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Teenagers

Parenting teenagers has its ups and downs. Get advice from Mumsnetters here.

HPV vaccine and link to chronic fatigue

14 replies

Fedupforties · 10/06/2018 20:03

My 11 year old daughter has brought home the form for the HPV vaccination but I read somewhere that there might be a link with chronic fatigue syndrome / ME? I know people whose daughters have have chronic fatigue / ME for several years aged 14-17 which has really got me thinking. Please could I have your thoughts as knowledge is power!

OP posts:
TheThirdOfHerName · 10/06/2018 20:05

Norwegian study

TheThirdOfHerName · 10/06/2018 20:07

Link to the paper

LineRunners · 10/06/2018 20:08

My daughter was in the firstcohort. I've not heard of any ill effects from her or her year group - they're now 21/22.

I hope boys get the vaccination too, tbh.

bruffin · 10/06/2018 20:10

I know boys and girls who had chronic fatigue in their teens ,long before the hiv vaccine.

MarthaArthur · 10/06/2018 20:10

Im 26 and had it as a teen as did all my peers from 3 different parts of the country and no one we know had adverse effects. It seems only now teenagers are finding problems is there a correlation or is it random?

FanSpamTastic · 10/06/2018 20:15

I have 2 teen girls - both have had the HPV vaccines (as far as I am aware so have all their friends). No side effects other than sore arm immediately after.

mamas12 · 10/06/2018 20:15

My dd didn't have the second one after the fatigue she suffered was quite severe, and, after talking to the school nurse she actually said not to go for the second one as she wasn't the only girl that she had come across to react like this.

MilkyCoffeeAndSkinnySyrup · 10/06/2018 20:17

I had an awful reaction to it I was affected for months. I refused to get the third one done! The vaccine is not safe. I wouldn't advise that she'd get it! Look on the news as well in regards to it's safety... so many girls have been disabled because of it.

TamiTayorismyparentingguru · 10/06/2018 20:19

I have 2 siblings (much younger than me) who had it and no side effects in any of their large cohorts that I know of. (We come from somewhere that if someone had had an reaction everyone would have known about it!)

I paid to have my DS vaccinated and will have no qualms about vaccinating my DDs. I’ve lived through the effects of HPV related cancer and I wouldn’t wish it on anyone - no brainer for me

bruffin · 10/06/2018 20:28

Fwiw, none of my dds friends or my friends dds had any problems

MikeWyzowski · 10/06/2018 20:50

I chose not to get this for my teenager. Well, the notification came home with the first injection to be done THAT week which I thought was very rushed with very little infornation so I rang my GP who gave me a long considered opinion on it and recommended I get a second opinion but ultimately that she would not give it to her daughters, for many reasons, none of which included the reported side effects but all of which seemed sensible and reasoned. Dh and I discussed it with DD and we all agreed that we weren't filled with confidence about it so would hold off for now.

I posted on here for opinions and was ridiculed for even considering not letting her get it. There was no balance, it was 100% you are a fool and a bad mother but she is my child and my responsibility so I was responsible, not strangers on the internet.

Three years on I am still on the fence about it. I generally believe in vaccines but this one just seems so unbalanced. It's all: you must have it, everyone says it's fine and those who say there's a problem are crazy. Well, they re not crazy, they just believe there is a link and if Gardasil manufacturers tackled the bad side effects reports rather than labelling them all crackpots I would be glad to listen. On the other hand my non vaccinated teen is sometimes very exhausted and lethargic (not needing medical attention though) and I know if she had had the vaccine I would be convinced this was the cause.

I'm sorry this is no help to you OP, one GP I spoke to reckoned that the vaccine would only cover her til 17 and if she was not going to have sex until that age then she could reconsider it then, also that there are no long term cases to prove either way. I am still fairly confident about not having it but I feel the weight about having made this decision for someone else.

For those who say they had it and had no ill effects well, that's great, but each of you are not enough assurance that this vaccine is safe!

Jonathon Irwin, the founder of a fabulous Irish charity called the Jack and Jill foundation is anti the vaccination though not part of any organisation in that respect but because his daughter was adversely affected and he is convinced it was triggered by the vaccine.

When my first child was due the MMR it was at the height of MMR doubt so I asked my GP her opinion and she gave me a measured report on the pros and cons and coming down heavily on the side of the pros so I went ahead with confidence. The point is she gave the cons too but the pros far outweighed the cons. There seems to be no such tackling of the negative effects of Gardasil. Just: there are none, shut up and get it!

TheThirdOfHerName · 10/06/2018 20:57

Girls can receive the HPV vaccine on the NHS until they are 18, so you can always delay it.

TamiTayorismyparentingguru · 10/06/2018 21:04

I appreciate your considered opinion Mike - it’s good to hear the other side in a nuanced way.

I just want to say that on the other hand ALL the HCPs we have dealt with due to DH’s cancer - from docs to consultants, oncologists to radiologists, nurses to dieticians - have said they recommend the vaccination and would have/have had their DC vaccinated inc paying privately for their DSs. HPV related cancers are rising for both men & women and for those who treat the head and neck cancers they saw no reason to not have it.

I do understand that they are not GPs and aren’t in the business of vaccinations themselves, but I do trust their insight and wisdom.

Davros · 10/06/2018 23:33

My niece is now 23 and had it in the early days when it was in three stages. She had the first two and had a severe ME reaction and missed most of a year of school. She didn't have the third phase and It was designated "reportable" by her GP. All of her friends were fine as far as I know. For this reason I didn't give it to DD as they are closely related. I also have a respected friend who is a Doctor who looked into it in depth and did not let his DD have it.

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