Non shifting UTI - feeling very low and could do with some support

[summernotwinter]

Help much appreciated.

I have now been trying to shift a UTI for two weeks after a delightful 12 year hiatus from the wretched illness. I have gone onto HRT this year and think perhaps the gap was explained by not being on the pill anymore.

I had three days of macrobid that didn't work and allowed the infection I think to get more bedded in. I am now on day 6 of a 7 day course of trimethoprim. My wee is clear now but I still have urgency and burning and the pain is just....beyond pain I have had with UTI before, in my urethra not my bladder so much. I am not at work today and have struggled so much over the last two weeks to function.

Things I am doing:
D Mannose (no difference noticed)
Sachets when the wee gets too stingy
Drinking two litres a day (GP told me off for drinking more than that and said it could be dangerous)
Mixing paracetamol with nurofen according to the GPs guidance.
I dont drink coffee and defintely won't be drinking wine/booze
Following all the diet info I've found online
Heated sacks
Trying antihistamine today from some forum advice.
I've been prescribed topical estrogen cream but I still have periods in spite of peri and am ovulating with loads of CM at the moment so can't see that is needed (and as the instructions say it can cause vaginal irritation to begin with, I am a bit loathe to start it just yet..)

I called the GP after the end of the 5 day course of trimethoprim and they gave me two more days worth, had a sample which of course came back clear, as I'm on antibiotics and drinking a lot. They said I could have codeine but nothing else - I don't respond well to that. I cannot go in this much pain so there must be something?

So - as someone with quite acute health anxiety I have gone down a right warren hole, decided this could be IC and the outlook does not look cheery. Can it come on like this from one UTI? Has anyone else had this stubborn not shifting thing and got better? Because I haven't read stories where people have or the threads just end with no resolution! I promise to update this thread so it has an ending!

Also, trimethoprim: I feel very out of it, have no appetite whatsoever and very very down. Normal?

@dahliaaa, following as I'm a month into klebsiella infection which isn't shifting. So fed up!

@Covidwoes sorry you are struggling too. It really is miserable

@dahliaaa how many courses of antibiotics have you taken? I'm taking probiotics, but not enjoying the side effects of the abx.

I started with 3 days of Nitrofurantoin but that didn't work and culture showed that bacteria resistant to it.
Then 7 days of amoxicillin which was indicated in the culture. Symptoms improved slightly but still very significant and the next sample showed no improvement in the amount of proteus.
I was then given 7 days of trimethoprim but I was taken off it after three days because of severe dizziness.
So was then given another 7 days of amoxicillin.
Finished that 10 days ago. GP sent off a sample 3 days later which has now come back:
Pus cells 11
Epithelial Cells : 46 (jumped up from 1)
Mixed growth (previously said proteus) : 10 to the power 7 - 10 to the power 8

I'm not sure if the significance of any of that as it was just listed in the nhs app.
Still got a lot of discomfort, frequency, pressure etc

I saw Prof Malone-Lees team in harley Street. I saw Dr Harvey, after suffering for a number of months they were the only people who seemed to have a coherent plan on how to treat me. Other urologists just diagnosed IC. I am now symptom free following their treatment.

@stirlingway was the treatment long term antibiotics and how long did you end up needing them ? I'm glad you got it sorted.

Long term antibiotics and hiprex, took antibiotics for 8 months and hiprex for 12 months.

Thank you @stirlingway

hey @summernotwinter Just wondering if this resolved? Hopefully did. Currently going through similar.

@summernotwinter hey, how are you now? currently going through same