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Referral to Gynae - Inflammed Cervix, Scar Tissue, Unusual Bleeding

4 replies

Theonlyoneiknow · 23/01/2022 14:32

Hi All,

Sorry in advance for the long post..... just wondering if anyone had any words of wisdom or had been in a similar position before. I am nearly 50 so in that perimenopausal phase. Two DCs at primary school.

Cycles were getting longer and longer - up to 3 months apart when I suddenly had 2 cycles 14 days apart, and also some spotting on random days. Called GP for phone appointment and she saw me following day for examination. She said that she could see an area of inflammation and scar tissue (?) on my cervix, and that with the unusual bleeding patterns would refer me to gynae. Other points to note are I also have lichen schlerosus (which means I haven't been able to have intercourse for a very long time), and also urine urgency/incontinence when I run (I run an hour a day, this probably doesn't help my bladder/pelvic floor). My last smear was a year ago and clear. I asked GP if she thought it could be cancer and she said although it didn't look like cancer on my cervix, she couldn't say it definitely wasn't.

Anyway, I have of course now convinced myself it is something sinister.... she said it would be a 3 week wait for my appt due to covid delays - and has referred me for an ultrasound and a gynae appointment. I also had kidney, liver, full blood count and CA-125 blood tests done last week (not sure of results yet).

Would love to hear if anyone has been through similar, thanks! I am of course now expecting the worst based on my symptoms!

OP posts:
Theonlyoneiknow · 23/01/2022 14:34

Also, forgot to say - she said I had the most tilted (downwards?) uterus she had ever seen.

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piglets29 · 23/01/2022 16:41

Hi. I'm a similar age and also had similar comments from the gp recently. I had a very stressful 2 week wait over Christmas! Gp said my cervix appeared irregular and patchy when she examined it (I've had 3 months with spotting/ irregular bleeds). The colposcopy was very reassuring and she said the patches were follicles. Harmless and common. She did take some biopsies as she could see abnormal cells but she was very reassuring and said it looked low grade. I have still got to have a gynae scan this week so not out of the woods. But I was most worried about her comments about my poor cervix... I hope you are seen soon. I found it hard not to panic but equally knew deep down that a clear smear within the year made it highly unlikely to be cervical cancer.

Theonlyoneiknow · 23/01/2022 17:54

Thanks for the reply @piglets29. I asked the GP about the clear smear and she said that the nurse would only have been focusing on getting the cell sample she needed rather than checking the health of the whole cervix so might have missed the inflammation/scar tissue (if it was there a year ago) - my cervix was very "hidden" she said!

The GP was very good though I felt and did give me a good internal exam (which is tricky due to the LS), said she couldn't feel any lumps. Hopefully blood work comes back okay, I will get the results of those tomorrow afternoon.

I am glad that everything is okay so far with you, and that you had a reassuring colposcoy - are you having an U/S this week? I am worried they won't be able to "get in" to do a colonoscopy, will worry about that later! Keep me posted with how you get on, fingers crossed the scan is all clear.

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Theonlyoneiknow · 25/01/2022 11:40

Sorry to bump, just looking for any more advice or similar experiences? My blood tests have come back as "satisfactory". Ultrasound is a week today. No sign of gynae apt yet.

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