the costs are around £250 for a mammogram and ultrasounds are around the same (each side) . You would get both on the same day and usually see a radiologist for the results or another consultant.

Shop around if you decide to do it that way and go somewhere that's good.

Good luck with it all.

Tabitha005 · 26/01/2022 18:36

I’ve had calls with PALS, my GP and the radiography Dept of another hospital in the same Trust. Mammogram booked for this coming Friday afternoon. I have my fingers crossed everything’s fine and the lump is nothing malignant.

Thanks again for all your comments!

OP posts:
Tabitha005 · 26/01/2022 18:39

@LadyGoddiva

That's awful *@Tabitha005*

Kick up a fuss and try to get your mammogram.

IF you go privately, the costs are around £250 for a mammogram and ultrasounds are around the same (each side) . You would get both on the same day and usually see a radiologist for the results or another consultant.

Shop around if you decide to do it that way and go somewhere that's good.

Good luck with it all.

I was “pleasantly” (weird use of the word under the circumstances, I know) that a mammogram at a reputable private hospital not far from me was quoted at £140.

What a world when that seems ‘reasonable’, despite having a national Public Health Service at our fingertips that’s supposed to take care of such matters, eh?!

OP posts:
NoSquirrels · 26/01/2022 18:51

@Tabitha005

I’ve had calls with PALS, my GP and the radiography Dept of another hospital in the same Trust. Mammogram booked for this coming Friday afternoon. I have my fingers crossed everything’s fine and the lump is nothing malignant.

Thanks again for all your comments!

Glad to hear this. Wishing you all the best for Friday Flowers
FindingMeno · 26/01/2022 18:57

Fingers crossed for you.
Will you get an ultrasound too? ( my lump could be felt but wasn't visible on mammogram)

tootyfruitypickle · 26/01/2022 19:35

Money well spent. It's very very likely to be nothing but if it's not you need to know sooner rather than later . Good luck OP.

Tabitha005 · 26/01/2022 20:55

@FindingMeno

Fingers crossed for you. Will you get an ultrasound too? ( my lump could be felt but wasn't visible on mammogram)
I should have been clearer in my earlier post - the mammogram is being undertaken at one of the other hospitals in my local NHS Trust (not the hospital I attended earlier this week).

Nevertheless, I was still fairly surprised at the 'reasonable' cost of a private mammogram.

I'm led to believe that, should the mammogram not be conclusive, I may well undergo an immediate ultrasound on Friday, too.

OP posts:
Tabitha005 · 01/02/2022 09:33

Just to update: PALS were incredible and managed to 'persuade' (I have no idea if it was persuasion or any other kind of action on their part) the breast unit to carry out the mammogram and the ultrasound on the same day.

So, Friday just gone, I had both done at the same visit. Thankfully, was was picked up on the mammogram and then investigated by the radiographer who did the ultrasound doesn't appear to be anything nasty. I'm having a follow-up in three months, but it appears to be something related to some kind of minor trauma (a bruise, perhaps), although I don't recall anything that could have caused it, but boobs do get bashed occasionally without us remembering, I guess.

Anyway, I would say that getting in touch with PALS was the catalyst to getting things sorted out in my situation, so well worth going down that route if anyone finds themselves in a similar predicament.

Thank you, again, everyone, for your comments.

OP posts:
Bordernotboarder · 01/02/2022 19:49

I’m so pleased for you. Thank goodness it’s likely to be nothing concerning.

tootyfruitypickle · 01/02/2022 20:20

Great news !

Swipe left for the next trending thread