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Teenagers

Parenting teenagers has its ups and downs. Get advice from Mumsnetters here.

Depressed son, over three years in and feeling completely abandoned

8 replies

dailystruggle · 25/01/2019 23:33

I've never joined a forum like this before, much less sent a post to one. But I am at the end of my tether.

My 16 year old son has suffered from depression for three and a half years. I have spent that entire time witnessing his gradual decline while the mental health services have been entirely ineffective in doing any thing about it. When it started he was a bright, outgoing boy, expected to get a set of top grade GCSEs (we've never tried to push him, he is just very capable). Since that time his school attendance has declined further and further, we've changed schools (to one much closer, CFS was an early symptom), reduced the number of GCSEs he is taking, lowered expectations about grades. Now he hasn't been to school at all for three months (I think the mocks finally pushed him over the edge, he didn't even take them). He is four months away from GCSEs and now the probability is that he won't sit them at all, much less pass any of them.

During that period, his mood has declined, he has lost most of his interests, and is losing all hope about his future. We are prioritising his mental health over education, but feel that we have been pretty much left to get on with it alone. Despite a lot of pushing and a resulting string of referrals to psychologists, psychiatrists (he is on anti--depressants, though they appear to be completely ineffective), key workers and therapists, nobody has been able to halt the decline. Either the interventions are too infrequent to make a difference ("so we'll see him again in three months"), or the quality of those interventions has been hopeless (key workers who seem to be unable to form any sort of rapport with him, much less provide any useful advice). I know I should be grateful we have been able to get some help, but it takes months to get anywhere.

I've seen the news reports about how the mental health services are failing teens, and now I'm experiencing it first hand. There genuinely seems to be nothing anyone is willing or able to do to help us and we're pretty much being told it's up to us to sort him out. My wife is having to give up work, and the school no longer even bothers to initiate any contact with us. We feel completely abandoned, left to deal with him as best we can, and left to pick up the pieces of his destroyed education. I get lots of breezy assurances that he can always go back to education, but having researched the options, there really isn't a lot out there. Certainly I can't see him attending a college in the next town or halfway across the county when he currently can't manage the ten minute walk to school.

I suppose I'm posting here because I'm interested in hearing the experiences of other parents who have been through this. There seem to be no parent support groups in our area, so we can't even talk things through with other people in the same position. And frankly, most of the time I don't feel that I have the faintest clue what I'm doing, whether I'm helping or hindering my son. I'm trying to maintain a brave face, encourage him, keep my relationship with him strong, but I'm increasingly struggling to hold it together. There seems to be no end to this and I wonder how far down he's going to sink.

OP posts:
Tarrarra · 25/01/2019 23:40

Sorry to hear about your ds. It's frustrating how little help there is. My ds is 16 and currently on antidepressants. His saving grace has been being at a great college where he can access counselling and they are referring him for cbt too. It has been heartbreaking seeing him suffer. Our gp has been fantastic and we would have struggled without her support but cahms wasn't interested. I think everything comes down to a lack of funding. It's tough being the person they talk to, as you have to stay strong. I've spent many a day in tears trying to hold it together at work whilst worrying about ds. You are not alone xFlowers

notaflyingmonkey · 26/01/2019 07:26

dailystruggle could you explore whether the provision of 'education other than at school' by the local authority would work for him? For DS it is 1-2-1 online tuition to get him through his A levels, but I think for GCSEs it is online classrooms, so other kids who aren't at school.

Also, are you able to get him counselling privately? We tried 3 different counsellors before we ended up with the one that DS goes to now. But I don't know that it does much for him other than provide a safe space for him.

There are no magic bullets though in my experience.

shadypines · 26/01/2019 10:16

Dailystruggle it was very difficult to read your post and I really wish I could help. Quite often help doesn't come in the obvious places as you have discovered, sadly. I wonder if you have looked at less obvious places eg a website re mental health, the local library, church. I am not saying specialist help is not required but sometimes its 'normality' or just seeking out some normal day to day stuff that he enjoys doing (does he enjoy doing anything?) that could be the saviour.

How is his physical health btw, eating , sleeping,? Have you considered getting him a pet to care for if he doesn't already have one, this may help his mood?

You are not alone Dailystruggle and I've seen many posts on here re similar to your son where they have come out of all this so there is hope.

blimppy · 26/01/2019 10:26

Hi, so sorry to hear you are going through this. Have had similar with DD and have experienced how inadequate mental health services are for teenagers. It's a horribly isolating experience for all. It sounds like you are being wonderfully patient and supportive and trying to get him help. All I can suggest is to keep pressing CAMHS directly and through the GP. If you can afford it, finding a private psychiatrist to review his medication and/or counsellor may be a way forward. If you haven't done so already, I'd suggest getting him a EHCP - I think you have to go through your council. Be prepared to challenge them and push, but it will place a legal obligation on the council to meet his educational and health care needs. It's a powerful tool - they will resist but with a diagnosis of Depression I am sure you son will be eligible.

As others have said, you are not alone. There's many families struggling with similar issues. It takes time but things can and do get better.

shadypines · 26/01/2019 15:44

Well said blimpy , I wouldn't give up contacting/pressing for the normal channels of help.

shadypines · 04/02/2019 19:31

Dailystruggle, how's it going?

friendlyflicka · 04/02/2019 19:39

My daughter is very anxious - too anxious to attend school atm. In the same year as your son and I am feeling pretty desperate. She has just started on ADs through dr, was with CAMHS before - they were nice and offered practical help about communicating with school but not much help with her.

My daughter's school are being very nice and at least she is not depressed. It is horrible though, isn't it? I feel very helpless and out of control.

I have tried swimming regularly to give myself a break from worrying. And then I find I deal better with her.

shadypines · 04/02/2019 20:58

Hi friendly it is sooo tough on us mums (and dads) isn't it , you do well to go swimming as you do need a break from the worry. Hope you get some help with your DD, there's some good advice on here and have you tried the YoungMinds website?

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