I’m happy to answer anything, I’ve been on a long journey with it, took years to get a diagnosis so I’m really enthusiastic about women being vocal about their pain to doctors and not accepting brush offs!
I had really bad ovarian pain towards the end of my endo journey, not so much at the start but any specialist will tell you that your pain is very individual and bears no relation to the severity of Endo. Endo can be stage 4 and cause no pain or be stage 1 and excruciating so ANY level of pain is worth investigating.
I started off with really heavy periods, flooding, massive amounts of pain etc etc i had a diagnostic laparoscopy when after years of anaemia and going to the gp for pain and heavy bleeds and being fobbed off we had investigations for infertility. That lead to a diagnosis of stage 4 endo and I had a radical perineal excision to clear out the endo followed by 2 rounds of ivf and the birth of our twins.
The ovulation pain started after about a year after the twins were born and gradually got worse along with symptoms of adenomyosis, which was a heavy feeling in my pelvis, hip and radiating leg pain. The ovulation pain started as a dull ache and eventually progressed to the point it had me on my knees. I had left sided pain, so every other month I was in bed for two full days with a heat pad on my back and a hot water bottle on the front and on the strongest cocodamol going and tramadol. It was awful.
I gave eventually gave in and went back to the surgeon who had done my initial excision and begged him for a hysterectomy, best thing I’ve ever done, but I appreciate that was fairly scorched earth approach! Luckily as he’s done my first surgery he knew how bad my endo had been in the first place, it was a 6 hour surgery with lots of complications, so he really listened to me and trusted my instincts.
My first Surgery he removed removed some affected ovarian tissue but at that point as we were trying for the babies he operated conservatively to try to maximise my fertility, second time round that wasn’t a consideration for us as we were definitely done with babies, so I wanted him to concentrate of reduction of pain, hence the whole lot out.