Illness, medication and trying to lose weight

[endofthelinefinally]

I am on long term, increasing doses of steroids.
Need to lose 2 stone, (that I have gained since starting the steroids). Can't exercise apart from gentle walking.
I have been low carbing for 4 weeks and lost 6 lbs.
I am struggling and so hungry.
Any tips, advice or experience?

TIA

I'm sorry, it's a rubbish situation. I've been there. I gained 4st and lots of stretch marks after being on steroids and having very little mobility. It's only just started to come off. I'm doing meal replacement shakes at the moment because over my years of being sick food became crutch and I now have a terrible relationship with it. It's not for everyone but at the moment I'm enjoying not have to think about what to buy & eat.
I think while you are ill and recovering you need to be kind to yourself and learn about what your new body can and can't do. Believe you'll come out the other side healthy and don't punish yourself.

Thank you for responding Ronnyhotdog.
Unfortunately I won't recover.
I am likely to be on the steroids for the foreseeable future and my consultant wants to put the dose up again. She thinks my mobility might improve on a bigger dose but I think the more weight I gain, the less mobile I will be.
If I end up in a wheelchair, being overweight is only going to make everything more difficult.
I just feel as if I am between a rock and a hard place at the moment.
I have never been this heavy - even when pregnant.
I guess there isn't a solution.

Is there no chance of remission once you find a treatment plan that works for you?
Tell me to mind my own if I'm being too nosey.

No, I don't think so.
It is a progressive condition so my best hope is to slow down the rate of progression IYSWIM.

I do think losing weight would help, but it is so difficult. I wish I could exercise more but I have limited muscle function so run out of steam very quickly. I used to be a good walker and swimmer. I get tired peeling a potato now.

Not that I eat potatoes you understand, but my poor DH still needs to eat and I do enjoy cooking.
He has to do everything else these days.

I really know how you feel, I have ra & sclorderma. No cure just slowing disease rate down. I used to walk everywhere and do some sort of work out every day. Had to stop 10 yrs ago when it flared up massively and nothing would slow it down. 10yrs of being pumped full of steroids, a knee replacement and various amounts of joints damaged we've found a treatment that's slowed it right down so this year I've finally got back to work, which is amazing. I've never felt tiredness like it when I'm in a flare up. I've fallen asleep on the phone mid convo. The scleroderma effects my lungs so I get so out of breath and my heart rate goes through the roof. I'm hoping this will improve over time too but who knows.
It's good your dh is supportive, I know it's still hard for you to watch him take over things you'd usually do. I had a huge amount of guilt that he'd come in from work, start tea, bath kids, tidy up while I was just over the moon I'd managed to brush my teeth that day. At my heaviest I was 16st, I know it's miserable. Sorry to sound like a cheesy broken record but please be kind to yourself. If you want the weight off it'll come off eventually, it might just be very slow. I lose around 1lb a week and that's doing meal replacement. It can hit your motivation hard but stick with it. The best thing anyone ever said to me was that I was grieving and I was allowed to do that. I was grieving for the life I had and the future I thought I was going to have. It's hard to accept but once you go through that grief it's easier to move forward with life and not let the illness beat you even if at times it feels like a situation you can't win. Have you been offered any counselling?

I am sorry to hear about your condition Ronnyhotdog.
I have been ill for a couple of years now. I had to give up work last year then my son died suddenly and my condition got worse probably as a result of all the shock and stress.
It has been a nightmare.

God, so sorry endof, what an awful time you've had. I'm sure the shock & stress have made things a lot worse. Emotions can play havoc on our bodies.
I hope you can find something that's helps you both with your illness & weightloss.