Young,Autistic and Stagestruck.

[LetThereBeRock]

Will anyone be watching this documentary? It's on Channel 4 at 8.

ADHD was mentioned once but hasn't been since.

We were given the dyspraxia dx on a letter after last visit. And just left to our own devices - i don't know what to do with him, I don't know what he needs!

Have you been to an OT MOM? We had a brilliant one and it has turned our DS round at school with the DCD/ADHD side of things. He has a wedge shaped cushion on his chair which is covered in bobbles and it means he has to constantly use his core muscles to stay sitting and the bobbles constantly send signals to his brain to give him more spatial awareness it's like a miracle chair. I'd love to chat as I've so been there with a Dx and no idea what I'm supposed to do with it, but now I'm starting to understand! We are going to the skate park now (with 3 DS, one of whom has serious co-ordination problems I must be mad) so if I'm not in A&E I'll be around later.

OT have us on their books but not involved. We have a Breezi chair - which is no longer the miracle it was 6 months ago - he has one at school that looks like a medieval torture chair. She also suggested doing Hama beads (can't with a 2 year old!) and yoga - not sure which exercises specifically!

School have given him a special pen to use despite the fact that they aren't allowed to write in pen until juniors
and have loaned 2 games which i don't know what they are supposed to help with. His teacher has put him on an IEP.

SOrry for hijack everyone.

I have posted on SN's, i have 2 dd's, one with Aspergers and one with HFA, they are still very young so its interesting to see how they may be in the future.

Some of the program made me feel but most of it made me , what a lovely bunch of children (and young adults), Ben is very similar to my dd1, the way he talks (dd1 ofter describes how her brain works) but it was upsetting when he talked about ending his life (dh found this upsetting and worries that dd1 will be like this in the future). Andrews parents were great, i loved the way they used roll play to explain how he should react towards the girl (this is the kind of thing i do with dd1).

We recorded it and i thought about letting dd1 watch it but i feel she is too young and i don't want her to compare herself to the children shown.

We have only just told dd1 about her Aspergers and she knows her sister has Autism.

I just hope people without family members on the spectrum were watching, the more people learn to understand Autism the better the world will become for Autistic people.

mumofmonsters- dd1 shows signs of dyspaxia, we are awaiting help from OT. DD1 loves Hama beads but we can't have them in the house since dd2 shoved one up her nose and ended up needing surgery , lego is another good one and threading. We have bought dd1 an gym ball to roll around on (which she loves), dd1's main problem is balancing on the toilet, she gets really anxious and shakes like a leaf. Both dd's do yoga since watching Waybuloo on cbeebies.

I'm going to watch this now on catch-up. My ex is friends with Andrew's parents- they are lovely people, really lovely.

I watched it and found it really moving and interesting. I don't have any experience myself, other than being parent, which I think is hard enough as it is! I felt that Ben's mum was so calm when he was talking about being so unhappy, and I just thought what must she have seen and coped with to be so calm. And Andrew's parents (the 17 year old?), they seemed to have such a great bond with him. Will watch with interest next week.

My family and I watched it with great interest. It was good the program showed children with autism on a different scale. And its so true what one of the parents said: " you can only understand autism if you have a child with autism". I had to fight back tears when I watched the program. Well be watching next week as well.

sooooooooooo happy you liked the show , mollie my little girl was in it, all i can ssay is it gets much better , have lots of tissues to hand , for happy and sad tears , thanks guys for your support xxx
we have a facebook group named after the show

all nine of them are good friends now, we will be going up to see Andrew and his family very soon , what an amazing family x

Hello Sabina. Very much looking forward to th rest of the series.

Was Mollie the girl who hid behind the curtain? (sorry I am terrible with names!)

Hi Sabina, it sounds like the show was a positive experience for Mollie? I'll look forward to next week.

sabina- what a lovely little girl you have, do we get to see more of her in the next episode? She reminds me a little of my dd2 (HFA). I'm trying to get as many people to watch it as possible, the more people we educate about ASD the better. I will take a look at the facebook group.

Have just finished watching this on channel4od... I think I cried pretty much for the whole programme!

Was fantastic I thought! after a conversation with preschool last week I am certain that ds has asd (had suspected for a long time but pushed it to the back of mind).

We are moving house in 2 weeks so feeling stuck waiting til registered at new gps etc and lookingfor playgroups etc. Not knowing or being able to do anything is the scariest thing.

But watching this has really cheered me up, although my son is 3, and these children much older, felt able to relate to the families, and really offered hope to me.

Such lovely and inspiring families, and great loveable kids

Watched this evening on sky+, could see much of DD1 (HFA) in some points, shes a mix of Mollie, Ben and Claire all in one.
She has asked to watch it and i think i will let her tbh. Andrew was a real sweetie and reminds me of my friends LO sooo much.

I cried when Ben said about prison, bless him. Its very hard when you have a child that is so down and tearful and you just dont know where to go.
I thought all the parents and young people were great!

i watched this tonight on catch up. My DS has asd and odd and i was a little sceptical about watching as so many programmes about autism seem to be negative or not a true representation of the whole spectrum.
My Ds was actually on the sofa when i put it on and it started with Mollie talking about being happy with the snapshots of her screaming and tantruming.....this is my DS and he actually looked up and said " thats me isnt it mummy" and then mollie said "i have autism" and DS just nodded.
I found watching this so heartbreaking but also found it a relief. Some days when DS is calm i forget he has autism and on these days i feel a fraud really that i pushed for a DX. This only makes it more heartbreaking when he goes into full autistic mode and screams and shouts like Ben did on this programme. My DS is aggressive and violent with hyper sensitivity issues and huge anxiety problems.

Am waiting for this to start. Thanks to Mollie's Mum for her supportive message to me after I posted on the website - glad you are on here Sabina.

Here we go.........

thank's for the remider - will record.

How excellent is Mollie's Mum? Brilliant.

I have a son with classic mild autism so I also find it mesmerising but upsetting watching these shows. My son is quite normal in some ways but he's quite shy and quite AWKWARD.

These workshops are a great idea.

The parents are all brilliant.

They are.

It may sound odd but I can see myself to an extent in some of the children.
I don't have autism but I have dyspraxia which can have quite similar traits.

that's an interesting question. I wonder about when my son is old enough to know that he has a label and what he will make of it. should i talk about it in front of him, or whisper it???