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Women's health

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Endometriosis?

30 replies

Twoweekcruise · 03/11/2021 15:35

Can endometriosis run in families?
My sister was diagnosed a couple of years ago in her early 40’s after years of being told her pain was IBS. They found a huge tumour on her ovary and suspected OC but when the ovary was removed they discovered it was endometriosis.
I am 48 and have had gynae issues and IBS for years and years. I have terribly low iron as a result of years of very heavy periods. (Ferritin is only 5).
I don’t really suffer from the excessive pain that my sister had but I have regular deep pelvic discomfort, hip and leg pain, lower back pain, pain on deep sex, awful discomfort during ovulation, very heavy periods, pelvic and lower back discomfort a week before my period. I have IBS and have lots of feelings of pressure in my rectal area too. I do have reoccurring ovarian cysts (currently have a cyst on an ovary), sometimes they are ‘chocolate’ cysts.
I also have awful, ongoing digestive issues.
I’m under gynae and gastro but no one ever mentions endometriosis. I did have a abdominal CT scan two years ago but nothing flagged up on that (can endo be detected via a ct scan?).
I am 48 now and I think maybe in perimenopause (again, can’t get the doctors to acknowledge this!), and things are much worse. Does endometriosis get worse during peri?

OP posts:
Caerus · 04/11/2021 20:57

It’s all gynae.. it’s the sister condition to endo- I gave the whole family 🤣😩

Caerus · 04/11/2021 20:58

^have

kirstyh1234 · 22/11/2021 17:29

Hi im wondering if anyone has ever had a similar situation to myself, i am at my wits end!! I haven't been diagnosed for endo so I'm not sure it's even that I've got but I've convinced myself I have after reading up on Google. I have always suffered with irregular bleeding but it wasn't ever anything I couldn't handle so I never worried about it but recently (the last 15 months) after giving birth to my youngest, I have bled near enough every single day its got to the point where now I cant go out of the house without wearing a sanitary towel. My periods have become more painful I suffer badly with back pain, pelvic pain, and leg pain and my stomach cramps have worsened, when I bleed I am in terrible pain. Drs suggested I take the mini pill to see if that helps but 9 months later to no avail, they eventually referred me to gynecology but with NHS waiting times I am yet to be seen so I booked a private consultation and a internal scan, I got the results back and everything on the scan was fine, no concerns for anything which has made me wonder even more as I was convinced something would show up. I asked the Dr is it possible that I could have endometriosis but he said that continuous bleeding wasn't a common sign of endo but not to rule it out as it was possible. has anyone else had similar problems and managed to get a diagnosis? I'd be grateful for any info 🙏

AttilaTheMeerkat · 23/11/2021 08:48

Scans like internal ultrasound scans do not detect endometriosis if it is present.

I would keep pushing for answers.

www.endometriosis-uk.org/ is a good website.

Bluebellfae · 26/11/2021 06:27

Kirsty definitely keep pushing your GP, but endo dosent show on ultrasound scans. The only way to find out is via laposcropy, you need to ask for one of these. Do you have any other symptoms xxx

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