Anyone else with a teenage girl with CFS?

[optimisticmumma]

Would love to talk to anyone in the same boat as me. My DD has had CFS for nearly 2 years now. Having got significantly better over the summer/autumn she has been poorly since Nov and has had sporadic schooling. We have tried so many differen things but at the end of the day nothing seems to work long term. Would appreciate support and any ideas....

Hi 21again. Just found your original thread. Some new postings on there with good info. As you haven't been on it for a while thought you'd like to know.

Hello - have just found this thread via google and am new to this but have read the threads with so much interest. My daughter (is that dd?) is 15 and was diagnosed with chronic fatigue syndrome in November. she is not that bad in the great scheme of things but has hardly made school this term so far. They are wonderful but it does not make it feel any better. Our experiences seem so similar to those in the other messages that just reading them made me feel better. We have been trying to take the stress off as my dd has been really suffering with panic. she got up really early on Fri and went to school for half a day with no pressure from me and then had friends for a sleep over. - good, calm two who understand her situation. it was so good to see her having a normal time. I am sure she will have some low days nowbut it feels right t let her have some of those normal times. I find the control thing hard - i need to let her say how she is! Anywy, now I have discoverd you, would be very interested to continue conversations if you want.

Hi dwardle - as you can see the threads stopped on here and went on to another one (I think it's under Child Health) but I will post under that so you can see it under active conversations and join in
I really feel for you because this illness is awful however mild you have it as you as well as your DD feel completely out of control. On the other thread there is more useful info but we all post as and when we have good times and bad .