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Women's health

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failed hysteroscopy ?

14 replies

DALMATAIN101 · 01/01/2021 21:42

hi all ,
I've had a look on here at some conversations before but I'm now feeling brave or possibly more like desperate.

on 15th December after waiting 15 months of constant bleeding , like every single day, I finally got an an appointment for said hysteroscopy.

BRILLIANT at last I thought !

now here 18 days later and after being kept in hospital for 5 days for a simple day surgery procedure , and further 3 visits to hospital , one by ambulance , and each time being told that heavy bleeding is not a problem, I have sat here for the past three days very heavily bleeding and scared too to hospital or contact 111 in fear of being told its not a problem again .

I have been in touch luckily with my gp surgery over the holidays and they have been fantastic to say the least .
I have at the moment been prescribed 15 different medications to control this bleeding and alongside my normal meds I am taking 30 pills per day !
I have a few mental health issues going on which ive had most of my life and are under control , or at least they have been til now , but the bleeding issue is having an effect on my whole life here , to the point ive been on diazepam for the past 6 weeks just so I am able to get a sleep as this has been known to keep me up all night on a good few occasions .
can I apologise also if this seems a bit confusing but that's the way I feel and I just do not know where to turn next.

ps
my gp has got me a new appointment with the consultant / surgeon on the 13th January but I am in so much pain and soaking through a lot of sanitary products on a daily basis that I just cant wait that long.

any advise please ??

OP posts:
Apinke · 01/01/2021 21:58

Sorry you Are going through this .Have you been prescribed norethistherone?

It worked for me for heavy bleeding due to fibroids.Hope everything gets resolved soon for you .

missyB1 · 01/01/2021 22:02

Sorry if I’m misunderstanding but did they complete the hysteroscopy? And if so what did they report?

DALMATAIN101 · 01/01/2021 22:05

ive got norethistorone . mefanemic acid and tranaxemic acid and none of it is making any difference sadly , ive just got through to 111 now so fingers crossed .

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DALMATAIN101 · 01/01/2021 22:11

as far as iknow it was meant to be ablation getting done but the surgeon decided it didn't need doing and removed a small fibroid instead.

I think the bleeding is now worse than its every been before surgery,

OP posts:
WouldstrokeTomHardy · 01/01/2021 22:34

Can I ask your age and if you have children OP. I only ask as adult DD has been going through similar

DALMATAIN101 · 01/01/2021 22:45

Yes I have one son who is now 18 😊

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DALMATAIN101 · 01/01/2021 22:46

Oh and yes I am 45 with an 18 year old boy

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JinglingHellsBells · 02/01/2021 10:10

A hysteroscopy is a camera in the womb to take a look and a small tissue sample (biopsy.) You should have been told at the time what they saw- if your lining was thicker than normal and you needed drugs to control it. Was this not discussed?

The options are along course- sometimes 6 months- of Norethisterone - to thin the lining, or the Mirena coil or an ablation.
Are you using Norethisterone continuously now?

Have you not had follow up suggesting these?

DALMATAIN101 · 02/01/2021 11:21

Nothing i dont know already im afraid .
I have been on before said medication for 15 months now with little or no effect .
For past 2 -3 weeks I have been admitted now 6 times and each time im told everything looks normal.
Well I am very sorry but I know my own body and this amount of bleeding is less than normal !
Example : yesterday I went through 11 pads (soaked each time) and the same amount of tampons, same as before soaked and sorry for tmi but upon removal every time a large clot comes with it !

IS THIS NORMAL ?? I THINK NOT 🤔

OP posts:
Newyearsamecovid · 02/01/2021 11:25

I had one after being ignored several times. During the procedure did they not tel you what they found? There was lots of stuff left up there from pregnancy for me which was causing it so he showed me what it was on the camera and sort of scraped it out and took a biopsy.

Newyearsamecovid · 02/01/2021 11:28

Oh and 100% keep complaining, keep going to a&e. That amount of blood loss is not healthy or normal. You need to really fight for yourself because medical practices don’t fight for women, we’re left to suffer.

DALMATAIN101 · 02/01/2021 11:42

Thank you , I am right now sat outside gynaecology at wishaw General where the out of hours service last night told me to be here for 11am .. its is now 11.42

OP posts:
RandomMess · 02/01/2021 11:48

I hope you get treated very soon!!!

DALMATAIN101 · 02/01/2021 14:05

Thanks everyone ,

This story just drags on and on sorry ..
I have went through every single option available so everyone asking if I've tried this and that then yes im afraid I have explored all options 😔

I have just got home from hospital for now the 7th time in the space of 18 days .. fed up and tired now
Even my doctor has hit a wall as ro why I am losing so much blood .

2 -3 days ago I was over and insistent on the fact that I had an infection , According to them because they examined me then they said I didnt have an infection 😔
The nurse i seen today questioned why they would know that without testing my urine !

So after a urine test which has now come back with protein and a lot of blood in my urine ! It has now been confirmed I have not 1 BUT 2 infections 😡

Doctor then told me he will be seeing me on 13th January to discuss a hysterectomy 😀😀😀

RESULT AT LAST

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