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I seem to have cured my adult acne

10 replies

Romanarama · 04/02/2010 14:16

Just posting in case others are interested. I have been taking an anti-androgen drug called spironolactone for 2 months. My skin got much worse for a while, but now it's all cleared up. Ask your doctor about it if you're not getting anywhere 'curing' cystic acne.

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Mumsnut · 04/02/2010 16:55

ooh, thanks!

TheLemur · 04/02/2010 17:18

Sounds good, I am interested! Have you got any more details or links? How does it work, side effects etc.

What previous treatment had you tried? I've been on roaccutane twice to no avail but post-baby my condition is a lot less severe

Romanarama · 04/02/2010 18:14

Will tell you everything I know once dcs in bed!

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DawnAS · 04/02/2010 19:04

Brilliant - sounds great. The only thing that ever worked for me was Dianette, the contraceptive. Got a 7 month DD now but really don't want to go back on the pill, so very interested to hear more info!

Romanarama · 04/02/2010 19:10

OK, I developed acne about 10 yrs ago when I was around 26 and had no kids. I tried the dianette contraceptive pill with no good result, then tried roaccutane. It was sort of effective though not completely. I hated the side effects - I could hardly smile for 6 months as my lips would split and bleed, and I found my contact lenses really uncomfy. The acne came back gradually, but I never really treated it again for years with any heavy-duty meds as had 3 dcs in succession. Last year (youngest child now 3yo), it got quite a lot worse. I wasn't really getting any spot-free days, though in the summer it cleared up quite well.

Anyway, come autumn, I went to a derm. I didn't really want to take a pill again as suffer from migraine and it's a contraindication. She said that in Europe the pill is the standard treatment for adult cystic acne, but in the US they tend to give spironolactone. It's originally a medicine for cardiac disorders of some kind, but showed quite by chance this beneficial effect for hormonal acne in women and is now quite widely prescribed.

You have to take between 100-200mg per day. I started with 100, taking it in the morning as it's a diuretic. It did make me pee quite a lot. It also gave me an upset stomach and made me feel sick, but I soon realised that taking it with food, not before breakfast sorted that out. I felt like it made me feel quite dizzy too, so in the end I started taking it with dinner, so any dizziness would happen when I was asleep. This was fine, and I didn't need to get up to pee, so all OK there.

The first 4-6 weeks my skin really got much worse, with horrible whiteheads and loads of spots and lumps. Add this to feeling awful as described above and I thought about stopping, but decided to give it 3 months to see. After about 9 weeks, my skin really cleared up a lot, and I was feeling the side effects much less too. I went back to the derm who said to increase to 125mg, and prescribed me erythromicin antibiotic gel to put on top of any whiteheads. I'm now about 11 weeks in, and have had only one spot in the last 2 weeks, and that one doesn't hurt at all.

The drug can cause potassium to accumulate in your blood, which is dangerous for your heart, so you have to check your potassium levels regularly. I'm also not sure of the long-term implications. My plan, as discussed with the doc, is to reduce the dose once my skin is really clear, and see how it goes. The spots might of course all come back with a vengeance, and I don't particularly want to take this drug my whole life, although it is a drug that people do take for years and years. But for now it seems to be a pretty good solution to an unsightly problem.

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Romanarama · 04/02/2010 19:51

omg forgot really important detail: it makes your boobs grow about one size (v.good for me as am ironing board), and tends to make you shed a few pounds (not so great for me for same reason!)

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DawnAS · 04/02/2010 20:18

Hmmmm, sounds good, especially the bigger boobs and losing weight!! But I'm a bit concerned about the nausea as I'm an Emetophobe (phobia of vomiting...). Can that definitely be controlled by taking it at night?

Will GPs prescribe it do you think or is it not well known enough?

Ripeberry · 04/02/2010 20:22

I think I'll put up with my spots....could cause heart problems....much worse than a few spots

Romanarama · 04/02/2010 21:58

I'm not sure about GPs, it's a very well-known medication, but I don't know what the rules are about such things. You can always ask.

Ripeberry, I don't think it causes heart problems exactly, but it can cause your potassium levels to rise, which would be bad for your heart, as potassium accumulates in muscles, and the heart is your most important muscle. You have a blood test once a month to check that your potassium level is normal, in which case it's OK. If the level was tending to rise, then you would have to stop taking the medication, or reduce the dose.

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Romanarama · 04/02/2010 21:59

Actually it's usually used to treat heart problems.

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