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Women's health

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Has anyone developed Endometriosis after surgery?

11 replies

yarncakes · 13/12/2020 12:49

I am trying not to aelf diagnose but the symptoms seem to match. I had a c section 4 years ago and I had 2 ectopic pregnancies, both required surgery. I had an ectopic last year which required surgery but it was not 100% successful, had to have methotrexate as they found loads of blood in my pouch of Douglas and my haemoglobin levels began dropping so I was bleeding in my uterus and it was not escaping from anywhere (I didn't have bleeding vaginally). Thankfully didn't need to perform surgery as they said they would have to perform a hysterectomy if my body didn't absorb the bleeding and because it was a 2nd cornual ectopic, my uterus got affected by it because they had to excise the pregnancy by cutting a wedge out of my womb. All done via keyhole though.

For the past 3 months, especially after my period, I've been having pelvic aches and pains and the area where my ovaries are as well. My rectum feels like it has pressure in there, like a bowling ball and I feel like I need to go poo but I don't. It happens on and off. Bowel movements can get uncomfortable as well. However my monthly menses are of normal flow, lasting around 5 days.

It's before I have my period and after my period I suffer for a week. My back and leg starts to hurt as well. All of these I've never had before! My smear test was normal, the gp looked at my vagina and cervix and said all looks fine so she thinks it's more upper but she said I'd be waiting a long time to see a gynae due to covid. I said do you think it is anything to do with my pelvic surgery but she obviously was not qualified to answer that.

OP posts:
yarncakes · 13/12/2020 13:01

My recent smear this year also came back fine

OP posts:
Tootsey11 · 13/12/2020 14:58

I did Op. After a c section. Took seven years for them to diagnose. I had coil put in, solved the problem. Stopped periods completely, but left me no idea when I went into menopause. I wished I had of gotten coil removed early.

Your aching legs and back sound like endo. Mine felt like they were being dragged down to the ground.

yarncakes · 13/12/2020 15:27

@Tootsey11

I did Op. After a c section. Took seven years for them to diagnose. I had coil put in, solved the problem. Stopped periods completely, but left me no idea when I went into menopause. I wished I had of gotten coil removed early.

Your aching legs and back sound like endo. Mine felt like they were being dragged down to the ground.

Sorry to hear that Tootsy it's not right they take so long to diagnose and it is going to be even worse now! Did you mean your endometriosis symptoms started 7Y after you had your c section? How long did it take before you had symptoms?
OP posts:
Tootsey11 · 14/12/2020 15:25

My symptoms started about 12 weeks after c section. I went to appointment after appointment, seeing different doctors and consultants.

I was carried into A and E almost unconscious, in pain. It was a male nurse who finally said to get a lap done.

PolarnOPirate · 14/12/2020 15:28

Oh shit this sounds like me, I’ve only this week started to realise it might sound like endometriosis. I really hope not, and I hope it’s not for you either OP. Sounds like a really rotten problem. Sorry you’re suffering.

Em3978 · 14/12/2020 16:08

I've had endo for as long as I can remember really (periods alwys awful!) I was diagnosed when I was about 23 and I've had a total of 3 laparoscopies for treatment etc.
The last lap managed to spread endo to my belly button, where the scope went in and now I bleed (slightly) externally at the start of a period!

Its perfectly possible that a c-section could have made things a whole lot worse with you.

(I actually had a C-section since, but thankfully I'm not any worse for that.)

flakdh · 14/12/2020 16:10

Adhesions would be a more likely explanation after extensive abdominal surgery tbh.

Someone1987 · 14/12/2020 22:19

Following this as having a similar concern.
I have had an ectopic pregnancy and had a tube removed, had my son via fertility treatment as have pcos too and since then I get so much pain, stabbing, back and let pain, a burning sensation across the womb and ovaries. I was also found to have raised ca125 levels.
Referred to a gynae but he said it's likely they'll find nothing..helpful, but has offered me a laparoscopy, just unsure when that'll happen.
Have you been referred to gynae?

Blibbler · 14/12/2020 22:27

I think so but I'm not diagnosed. I've had 2 c-sections with the one being tricky with an internal T-cut and extra stitches. 9 years later and I now get monthly burning pain on one side just before and then for at least a week after my period. Internal scans and ca125 test hasn't shown anything so far but each year the pain lasts longer each month. I'm hoping it's endo rather than anything nasty.
Do adhesions have a link to pain during periods?

MoreRainbowsPlease · 14/12/2020 22:33

I also think it could be adhesions ( not necessarily edometriosis caused ones) and they would be caused by your surgeries. If that is the case then they can be seperated by lasers, but they can come back, or there is a chance that the surgery to seperate them can cause more. Thats what I was told by my gynaecologist when discussing whether I should have more surgery. I have deicided not to at the moment as the risks outweigh the benefits for me, but I might change my mind in the future.

Adhesions can be linked with period pain depending on what internal parts are being stuck together.

Literallyfedup · 15/12/2020 23:08

Endometriosis is unlikely though not impossible after c section. There is a high likelihood of adhesion or adenomyosis. Both conditions can cause similar symptoms as endometriosis. While adhesions cannot be diagnosed without surgery, adenomyosis can be detected by TVS often referred as bulky uterus.

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