My son was diagnosed with psychosis, possibly schizophrenia, aged 19. For years we knew there was something wrong but were without any real clues as to what the problem might be. Once he became more conspicuously ill we were able, retrospectively, to view those years as the prodrome (the preliminary "warm-up period") of his illness.
I was struck by how poor my understanding was of this common illness, and how far off most parents' radar it is when they feel concerns for their children. It is such a common illness. One in a hundred people will develop schizophrenia, and more will become psychotic for other reasons. In males the illness tends to strike around the age of 19 or 20, with a possible build-up over a few preceding years. Just as parents of young children tend to have some understanding of autism and what signs ought to raise concerns on that front, parents of teenagers ought to have a good awareness of psychosis.
It would be massively useful if there was a high-profile publicity drive on this issue. Here is the key thing that needs to be taught: What we think of as the classic signs of psychosis (being conspicuously out of touch with reality, voicing weird ideas, noticably seeing or hearing things that aren't there) are by no means the whole of the illness and are fairly unlikely at first to be a visible, or highly visible, part of the young person's difficulty.
Natasha Devon seems in a good position to ask/urge influential people in relation to achieving better public understanding of psychosis so I guess my question is: What do you think could be done to this end? How can we make parents "psychosis literate"?
Here are some early signs of schizophrenia and other psychosis that parents need to have a better awareness of
*Becoming isolated and withdrawn
*Flat, unemotional
*Irritability
*Very inflexible thinking, especially when under emotional pressure
*Difficulty understanding other people's motives and state of mind, consequently experiencing people as antagonistic, hostile
*Guarded, unforthcoming
*Inability to get any pleasure from anything
*Profound lack of motivation
*Clumsy motor skills and unusual gait (this might be schizophrenia only, I think)
The "negative symptoms" the things that the person can't do (socialise, initiate goal-directed behaviour, experience emotion, reason effectively about personal situations, even if highly intelligent) are often much much more conspicuous in the early stages of psychosis than those "positive symptoms" delusions and hallucinations that we all associate with psychosis. I wish this could become part of the background general knowledge that parents operate with.
Just for reassurance, lots of those signs above can overlap with normal teen behaviour. There is no need to see them as signs of illness in themselves, unless very extreme. But if you already know that there is something wrong, they can guide your thoughts about what that something might be.
Sorry for epic post. I want to save other parents from the years of futile bafflement that I had.