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Teenagers

Parenting teenagers has its ups and downs. Get advice from Mumsnetters here.

Original poster

mums of teens with chronic illness support thread

109 replies

morningsun · 16/01/2009 12:06

Hi,Im morningsun,new to mums net and mum to a 15 yr old dd diagnosed with severe crohnsdisease/ulc colitis a few months ago.
As it has had a lot of effect on her well being[emotional and physical],schooling and us as a family as well as the tests,clinic appts and health issues I'd like to start a thread for anyone in a similar situation,to exchange tips and chat about difficulties etc
So welcome!

OP posts:
Original poster
morningsun · 20/02/2009 14:48

had the most brilliant visit from pead community nurse
she saw us both together,then my dd then me separately
she made me feel better that she is so confident and independent cos we brought her up that way
said were normal teenage issues on top of her illness
gave her card in case dd needs a chat
i feel a lot better
feel i can get in touch if problem
i love the nhs!

OP posts:
seekinginspiration · 20/02/2009 21:09

To add, I'm working with an 18 year old who has chrone's disease, and only some of the staff know because of her mum. She's fantastic, works very hard, is very committed and flexible. I hope, that she would say chrone's is not the end of the world. We appreciate her and she is a valued member of our team

nickschick · 20/02/2009 21:15

Morning sun - glad things are looing up for you

optimisticmumma- good luck with your loghtning process I hope its succesful (what is it??)

Mixed week here too Sam exhausted himself out visiting the fair on Tues and so has been a tad grumpy and absolutely shattered all week .

Original poster
morningsun · 20/02/2009 23:28

sorry,paed

OP posts:
Original poster
morningsun · 20/02/2009 23:45

Also,she's going to be supporting us for a while
She organised dd to do her own repeat prescriptions and had a chat about her missing her tablets etc
Its the first time since she was an in patient i've felt someone gave me a bit of support,its really helped
just shows what can happen when you ask for help

OP posts:
optimisticmumma · 21/02/2009 21:50

Hi everyone - been away for a few days. So glad you've had a successful time morningsun . Nickschick: google lightningprocess.com to see what I'm on about! Too difficult to explain. sorry Sam's been down. DD has been completely fab for a week but now has tonsillitis I think - both her bros were ill before half term . Just our luck!!

Original poster
morningsun · 21/02/2009 23:27

Hi om hope you enjoyed your trip.
seems to be lots of tonsillitis around atm my ds 1 on ab for it
hope she is ok

OP posts:
optimisticmumma · 26/02/2009 14:52

Much better today Morningsun and in for 2 lessons. How is everyone on the thread?

milliemitz · 18/05/2009 09:56

Hi, can I join you please? my eldest ds is 19 and been struggling with intestinal pseudo obstruction and diabetes for 4y. thanks

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