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Women's health

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Post surgery feedback - prolapse repair rectocele & cystocele

27 replies

alidew · 29/01/2019 17:02

So I'd commented on someone else's post a few weeks ago that I was about to go and have POP (pelvic organ prolapse) repair surgery. That was 8 weeks ago so I wanted to share how it went. I had level 2 anterior and posterior prolapses after 3 large babies and I'd been putting up with the prolapses for about 7 years and no amount of pelvic exercises had helped. I couldn't run or jump as I'd soak myself and needed to get up to the loo several times a night. I'm nearly 46. That was very depressing as I used to enjoy running a lot but not being soaked to my knees after 5km!

Anyway, the surgery went to plan and I had one night in hospital with a catheter in overnight. I had to take paracetamol for a few days afterwards and needed a lot of bedrest. I was a bit teary on day 3 when all the anaesthetic wore off, but I kept drinking water and sleeping when I needed to. I also ate a lot of prunes to help with that side of things :-)

My husband arranged to work from home for 3 weeks so he could do the school run etc. By 3 weeks afterwards I felt more like myself but I definitely didn't want to drive yet or walk too far. I have been doing physio exercises from Michelle Kenway's You Tube channel (I also bought her book) to help things along. It took until about 6 weeks for me to feel the stitches were getting there and I returned to work then too (I only work part-time with no long commute). I was driving again after the Christmas school holidays, so by week 5, although out of necessity rather than choice. I'd have preferred to wait until week 6 as I need to drive on small, bumpy country lanes.

I was very glad I had it done, it's been transformative. I no longer have to wee anything like as often and feel that I can empty my bladder properly when I go. I had my consultant checkup today and he said the rectocele was looking firm but the cystocele had descended slightly (I knew that had happened as I'd been lifting heavy laundry in week 3 when I really shouldn't have been).

I'm going to visit a women's health physio to help with that, continue with my exercises at home and use my pelvic toner - I use one that's recommended for use with a prolapse.

I'd be happy to answer any more questions about the surgery. I know lots of people on here have expressed fear about the surgical route. It was a last resort for me as I had tried to cure it myself with exercise but as my gynae explained, the position of my prolapses was such that pelvic floor exercises weren't ever going to help that much (they were sited below where the pelvic floor sits).

OP posts:
littlecabbage · 30/01/2019 17:19

Hi alidew
Thanks so much for your update. It sounds on the whole, quite positive. I have a grade 2 cystocoele and grade 1 rectocoele. The rectocoele causes me only v minor issues but I hate the cystocoele. My bladder control is fine, but it's the feeling of a bulge in my vagina that I hate, and also the feeling that I can't run or jump as things may fall out (grim).

I am seeing a pelvic physio and doing everything she advises, but hoping that there will be further progress when I stop breastfeeding and the oestrogen levels increase again.

May I ask.... could you feel a bulge/bulges before your surgery or was it mainly the incontinence that bothered you? And what are the names of the procedures that you have had? Can you feel that the cystocoele has descended slightly or do you only know this from the examination? What have you been told you can do once fully healed, in terms of lifting, exercise, squatting down?

Thanks for being so helpful.

ChickiePeaPie · 30/01/2019 17:21

Also interested in the answers!

alidew · 30/01/2019 18:10

Hi littlecabbage, yes the bulging annoyed me and was unpleasant as it was a dragging feeling especially towards the end of the day. It also added to the feeling that I couldn't fully empty my bladder. I had anterior and posterior vaginal repair, which I think can also be called POP surgery (pelvic organ prolapse). It was all done through my vag with stitches, no mesh and no keyhole so there is no visible scarring and recovery was relatively fast.

I can feel the cystocele has descended slightly but there is no bulge outside and I can empty my bladder 100% now. The gynae confirmed the returned cystocele is less than a grade 1 and should disappear with a concerted effort on my part with pelvic toning and physio.

I'm all cleared for exercise, although not to do heavy weight-lifting squats, which I never did in the first place! I started out walking 10 mins twice a day from week 3, now up to normal amounts (>10k steps a day) and everything's fine, although not yet walking the dog as he pulls a lot.

I haven't seen a physio yet so haven't returned to the gym until I know exactly what I can and can't do. I am being careful lifting as you would with a back injury or after a baby (kneel down to load washing machine, suck everything up and in before sneezing etc).

I'm at week 8 post op so am being conservative in what I can do, however I already feel stronger than I did at week 6 so am confident I will be able to return to jogging again at some point in the future but I will be sensible about it!

OP posts:
Muma1989 · 16/04/2019 09:58

Hello,
I’m a little late to this thread so hopefully you’ll read it!
I’m just shy of 2 weeks from having a prosterior and anterior repair and am desperately seeking some advice on how I should be feeling at this stage.
I’m still a bit sore down there but don’t need to take pain killers any more but I still feel some pressure down there. Did you feel this initially? I’m worried the op hasn’t worked. There doesn’t seem to be any post op advice online and my surgeon is on holiday now.
It definately feels better and there’s no bulge but i can still feel some pressure and I’m scared to even go for a walk as I don’t want to make it better.
Alidew, is there any advice you could offer me please?
Thank you!

littlecabbage · 16/04/2019 10:27

Hi @alidew, I'd love to hear an update from you if you don't mind?

alidew · 16/04/2019 12:34

Hi, sorry for the delay, I've been on holiday and I can't type for toffee on my phone (fat fingers!).

I'm now 4 months post op and I would say 100% better. I was very careful for the first 6 weeks and followed Michelle Kenway's book to the letter. I'm not advertising her at all but I found the lack of information from hospital disappointing and her book sets it all out clearly - I had no idea I wasn't meant to walk more than 30 minutes at 2 weeks after, for example.

Anyway, yes it worked, but the NHS didn't provide enough post op care so I paid to see a women's health physio and had to take the initiative to find out exactly what I should and shouldn't be doing to get better.

My GP says, and I agree with her, that if we all got post-birth physio for 6 weeks like they get in France, a lot of cost to the NHS would be saved. I think it would have saved me from needing this surgery and back surgery I had 2 years ago if I'd had my diastasis recti diagnosed and treated after the birth of my 3rd 8 years ago, but I feel fixed now.

Will carry on with pelvic floors and physio-type pilates daily for life though!

@Muma1989 I've answered your PM :-)

OP posts:
Muma1989 · 16/04/2019 12:59

Thank you @alidew, thanks for the advice and for sharing. So pleased for you that you’re mended!
Completely agree about the women’s physio being compulsory on the NHS like in France.
X

littlecabbage · 16/04/2019 16:28

That's so good to hear alidew, thank you. I'm glad it's all going well for you. I'll bear in mind the Michelle Kenway advice for if/when I have surgery.

I agree too - if a physio had warned me that carrying my baby in the car seat (which I did a lot) could cause a prolapse, I may have avoided it Sad

4peony3 · 11/06/2019 14:08

Thank you for posting it's so good to hear from someone who has been through the op!Can I ask (sorry for being crude) did you have bowel problems from the rectocele and did the surgery help with this?
I hope your recovery is still going well.

alidew · 11/06/2019 16:46

Hi @4peony3, no I don't think I did have any bowel issues. The main issue for me was the bulge into my vagina, which meant my body would expel tampons, so I couldn't use them or a mooncup as they were very uncomfortable. I'm now 6 months post op and think everything is better than ever, although I am very conscientious with core exercises, good diet and pelvic floor exercises. A bit of physio and women's specialist yoga has been fantastic. Boring I know but I would say this has helped with my recovery and I am going to keep at it. I still prefer to use pads instead of tampons etc but as I'm now also using a coil, that's minimal now.

OP posts:
littlecabbage · 11/06/2019 17:34

My main issue is the bulge too, so I’m pleased to hear that it has resolved, noting of course how careful you are being.

Muma1989 · 11/06/2019 18:50

Hi ladies.
I’m now 10 weeks post op and unfortunately I still feel really symptomatic. My bowel is 100% better but I still feel that horrible pressure feeling down there and it’s pretty uncomfortable. I’ve seen my surgeon twice now who says there’s no sign of prolapse and my women's physio says the same so I’m really confused as to what’s going on. I honestly thought I’d feel better by now. I have had a couple of symptom free days but then it comes back and is so frustrating.
Any advice would be hugely appreciated.
Thanks x

littlecabbage · 11/06/2019 19:35

No advice I'm afraid, but have they assessed you whilst you're standing?

Juls1957 · 25/06/2019 11:50

I’m 3 mths post op having had a prolapse repair bladder & bowel involvement and I’m still symptomatic even though I’ve had two follow up appointments with my consultant who reassured me I’m healing well ! Have to rely on laxatives even though my diet is good and I regularly walk although I do find any uphill walking and driving aggravates the discomfort more, am due to see a physio next week who specialises in pelvic floor exercises etc so hopefully things will get better soon- my advice is listen to your body and rest when possible

Afibtomyboy · 01/10/2020 21:56

@alidew
Sorry to bother!

Just wondering how you are now? Are you able to run? Exercise? Thanks

Bayleaf25 · 14/10/2020 22:48

@alidew and other ladies, can I ask if any of you are obese? I’m 16 stone and the consultant made it sound as if I’m too high risk to operate on but I’m really struggling to lose weight when I can’t easily exercise due to the prolapse. He also suggested pelvic physio but the physio also indicated it probably wouldn’t help the type/severity of the prolapse.

In short I feel like I’m just living with it despite being in constant discomfort.

CarolVordermansBum · 15/10/2020 13:49

Hello OP, I'm so pleased I found this thread, I was literally on the health board about to start one myself! I am due to have posterior and anterior repair surgery at the end of October, i have a grade 2 rectocele and grade 2 cystocele. I'm really worried, my main issue is I have four children, youngest is only 20 months and I don't know how I'm going to cope after the surgery. I am a single parent, the part you mentioned lifting heavy laundry at 3 weeks post surgery has made me panic as I can't Imagine not needing to lift my toddler up for that long, I will need to get her in and out of the buggy etc and I won't have anyone around to help for longer than a couple of days. Do you have any advice? How bad was the pain on a scale of 1-10?

Jroseforever · 18/11/2020 06:17

@CarolVordermansBum

Did you have your op? How are you?

CarolVordermansBum · 18/11/2020 12:33

Thanks for asking @Jroseforever! I will be 3 weeks post OP tomorrow, its flown by! The surgery went well, I was in theatre for around 2 hours. I had a spinal block with sedation instead of the general anaesthetic. After the surgery i couldn't urinate so had to have a catheter for a week, and then I needed to self cathetise for a further week after that, so that's something to be aware of if anyone reading this is getting the surgery done. The pain was mostly like period pain for a few days, honestly the most uncomfortable part was having the catheter in! My stitches still haven't dissolved but I think it can take up to 6 weeks. I'm really pleased I had it done, it wasn't half as bad as I imagined it would be Smile

Jroseforever · 18/11/2020 12:37

What was the name of your op and what was your prolapse

Hats off to you having sedation!

How was recovery been? Have you had lots of support? Any “oh dear have I damaged?”moments?

CarolVordermansBum · 18/11/2020 13:06

I had grade 2 cystocele and grade 2 rectocele. As for the sedation they said it has less side effects than a general, and the spinal block would act as pain relief after I woke up so I went for it, it was fine :) I have had lots of support from friends and family so that has helped alot. I'm pretty much back to my full range of activity apart from lifting and heavy housework etc. And the first few times I went to the toilet I was worried, but all was fine, I was taking laxatives for the first 2 weeks to help

Jroseforever · 18/11/2020 13:19

Sounds brilliant

Was was your op? Vaginal? Mesh?

Jroseforever · 18/11/2020 13:19

When do you see yourself returning to exercise? Running?!

CarolVordermansBum · 18/11/2020 13:23

No mesh was used, and I can start doing higher impact excersise after the 6 weeks are up

Jroseforever · 18/11/2020 14:33

Fantastic!

Was the actually procedure? Vaginal presumably?

Sorry to pester!

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