interstitial cystitis

[labazs]

please can anyone tell me how the heck i can live with this? i went through hell with it about 10 years ago and it seemed to go. now it is back with a vengence. dr has put me on tablets but nothing seems to help i went through the having things injected into my bladder before but it never did much good.i have been helping a friend sort a shop out this week and it could lead to me running a similar shop for them which is a dream come true but i dont know how i can cope with my bladder. every day i have come home in pain and had slight accidents; it doesnt help the toilet is vile where i am at the moment but in the new place toilet will be for me alone so it will be scrubbed within an inch of its life! i dont want to be wearing incontinence pants and pads i am only 54 i cant sleep with my partner for the pain which is not fair as we have only been together two years and love each other dearly. please can anyone who has lived with this horrible condition give me any advice i did read that you can take antihistamines to help but dont want to be doped up to the eyeballs

can anyone help me

Have you seen a women's health Physio?
Google jilly bond
She has videos and blogs and she treats this condition
What part of the country are you in? X

Im in tenbury wells worcestershire i do have a good GP well two i see so i could ask for referral a physio is not someone i have seen only a urologist who like i say did all the usual tests and proceedures to no effect. in all fairness it went away for quite a few years but like they predict has come back with a vengence

I did some research into this last year as I as having persistent bladder issues. If you have a firm diagnosis and there seems to be persistent infection present, supplements that clear bacterial biofilms (bacterial colonies that are sticking to your bladder wall) can be effective. I used monolaurin and lactoferrin for a while and it helped. However I've since had a cystoscopy (bladder looked fine) and a urethral dilation, and I use vaginal estriol cream (I'm perimenopausal) and it's really helped. That side of things is worth looking into as well, if it hasn't been discussed already. Low estrogen (in peri & post menopause) can cause a lot of bladder issues.