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Women's health

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PMDD? Really need help...

7 replies

jumpjackflash · 13/01/2021 17:35

Just been sitting here sobbing. I am have been unwell on and off for 3/4 years now since my last baby and over that time have seen 3 gynaes - spoke to the last one yesterday and we have agreed on a hysterectomy (at some point...when hospitals are a bit less busy.)

I have endometriosis, adenomyosis and anaemia but the main reason for seeing the gynaecologists has really been my hormones - which have been making me feel like hell and I am at the point where I can’t go on anymore.

I am constantly suffering from headaches, nausea, body aches, extreme fatigue, brain fog, hot flushes...feeling so ill basically that I need to go to bed. It was on a cyclical basis (10 days out of 20) but is currently all the time due to the fact that I have just completed a 3 month course of Zoladex injections.

The only relief I have had for it has been progesterone (in the form of norethisterone or desogestrel). This was discovered somewhat by accident after taking norethisterone for period delay on holiday!

Has anyone else had these extreme physical symptoms without the mental ones? I am already on antidepressants (for anxiety - long term issue) so perhaps that has taken away some of those symptoms. I feel like i really need a proper diagnosis - or at the very least to have someone properly listen to me and accept that what I am feeling is real and serious!!!

OP posts:
jumpjackflash · 14/01/2021 10:05

Sorry, me again...been mulling it over. I guess my question is, can you have PMDD that is mainly physical in its symptoms?

OP posts:
Akire · 14/01/2021 10:11

Doesn’t sound like PMDD sound more like peri menopause. With hot flushes brain fog and fatigue. Not sure about the injections and how that may be working in your body.
What does your GP say?

jumpjackflash · 14/01/2021 10:30

They don’t know...the only thing that seems to help is progesterone so not sure about perimenopause. I am due to have a hysterectomy this year but just need to figure out if I am going to have the ovaries out or not!

OP posts:
Brownbananabandana · 14/01/2021 10:42

Op, not sure this is pmdd, I have (he’s) everything you listed above, severe endo with multiple excisions, adenomyosis, fibroids and pmdd... yup I’m that lucky. I also had a radical hysterectomy last year and it was the single best thing that’s happened to me since the kids were born. I can’t take progesterone at all though as it sends me straight back to pmdd hell, so I’m on estrogen only hrt with testosterone. My understanding of pmdd was that it was an intolerance to progesterone and also intolerance to fluctuating hormones so not sure your profile aligns with that, but I’m not a doctor and just going by what I’ve been told. However a lot of what your describing sounds like it could be caused by inflammation which as an Endo suffferer you’ll have in abundance. Have you tried an anti inflammatory diet? When I had bad flair ups before the surgery, cutting put all the things that are inflammatory would often give me soon relief. Cut out sugar, dairy, wheat And alcohol and take tumeric and ibuprofen. That generally took my fatigue and pain levels down a couple of notches but unfortunately didn’t really help with pain when I had chocolate cysts at ovulation or the pmdd with my cycle.

Shellstokes1981 · 18/02/2021 08:04

Hi, I started to feel physical symptoms March 2020, on and off nausea, sensitive to light and cold, fatigue, heart palpitations, next to no appetite, brain fog and changes in digestion. All of which were very debilitating. Finally went to doctors Nov 2020 and in January was told PMDD. I have no emotional symptoms. All are very physical and last about 10-15 days. I’ve started Desogestral and noticed huge improvements. Long may it last. I googled the hell out of PMDD and was unsure if this was me...as many emotional symptoms attached to this which I don’t have. Hope you’re doing well.

jumpjackflash · 18/02/2021 10:34

Hey Shell, thanks so much for getting back to me. I actually started getting emotional symptoms too (endless crying) that tied in with the awful nausea/headaches/fatigue/chills etc. I am currently in hospital having just had a hysterectomy (ovaries out too!) but that was also for endo and v heavy periods. Desogestrel really helped me too but I had to take at least 2-3 a day xx

OP posts:
Shellstokes1981 · 18/02/2021 11:18

I hope you have a super fast recovery. Wishing you all the best.

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