Epileptic mums

[hulligwen]

Hi!
I'm epileptic. Baby two weeks old.
My seizure trigger is sleep deprivation, so my husband is stuck doing all the night feeds so I'm not a seizure risk around the baby.
He's going back to work soon and I don't know how I'm going to cope. I feel scared to be overtired around the baby. I have grand mal seizures with no warning. No family locally.
Does anyone have any experience of this?
Has anyone accessed any social care/support for these kind of issues? Thanks!

Hi, I have epilepsy and trigger is tiredness & stress. I had my little girl 9 months ago now and was super worried about triggering my seizures. Are your seizures controlled?
I was really lucky and didn't have any seizures. I didn't have any help either due to the lockdowns & I didn't get any support from other services however I did have a few epilepsy devices such as a watch and a falls detector for when I was at home/out with the baby my family would be alerted if I had a seizure. Is this something you have?

I also just found that if I knew I was doing everything as safe as possible for my baby if I had seizure that made me feel better. Such as changing her bum on the floor, feeding on the floor, putting her down for her naps(trying to nap myself), I don't drink hot drinks but no leaving hot drinks around etc. I also got my husband to get us both settled downstairs in the morning so I didn't have bring her down the stairs (just until I was so exhausted).

Sorry if I'm telling you thing you already know, let me know if you want a chat, I know hie stressful & worrying it is, I found after 5-6 months I was definitely less worried about it.

Congratulations also!